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» LymeNet Flash » Questions and Discussion » General Support » Having Lyme Disease is like ? Your Quote

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Author Topic: Having Lyme Disease is like ? Your Quote
treepatrol
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Having a big mean ugly dog that you have to take outside and scoop up his sh*t everday!

--------------------
Do unto others as you would have them do unto you.
Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.

Newbie Links

Posts: 10564 | From PA Where the Creeks are Red | Registered: Jun 2003  |  IP: Logged | Report this post to a Moderator
Geneal
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Having a nightmare from which you can't wake up.

Hugs,

Geneal

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kam
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Climbing a mountain everyday in high altitude with an overloaded backpack on a loose shale slope.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002  |  IP: Logged | Report this post to a Moderator
CaliforniaLyme
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Waking up in a Kafka novel!!!!!!!!!!!!!!!

--------------------
There is no wealth but life.
-John Ruskin

All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer

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lymeladyinNY
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having burning shards of glass running rivers through your body.

--------------------
I want to be free

Posts: 1170 | From Endicott, NY | Registered: Sep 2006  |  IP: Logged | Report this post to a Moderator
Kayda
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Having Lyme disease is like being a paraplegic trying to claw your way up a flight of stairs. It takes all your strength, courage and stamina to make it one step, two, three and maybe four only to have someone kick you back down to the bottom in the pit of pain & confusion. You can't stay in the pit, but climbing the stairs seems futile. You keep on trying only to have it happen over and over again.

Lyme disease is a vicious cycle of pain, agony and despair with a glimmer of hope here and there or is that an on-coming train!

Kayda

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LisaS
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Hell on earth

--------------------
https://www.facebook.com/profile.php?id=1660435643

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Katcon
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Being on a scary ride that you can't get off.
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5dana8
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Having lyme is like being at an all you can eat buffet but are not allowed to eat anything.

--------------------
5dana8

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Lymetoo
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sinking in quick sand

you guys have great responses!!

--------------------
--Lymetutu--
Opinions, not medical advice!

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bubbear
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Lyme Disease is like watching everyone and everything you know,love,feel and cherish die everyday except you never lose consciousness ...or feeling in your heart.

--------------------
Hugz, Tugz and Health to you!
Greg/bubbear
http://centralfloridaresearch.com
Treasure the love you receive above all. It will survive long after your good health has vanished.Og Mandino

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Cobweb
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An eraser-it's erased my health, my job, my marriage, my home, my finances...

but it hasn't erased my Faith!

"Having lyme is like being at an all you can eat buffet but are not allowed to eat anything." this reminds me of an inpirational, fictional story I heard about a group of people with a particular disorder where their elbows would not bend, so they could not feed themselves.They were still happy and well fed-because they fed each other!Just like here on Lymenet! [Smile]

Carol

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motownlyme
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Having Lyme is like slowly drowning. You come up for air,see the light, and are pulled back down again over and over.
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savebabe
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Having lyme disease is like being in prison, for life!!!
Posts: 1603 | From ny | Registered: Aug 2006  |  IP: Logged | Report this post to a Moderator
cantgiveupyet
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Starting life all over again, everything you once new or did is gone and you are now trapped within your own body.

--------------------
"Say it straight simple and with a smile."

"Thus the task is, not so much to see what no one has seen yet,
But to think what nobody has thought yet, About what everybody sees."

-Schopenhauer

pos babs, bart, igenex WB igm/igg

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AZURE WISH
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Having lyme disease is like never completely coming out of anesthia.

Having lyme is like being held hostage by a sadist.... You are taken away from your "normal" life and tortured daily. While you sleep your kidnapper dreams up tons of new torments.

and the kidnapper only allows you to sleep (actually forces you to sleep and sleep) so that inbetween the sleeping nightmares you can dream of all that was and all you thought would be ...

making it that much worse to wake up each time knowing your a hostage being kept by a sadist.

--------------------
multiple chemical sensitvity group:
http://www.lymefriends.com/group/multiplechemicalsensitivities

Group for artists. All media welcome:
http://www.lymefriends.com/group/creativecorner


http://groups.yahoo.com/group/Lyme_Artist

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3greatkids
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Slipping on the roof and hanging onto the gutter with your fingernails.Clawing,cussing,praying and trying with ALL your might to get back up.
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Katcon
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Had to add another

Betrayal of your own body and mind.

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Andie333
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Having Lyme is like suddenly finding yourself unarmed and horribly wounded in a war you didn't start with a virtually invisible enemy that's cunning, malicious and trying to kill you.
Posts: 2549 | From never never land | Registered: May 2005  |  IP: Logged | Report this post to a Moderator
cordor
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Having Lyme is like having one of those dreams where you are running in the sand and not going anywhere. You run, run, run and yet you don't move an inch.

