posted
low dose naltrexone 3mg has definatly been helping me, while symptoms are still present, the Exhaustion is no longer crushing!!!!!
What it does is helps the immune system to work better, and it helps the body to produce endorfins that help to get a better quality of sleep.
For a detail disscussion and pharmacys that carry it in low dose 3mg and 4.5mg check this link out http://www.lowdosenaltrexone.org/
I also have some good info about lyme, on my website. bcclocks.com
-------------------- CFS for 20 Years then found LYME the root cause! Am dealing with several viruses also. Posts: 89 | From Alliance Ne | Registered: May 2006
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Monica
Frequent Contributor (1K+ posts)
Member # 224
posted
I have been taking LDN for a little over a month now and I haven't seen any change. How long have you been on it, if you don't mind me asking, and when did you start seeing a change?
Posts: 1757 | From Somerset County, NJ | Registered: Oct 2000
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quote:Originally posted by Monica: I have been taking LDN for a little over a month now and I haven't seen any change. How long have you been on it, if you don't mind me asking, and when did you start seeing a change?
When I started taking it I was waking feeling unrested and exhausted, only able to be up 2 or 3 hours a day and felt horrible from the exhaustion, was so severe I could not think straight.
Am also using Burbur to detox and Samento to kill bacteria.
I been on it 2 weeks, I felt a little rested after the first night of taking it, and each day feel a little better.
There are 2 kinds slow release and fast release, the slow release is worthless, so make sure you have the fast release formula.
Here is a quote from the above reffured to page
"Reports have been received from patients that their pharmacies have been supplying a slow-release form of naltrexone. Pharmacies should be instructed NOT to provide LDN in an "SR" or slow-release or timed-release form. Unless the low dose of naltrexone is in an unaltered form, which permits it to reach a prompt "spike" in the blood stream, its therapeutic effects may be inhibited."
Hope this helps, check with the pharmacy to see which kind they gave you, if needed there are some pharmacys that provide the fast release formula on the page above, I found that skps was the most reasonable at $15. per month.
Later Bruce
-------------------- CFS for 20 Years then found LYME the root cause! Am dealing with several viruses also. Posts: 89 | From Alliance Ne | Registered: May 2006
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
I havent tried this yet, but i got mine from Irmat pharmacy.
Im kind of afraid to try it, because i never know how my body is going to react. And i already take neurontin and zanaflex at bedtime.
$15 a month is pretty good, i think mine was 35.00
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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just don
Frequent Contributor (1K+ posts)
Member # 1129
posted
Just wanted to stop by and say "Hi Bruce!!"
I never get to see enough of you!!Online that is!!remaining--just don--
-------------------- just don Posts: 4548 | From Middle of midwest | Registered: May 2001
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quote:Originally posted by cantgiveupyet: I havent tried this yet, but i got mine from Irmat pharmacy.
Im kind of afraid to try it, because i never know how my body is going to react. And i already take neurontin and zanaflex at bedtime.
$15 a month is pretty good, i think mine was 35.00
This med was designed to help folks off of drugs and aclhole and was to be taken at a Much Higher dose (50mg to 150mg up to 3 times a day),
most pharmacys have 50mg as there smallest pill size, can be hard to get 3mg, this is such a small dose that it is very safe.
If you have it you might go ahead and try it, as k your doctor how far apart to take it from your other 2 meds, from what I have read you can take it anyware from 7 or 8pm to 3am.
Many who have tried this are getting some degree of relief, but as with all things what works for one may not work for everyone, but is sure is cheap enought to try, so I think all should try it.
Hi just don, I been in and out of the forum a couple times, posting updates on what I been doing for my bugs. Later Bruce
-------------------- CFS for 20 Years then found LYME the root cause! Am dealing with several viruses also. Posts: 89 | From Alliance Ne | Registered: May 2006
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posted
I definatly have been making slow and consistant progress since starting the Naltrexone!!!
Just thought I should let all know, Later Bruce
-------------------- CFS for 20 Years then found LYME the root cause! Am dealing with several viruses also. Posts: 89 | From Alliance Ne | Registered: May 2006
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
Thanks bruce, im glad to hear this is helping.
Keep us posted.
I still havent tried it yet....but it is waiting for me when i am ready.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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posted
Time for some negitive, I have had some very bad days while using the naltrexone, (has been hot here and the heat always hits me hard, this may be why the bad days) but even the bad days I can remember having dreamed the previous night,
Dreaming has been missing from my life the last 20 years, it is an indicator that you are getting deep sleep (stag 3 and 4) and rem sleep
which are vital to having a health immune system, as it is during these types of sleep that your body heals and makes repairs, much more so than when awake.
Most days have been better, am anxious to turn the clock ahead 3 or 4 months to see how I am then.
I also have been treating the lyme with samento and burbur, and on several vitamine and herbs to build up my immune system.
Later Bruce
-------------------- CFS for 20 Years then found LYME the root cause! Am dealing with several viruses also. Posts: 89 | From Alliance Ne | Registered: May 2006
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