posted
In January 2004 my husband searched the web for help for me. He was directed to this site and received valuable information which led us to get the WB and make an appointment with an LLMD. I started abx in Feburary and now have regained most of my life.
I would like to thank each of you for being there for all us Lymies. Without you and the Lord's help I'm sure I would not be here today.
Again, thanks to all of you. I'm sorry you are sick. Hang in there and never quit praying. May God give you the strength to keep helping others. I am new to the computer but am willing to learn and would love to help others as well.
Best Wishes.
Sherry Posts: 69 | From mississippi | Registered: Feb 2007
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Beverly
Frequent Contributor (5K+ posts)
Member # 1271
posted
I'm glad LymeNet helped you, and so very glad you have regained most of your life. That is wonderful news.
I sure wouldn't be here without my faith in God, LymeNet and my LLMD.
To make a long story short enough. the things that got me where I am today are: 1. Found LymeNetFlash 2. Made an appointment for a (Lyme)test 3. Made an appointment with an LLMD who prescribed: 1. baby asprin 2. Nystatin 3. Doxycycline 4. Clindamycin and Quinine rotated every ten days with Amoxacillin 5. Flagyl 6. After five weeks add Biaxin 7. Rifampin
Dr. told me to detox with; 1.charcoal and extra virgin olive oil 2.Unheated honey with apple cider vinager 3.vitamin C 4.Detox Max Plus (wonderful stuff)
Dr. told me to stay on one antibiotic until I quit herxing or until I stopped improving
Dr. told me to restore the good bacteria in my intestines and to eat Yogurt and buttermilk
Dr. told me to read all fifty pages of literture that he had supplied me with and educate myself.
This concludes 2004 the first year
For 2005 these were my presciptions; 1.Erythromycin with Plaquanil 2.Sulfa 3.PenVeeK 4.Tetracycline 5.Sulfacetamide (antibiotic eye drops)
For 2006 these were my prescriptions; 1.Malarone 2.Minocycline 3.Zithromax with Plaquenil 4.Actos tablet 5.Questran
I am sure that I have failed to mention some things, as some of us Lymies do. When I remember things or find other information in my files I'll be happy to share.
Thanks to you and all for listening and being there for our "fictional disease"
With you all and God in Heaven we will overcome and survive!
Sherry
P.S. I have the long version which I will share with those who are able to read or have friends and family to read to them.
Posts: 69 | From mississippi | Registered: Feb 2007
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Mississippilyme
like a good program and
hope you and your hubby can have health & happiness all the years to come
I do love lymenetters & thank God everyday for also bringing me here too
Blessings
Dana
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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I would like to thank all of you for your concern and support.
This is my long version for those who are able to read it or have friends or loved ones to read it for them. For a long time I could not see to do anything. Thank God my husband found this site for me.
As you might know there are no short answers to 1this truly wicked disease.
I was one of the lucky ones! I wish all could be this lucky and fortunate. I am so sorry you are sick and pray for your recovery.
My symptoms started all of a sudden 9-25-03 when I awoke. They were so severe that this was a definate red light flashing.
My head, only on the left side, hurt so bad I could barely see. It felt like large spikes being driven into my head (about eight).
I could not sleep for more than 10 minutes at a time (for five months).
Within four months: 1. The left side of my head was numb except for excruciating constant pain inside.
2.A strip (one inch wide by five inches long) of my hair fell out on top of my head.
3. My vision was so blurry,double, triple, things that were on the ground appeared to be in the air, things were farther over than I reached, I could not see to do anything. I could not go into sunlight without covering my left eye.
4.I lost fourty lbs. My taste sense was messed up and I could not eat any salt (too salty),no pepper (too hot), No sugar(too sweet). I also couldn't stand to smell anything. It made me vomit(sorry), I did this daily even though I could not eat.
5.My left sinus stopped working, I could not sneeze or blow any mucus out. My tear duct or gland stopped working, I could not cry it hurt too bad when I tried. I could no longer whistle.
6.The only thing I could make myself do was attend all Dr. appointments my family could get for me. I had twelve apps. with MDs, two neurologists, a sinus specialist,and went to at least six different establishments, including two emergency facilities. I had been given several antibiotics since this acted like an infection, A MRI on my brain (which was negative and made me feel better about tumors), and very few pain pills which did not help the pain or anything else.
7. Each time that I was prescribed an antibiotic I got worse. I did not know that the antibiotics were killing germs which were turning into toxins and killing me. There were no Drs. who knew to tell me this either. This was good information for my LLMD, that by itself was an almost positive for Master's desease or (borreliosis) for me.