--------------------
Corinne

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hiker53
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Having Lyme is seeing what really matters in life. Hiker

--------------------
Hiker53

"God is light. In Him there is no
darkness." 1John 1:5

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perplexed
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Having Lyme Disease is like the take off and the landing on an airplane. One minute you are up and the next minute you are down.

Having Lyme Disease is like being a kid again when no one believed you.

Having Lyme Disease is like adding fuel to the fire with doctor appointments..ducks.

Hugs, Perplexed [bonk]

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redhedgurl
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having lyme disease is like being out in the cold, nose pressed to the glass watching other people having the fun inside........while someone keeps landing punches to your joints!

--------------------
the daughters of lions are lions too.

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hopeful123
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like having a cement block chained to your ankle! [Mad]

--------------------
some days you're the bug, some days you're the windshield  -

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bejoy
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Finding out I have lyme disease is like finding out that I am not a weak, sorry depressive with a low pain tollerance, but one a group of some of the most strong and courageous people in the world, to a degree that most other people will never begin to comprehend.

bejoy

--------------------
bejoy!

"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson

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Robin123
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Having Lyme for 25 years and not knowing it is like the lead character in Moliere's play, The Bourgeois Gentleman, who exclaimed he had no idea he'd been speaking prose his whole life.(regular discourse)
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livinlyme
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Is a rude awaking of what a reality check should not be!
Someone wake me when it is over....

here is another one I tell people I meet who are sick:
Lyme Disease is like your body is a hotel for parasites and all you want to do is evict the whole lot of them!

get out of my playground and find another one!

LindaD

[ 04. May 2007, 01:00 PM: Message edited by: livinlyme ]

--------------------
"Hatred paralyzes life; love releases it. Hatred confuses life; love harmonizes it. Hatred darkens life; love illuminates it."

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Lioness
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Having Lyme Disease is like a never ending nightmare, day & night... and having about as much control over it as you do your nightmares! [Frown]
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5dana8
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hiker53 posted 02 May, 2007 09:44 PM
-------------------------------------------------
"Having Lyme is seeing what really matters in life." Hiker

Lyme sure does have a way of whiddling it down.
Thanks Hiker53 [kiss]

--------------------
5dana8

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LisaS
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That was nice Bejoy [group hug]

--------------------
https://www.facebook.com/profile.php?id=1660435643

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clpgotlyme
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Having Lyme is like being run over by an invisible truck several times every day.When you heave your broken body up to start over, people ask you why you are acting so (pick one) tired, spacey,painful,tearful. [Embarrassed]
Cindy

--------------------
Cindy

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kam
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Finding out I have lyme disease is like finding out that I am not a weak, sorry depressive with a low pain tollerance, but one a group of some of the most strong and courageous people in the world, to a degree that most other people will never begin to comprehend.

bejoy

[hi] [Wink] [group hug]

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bettyg
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having lyme disease is endless RED TAPE; not green representing our lyme!

. keeping track of every dr. we see and getting copies of their medical dictation for each one;

. losing our jobs and applying for SSI and/or SSDI, disability insurance benefits, which took me 5 years of hell to get! [cussing]

. watching my lyme friends go bankrupt losing their homes and everything they own in order to go to LLMDs and take the proper lyme treatment to hopefully put them into REMISSION.

. eventually going on title 19, etc.

yes, chronic lyme has robbed me of my life 37 years ago, and I WILL NEVER KNOW WHAT TYPE OF PERSON I MIGHT HAVE TURNED OUT TO BE MINUS LYME SPIROCHETES INVADING MY ENTIRE BODY!

but i am happy that i am the FIGHTER i turned out to be that i refuse to be kicked over and over by the "systems", family, friends, etc! [Wink]

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Vanilla
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It is like a bad Fellini flick with over tones of One Flew Over the Cukoo's Nest. It never ends... Robin Williams plays the part of the 3 mean shrinks and 4 MDs that give you Prozac and tranqs.

They will not try to correctly diagnose you even when you keep telling them you had a bulls eye rash with horrible flu like symptoms and the first anxiety and panic attacks of your life but they do offer you stronger sleeping pills and ask you why you are not married like that has something to do with it.

Lets not forget the part of the Big Nurse that is played by the psycho homeopath/NP from hell dying to toss her control issues and wrath on her paying patients.

This movie is rated out and out scary!

[ 07. May 2007, 02:01 AM: Message edited by: Vanilla ]

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randibear
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Lyme disease is like being in a deteriorating body with your mind screaming on the inside, only nobody can hear you.

--------------------
do not look back when the only course is forward

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Bruceallan
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Having lyme is like being dead but still alive enought to feel all the pain and severe exhaustion, it is a living death.

