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» LymeNet Flash » Questions and Discussion » General Support » llmd how many

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LymeNet Contributor
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My daughter is doing a project on Lyme controversies for school. Does anyone know approximately how many llmd are in the U.S.


Posts: 488 | From NY | Registered: Oct 2004  |  IP: Logged | Report this post to a Moderator
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I would call ILADS.

Address PO Box 341461
Bethesda, Maryland
Phone 301.263.1080
Fax 301.263.0776
Email [email protected]

**Eat Chocolate**

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I believe BettyG keeps an updated list, perhaps she can count them for you?

What grade is your daughter in? I just wrote a paper on the legal controversies in the standard of care for Lyme disease for law school. I might be able to email your daughter some news articles and other sources I used.

"When there is pain, there are no words." - Toni Morrison

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tell us more about this school project please! thank you! [Big Grin]

i misread this whole thread; thought you were asking how many lyme patients diagnosed yearly , etc. i'm going to leave the extra stuff in here, maybe she can use some this too!

i think it would interesting to include our long list of lyme symptoms which help to explain why we are NOT correctly DIAGNOSED when our 1st symptoms show up since 300 other illnesses mimic lyme disease!

niek/others, I do NOT have a complete LLMD list!

imanurse had a great suggestion on contacting ILADS for their input!

Tincup posted March 8, 2005,

Lyme Disease Survey Responses,
FINAL RESULTS shown below!
February 27, 2005 - March 9, 2005

1. How many doctors did you have to see before being properly diagnosed? 112 responses
Average number of doctors consulted before being diagnosed - 14
Answers ranged from 1- 120 different doctors

2. Have you had problems getting insurance to pay for doctors or treatment?
87 responses? Yes- 63 No- 24

3. Have you lost income because of Lyme disease? 106 responses
Yes- 99 No- 7

4. How much does it cost you (average) per month for Lyme related expenses? 61 responded
Average cost per month per patient- $4,472.49
Low- $500.00 High- $21,492.00

5. How many different medications do you take per day? 77 responded
Average - 14 different medications per day
Low- 3 High- 25

"But You LOOK Good: A Guide to Understanding and Encouraging People Living with Chronic, Debilitating Illness and Pain!";f=3;t=008886

This "letter to normals" is circulated in fibromyalgia circles but the symptoms are often identical because chronic lyme can turn into fibromyalgia.
Just substitute "lyme" in place of "fibromyalgia"

2005, top 20 states in CDC STATS; fyi, IOWA no. 15%

LYMEDAD sorted the numbers for 2005 plus 2006 (through 12/23/06.

New York 9754
Pennsylvania 7642
New Jersey 5281
Connecticut 3497
Wisconsin 2786
Massachusetts 2369
Maryland 2177
Minnesota 1646
Delaware 1111
New Hampshire 823
Virginia 589
Maine 534
Rhode Island 274
California 264
Iowa 176
Vermont 157
Illinois 127
Michigan 116
Florida 106
Ohio 100
Texas 88
North Carolina 79
West Virginia 75
DC 69
Indiana 54
South Carolina 33
Missouri 27
Tennessee 20
Alabama 19
Oregon 18
Arizona 17
Washington 16
Nebraska 13
Georgia 13
Kentucky 12
Idaho 9
Utah 8
Kansas 8
Alaska 7
Nevada 6
New Mexico 5
Wyoming 4
South Dakota 3
Louisiana 3
North Dakota 3
Colorado 1
Mississippi 1
Arkansas 0
Guam 0
Hawaii 0
Oklahoma 0
Puerto Rico 0

From Truthfinder/Tracy:
According to the 2003 CDC Incidence map, in places like Colorado, Montana, North Dakota, and a few others, you have a better chance of getting hit by a meteor than contracting Lyme Disease:
or this ``risk map'':

Now compare that to this map that shows the incidence of positive Lyme test results in dogs in the USA:

Lymeneter Kay found this list of symptoms at
It says it all:

Tick Borne Disease - Symptom A to Z
Lyme Disease is systemic, it can effect the whole body.
This page lists the possible symptoms.

Abdominal Pain
Achiness (Generalised)
Acrodermatitis Chronica Atrophicans/ ACA
Alcohol - Extreme Effects Of
Anxiety Attacks
Back Pain
Balance Problems
Bell's Palsy
Bladder Problems
Blood Pressure - Raised
Bone Erosion
Bone Pain
Bowel Problems
Bradycardia - Slow Heart Beat
Brain Fog
Breast Discharge
Breast Pain
Breathlessness - Air Hunger
Carpal Tunnel Syndrome
Chest Pain
Cholesterol - Raised
Clicking Joints
Cold Feet
Costochondritis / Ribcage Pain
Cough (Non-Productive)
Deafness / Hearing Loss
Dental Pain
Difficulty Concentrating
Diverticulosis / Spastic Colon
Ear Pains
Encephalitis/ Encephalopathy
Erythema Migrans Rash
Facial Pain
Facial Palsy
Fasciculations / Muscle Twitches
Flu-Like Symptoms
Fluctuations of Symptoms
Foot Pain
Hair Loss
Hearing Loss
Heart Block
Heart Problems - ECG Abnormalities
Hyper Sensitive Hearing
Hyperacusis - Sound sensitivity
Inability to Concentrate
Inability to Remember Words
Involuntary Jerking, Limbs and Trunk
Irritable Bowel
Jaw pain/ Temporomandibular joint disorder
Joint Problems
Joint Swelling
Knee Joint Pain
Libido - Loss Of
Light Sensitivity
Liver Problems - Raised Enzymes
Malar (Facial) Rash
Marked Personality Changes
Memory Loss
Meniere's Disease
Menstrual Irregularities
Miosis - Decreased Pupil Size
Mood Swings
Motion Sickness
Muscle Aches
Muscle Spasm
Myoclonic (Involuntary) Jerking
Neck Pain
Nerve Conduction Defects
Optic Neuropathy
Panic Attacks
Paraesthesia / Abnormal Skin Sensations
PMS - Pre-Menstrual Syndrome
Psychiatric Problems
Ptosis - Drooping Eyelid
Retinal vasculitis
Reynauld's Syndrome - Cold Hands & Feet
Shooting Pains
Shortness of Breath
Shoulder Pain
Skin Sensitivity
Sleep - Excessive
Sleep Apnea
Sleep Disturbances
Sleep Inability
Slurring of Speech
Smell Sensitivity
Sore Throats
Speech - Slurred, Slow
Speech Errors
Spinal Disc Problems
Stiff Joints
Stiff Neck
Swallowing Difficulty / Dysphagia
Sweating (Profuse)
Swollen Glands
Symptom Flares - Approx 4 Weekly
Tachycardia - Fast Heart Beat
Testicular Pain
Tingling of Extremities
Tinnitus / Ringing in Ears
TMJ - Jaw Pain / Stiffness
Tongue Numbness
Tongue Pain
Tooth Pains
Tremors / Shaking
Vasculitis - Circulation Problems
Vibration Sensitivity
Visual Disturbances
Weakness or Paralysis
Weight Gain
Weight Loss
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