8.Sinus specialist had enough sense to make me an appointment for a MRI when he concluded it was not sinus related.
9.I was told after my second visit to a local emergency facility that "sometimes our brains tell our head to hurt". I also had contacted Bell's Palsey and could not open my left eye very wide,(I did not know what was wrong), they said as long as I could take my fingers and hold my eye open that it was open,I knew that the pain and symptoms were real no matter what anybody said.
10.When I went to Neurologist for MS and other related diseases, I was normal. I had plenty of strength in my arms and legs and my balance was fine. Dr. said he did not know what could be wrong with me, this was the first Dr. who told me that.
11.While my husband was second guessing the neurologist oppinion surfing the web, discussed my symptoms with her. She had some of the same symptoms and sent him to LymeNetFlash, she must have been God sent. This was in Jan.2004. I felt so much better to know that someone else knew what I was going through was real, not an over-active brain. It also helped knowing that it was a disease and when you go to the right Dr. a LLMD there is help and hope. This did me more good than all the pain pills that I had taken.
12. On my way to recovery; I immediatly made an appointment for a Western Blot test listing ALL BANDS. I then made an appointment with an LLMD located five hundred miles away.
13. My test results were totally negative according to the Dr. and lab in my town. I had already been warned about this and knew to take it with me to the LLMD.
14.My appointment was in Feb.2004. As soon as my Dr. saw a positive band he knew that I was 98% positive for Master's disease or (Borreliosis). When I told him how sick I was after taking antibiotics for forty days, he knew for sure. He explained to me about the toxins produced by the decaying germs, they are too big to pass through the blood streem without decaying first.
15.My Dr. gave me a wealth of information about this horrific disease, about fifty pages front and back. He instructed me to have my loved ones read it to me over and over until I could comprehend some of it. There is so much going on that he could not possibly cover it.
16. He told me to begin to remove toxins from my body with; 1. activated charcoal tablets and extra virgin oil. 2. apple cider vinegar and unpasturized, unheated honey. 3.Vitamin C 4.Detox Max Plus (this stuff is great)
17. He told me to take good antibiodies to replace the lost ones in my intestine, and to eat yogurt and buttermilk.
18. He told me to read all the literature and educate myself.
He told me to keep taking one antibiotic until I stopped herxing from it, and stopped continuing to feel better.
He said that if I was not in New England when I got the tick bite, then what I have would be called Master's disease or Borreliosis.
Ticks in the USA have a number of infectious diseases. They can have as few as one and as many as there diseases, some of these are Borreliosis, Rocky Mt. spotted Fever,Babesiosis,ehrlichiosis, Bartonella(cat scratch disease),and tularemia(rabbit fever). For this reason the USA disease is different from New England Lyme. Studies done by researchers with microscopes have seen a difference in the rash of the two.
Here is a list of antibiotics that I have taken; 1.Nystatin- intestinal yeast controll 2.Doxycycline- targets most tick-born diseases 3.Clindamycin and Quinine-targets Babesiosis, rotated every ten days with Amoxacillin ten days- to target bacteria hiding in cell walls L-form 4.Flagyl- the only antibiotic which targets the cyst form of Borrelia burgorferi (a Lyme bacteria) and protozoa which is not a bacteria, virus, fungus or yeast. 5.After five weeks of Flagyl,Biaxin or another antibiotic has to be added to kill the spirochete (or spiral form) of bacteria which the Flagyl has chased out of the cyst. 6.Rifampin- targets Bartonella (cat scratch disease)
2005 prescribed antibiotics; 1.Erythromycin 2.sulfa with Flagyl- targets both bacteria and protozoa 3.PenVeeK 4 Tetracycline- more water-soluable, gets into tissue better. 5 sulfacetamide-antibiotic eye drop
2006 prescribed antibiotics; 1.Malarone- targets malaria and other similar diseases. 2.Minocycline- targets the brain area helping with cognitive problems, and any neurological problems originating in the brain.
3.Zithromax with Plaquenil- Zithromax targets the cell walls. Borrelia burgdorferi (a lyme bacteria), have the ability to get rid of their cell wall, this antibiotic works on the inside of the bacteria to kill them. Plaquenil is a quinine derivative but milder. It is one of the few antibiotics that is able to work in an acid enviroment. White blood cells attack to kill germs, the germs get attacked by Lysosomes inside the blood cells which have an acid enviroment.
I hope this helps someone.
May God Bless You, Sherry Posts: 69 | From mississippi | Registered: Feb 2007
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Mississippilyme
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