--------------------
CFS for 20 Years then found LYME the root cause! Am dealing with several viruses also.

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kelmo
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Being the mother of a lyme daughter, I can only describe what I see as an observer.

Her body is a contaminated pitre dish...a combination of Alien and the Excorcist.

It's a robber of life, a raper, a violater.

If it could stand in front of me, I would spit on it, then kill it, and kill it, and kill it.

This is worse than cancer. There is hope with cancer. There is validation with cancer. Sympathy and support with cancer. Compassion with cancer. A time limit with cancer.

I don't wish cancer on anyone, but this is like being suspended by string and safety pins.

She wakes in the morning, to endure the day, and wish for sleep at night.

I HATE IT I HATE IT I HATE IT I HATE IT I HATE IT

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djf2005
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lyme sucks. thats the only way about it.
it sucks so bad. i am sorry for everyone's pain on
this thread. i too, wake to endure and wait for sleep.

--------------------
"Experience is not what happens to you; it is what you do with what happens to you."

[email protected]

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imanurse
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Having lyme disease is like.....

a metal sliver in your eye. You don't dare take a chance and blink.

--------------------
**Eat Chocolate**

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Skyler
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Having the life slowly drained out of you while being beaten with sticks and burned with embers. It is like feeling that you are dieing and just slow enough to make you hope it would just happen quick and be over with.

It is not bad enough to take away your ability to see the good in life, but bad enough to where you can not be apart of it.

--------------------
I'm probably sleeping...

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lyme lady
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Having lyme disease is like being a yoyo. 1 min. u r up, the next second u r down.

It's a war your body has to fight and a war u fight with the medical field.

It's a never ending battle for your life and health.

BUT, since I found lyme flash and chat, I met some of the best fighters in the world!

And I don't feel so alone in the world of lyme.

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kayru
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telling someone you have been abducted by aliens at night, experimented on and then put back to bed.....

why...well don't you get the same looks when you try to explain to to someone??

kathy

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LisaS
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up just because this post is interesting

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https://www.facebook.com/profile.php?id=1660435643

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AZURE WISH
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KAthy - [lol]

Its kinda true. People often have a hard time believing that I can be physically such a mess when

" but you look so good... and your thin and look much younger than you are and blah blah"

--------------------
multiple chemical sensitvity group:
http://www.lymefriends.com/group/multiplechemicalsensitivities

Group for artists. All media welcome:
http://www.lymefriends.com/group/creativecorner


http://groups.yahoo.com/group/Lyme_Artist

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Just Julie
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Having Lyme disease is realizing that you are not going to experience paradise here on earth. You thought you had. . . then find out that the paradise (open space parks here in Northern CA) you thought you'd finally found is making you sick. You go into "paradise" and get bit by a tick, which gives you this disease which means you can see paradise from your window, drive by it in your car, but can never get out and partake again. Not in this lifetime.

It made me wonder, and perhaps have great hope? that my paradise will really be in heaven. A place outdoors to hike, and roll around in the meadows full of wild flowers watching the cows munch on the tall grass with the red tailed hawks circling the blue blue sky above, KNOWING THAT THIS WILL NOT LEAVE ME WITH A DISEASE THAT CANNOT cannot, will not, be taken seriously, be treated by a doctor that will take my insurance, be acknowledged as a "real disease" by my family and friends, and be *cured*.

Lyme made me consider that God really did mean that heaven will be my paradise after all.

--------------------
Julie

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Texas TixanDar Dar
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Waking up, with yr hand's, and leg's, hand-cuff'ed to the bed post's,and having to watch every one else get to get out of bed.

And have a life of fun, and joy playing with the grand kid's,and getting to go fishing.

But, NO,Yr just hand-cuff'ed to the bed-post's, watching everyone else get to have a life.......!

It's bad enought to have most of yr part's, missing, or broaken, and then to be hand-cuffed to the Bed-Post's too...? [Razz]

[ 15. May 2007, 01:34 PM: Message edited by: Texas TixanDar Dar ]

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Vermont_Lymie
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quote:
Originally posted by bejoy:
Finding out I have lyme disease is like finding out that I am not a weak, sorry depressive with a low pain tollerance, but one a group of some of the most strong and courageous people in the world, to a degree that most other people will never begin to comprehend.

bejoy

EXACTLY!!!
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canbravelyme
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Having undiagnosed Lyme is like a bus going downhill uncontrollably, trying to steer with the wheels falling off...there always seems to be another wheel.

--------------------
For medical advice related to Lyme disease, please see an ILADS physician.

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Allison Smith
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Having Lyme is like you are trapped in your body. You're willing, your body just isn't ever able.

It's watching your kids grow up, but not being a part of it.

It's like already being in a coffin...alive, but not living.

It's wondering what life will be like in 10 years when you are already in so much pain now.

Posts: 94 | From Greenville, Tx | Registered: Apr 2007  |  IP: Logged | Report this post to a Moderator
egotlyme
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Having Lyme Disease is like a vampire not only sucking all your blood out, but all the breath and life as well. It's hell.
Posts: 10 | From san diego california | Registered: May 2007  |  IP: Logged | Report this post to a Moderator
locdog
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is like being lost at sea and instaed of sharks eating you its minnows and the driftwood you so desperatly cling to is coated in vaseline.
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Starphoenix
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What I often say when I wake up: It's like a bulldozer ran over me, backed up, and ran over me again. Or like someone beat me all over with a baseball bat in my sleep.

It's also like being a stroke patient:

"Uh...put it on the....uh...um...ya know...round thing...four legs...oh...TABLE!"

It's like having amnesia. It's so embarrassing when I'm at a register signing a receipt and I can't remember how to spell my last name.

It's like being punished, having to go to bed early in the summertime when you hear all the rest of the kids outside playing.

It's like being on trial for a crime you didn't commit.

It's when people don't trust you anymore because you don't look sick and they don't believe you could be too debilitated to go out at all when you were out, and even looking energetic, just yesterday.

On a positive note, it's helped me "be here now" more.

--------------------
Learning to love, and loving to learn.

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iceskater
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Having lyme disease is like a vicious enemy stealing everything you ever worked for, destroying every ounce of health and eyesight you have and never to escape the nightmare.
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5dana8
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up

cause it is feels good to say how you feel

"Having lyme disease is like being alone in a desert starving & thirsty and waiting for God to finally come & take you home."

--------------------
5dana8

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Parisa
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I found the thread!

I am going to print out these wonderful comments and post them on a board for everyone to see at the Lyme Walk in San Diego. These are very moving!

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Derek
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Having Lyme disease is like watching a home video of your family and not being able to join in.

--------------------
Dxed ALS 2/05
Dxed Lyme/Babs 9/05
2/08 Finially Improving

"It Can always be worse...."

Posts: 51 | From Victor, NY | Registered: Aug 2007  |  IP: Logged | Report this post to a Moderator
Lymetoo
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I'm so glad you found it, Parisa! These are really moving. Many expressed what my feeble brain would not allow!

--------------------
--Lymetutu--
Opinions, not medical advice!

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disturbedme
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quote:
Originally posted by CaliforniaLyme:
Waking up in a Kafka novel!!!!!!!!!!!!!!!

I LOVE IT!!!! Yes, the Metamorphosis! Now, I have the urge to go read the short story. :-) I love literature -- coming from an English BA graduate!

--------------------
One can never consent to creep when one feels an impulse to soar.
~ Helen Keller

My Lyme Story

Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007  |  IP: Logged | Report this post to a Moderator
disturbedme
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Just Julie - that was beautiful. I hope heaven is just like what you described!

--------------------
One can never consent to creep when one feels an impulse to soar.
~ Helen Keller

My Lyme Story

Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007  |  IP: Logged | Report this post to a Moderator
disturbedme
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Having Lyme Disease is like feeling what it must be like to be 120 years old -- frail, weak, can't do anything for yourself, including not being able to keep house or cook dinner, and then the next day feeling like you're a kid again -- with energy and feeling like you may be able to get things done.

It's a huge roller coaster ride.

When you wake up in the morning you never know if you'll be well that day or feeling like death. [dizzy] [shake]

--------------------
One can never consent to creep when one feels an impulse to soar.
~ Helen Keller

My Lyme Story

Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007  |  IP: Logged | Report this post to a Moderator
adamm
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hell--the inconeivable
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dmbfan
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like trying to prove a consipracy theory. Something is out to destroy me and I have to convince the rest of the world. But there is no "proof" and people think i'm crazy
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blazinglyme
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Lyme disease is like:

Leaving my old healthy body and normal fights in life

To a all out battle that I never knew was out there, than learn how to live my new life of pain and hell of fighting doctors that I was taught to trust and now can't.

Doctors that I spent my life working with and trusting. Now can't trust!

--------------------
don't give up the fight

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Parisa
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Just thought you would like to know that I made a display with three poster boards.
The first board saying: HAVING
The second board saying: LYME
The third saying: IS LIKE.....

I surrounded them with a collage of the quotes, each with its own colored background and font to set it apart. It made a very nice display. I took pictures and if I find a way to post them somewhere I will.

Posts: 984 | From San Diego | Registered: Nov 2006  |  IP: Logged | Report this post to a Moderator
   

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