Your post made me cry. You express yourself wonderfully.
I hate lyme but I thank god for the lessons about life this has taught me.
I am a much more caring and understanding person now.
I think everything happens for a reason. I wish I didn't have this..and that no one else did either..but it has taught me many life lessons and I believe it has made me a better person.
I am so happy for you that the LLMD agreed to treat your children.
Get some rest today, sounds like you had a really big day yesterday.
I am grateful that my daughter & sil are finally getting their 5 yr. old tested. I've believed for a long time that he has LD, but their PCP wouldn't give them a referal. Finally, they decided to go ahead with it themselves and found a pediatric LLMD. Apparently his symptoms have gotten worse. Mostly he has headaches, knee aches, RAGES, and now, cognitive issues.
Please pray for him ( and his parents)
-------------------- "Few of us can do great things, but all of us can do small things with great love". Mother Theresa
posted
I'm so glad you are able to help others through your receiving help.
It all comes full-circle, doesn't it?
Hugs to you and your family. You will get through this. Attitude is everything, and you have it!!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96238 | From Texas | Registered: Feb 2001
| IP: Logged |
kam
Honored Contributor (10K+ posts)
Member # 3410
posted
This is good news general geneal.
I kind of had the same strange thought...at least you had lyme so you were able to help your children.
And others.
So, glad you are getting the help too. What a relief.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
| IP: Logged |
5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Hey General,
That's a long list, and glad things are looking up for you
I know its hard to be grateful sometimes & look for the good but you are really good at it
Stay strong Dana
ps : I am thankful to still be alive
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
| IP: Logged |
You are a blessing to all of us here. Thanks for sharing.
I will keep your family in my prayers.
Your babies will get better, I know you will make sure of that.
May the Lord bless you, and keep you Geneal.
Posts: 175 | From Pa | Registered: Aug 2006
| IP: Logged |
Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Thank you all so much.
I tell people all the time of my friends on Lymenet....
I tell them I have the most wonderful friends all over the country.
Smart, funny, inspirational, spiritual, comforting....I could go on and on.
Thank you to Lymenet and all of my friends.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
| IP: Logged |
bejoy
Frequent Contributor (1K+ posts)
Member # 11129
posted
-------------------- bejoy!
"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson Posts: 1918 | From Alive and Well! | Registered: Feb 2007
| IP: Logged |
posted
Geneal, Excellent point--in the process now of getting
him tested. He's a "big boy" now, 20 yrs old,
but still my baby . I'm not too sure that my
aunt who died a few yrs ago from complications
of MS and RA (took too much steroids-resulted in vasulitis (sp?) ) didn't actually have LD.
I distinctly remember telling my (really ignorant) md that I felt exactly like she looked.
Well, maybe that is part of why I kept looking
for the correct dx. But thanks again for the
lovely thoughts and for your beautiful words.
Posts: 9 | From georgia | Registered: May 2007
| IP: Logged |
CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
Geneal, good news.
Very good news!!
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
| IP: Logged |
hopeful123
Frequent Contributor (1K+ posts)
Member # 3244
posted
hi geneal,
i totally can identify with you since my daughter now knows and has been treated for lyme because i know and have been treated for lyme.
it's very important to feel gratitude whenever you can and you just reminded me that i can feel grateful i have support on this board and elsewhere.
i thought i was having a relapse last week. now, i'm not so certain. i made an appointment with my doctor for september, which was the soonest i could see him.
yep. gratitude is a good thing!!
-------------------- some days you're the bug, some days you're the windshield Posts: 1160 | From NY | Registered: Oct 2002
| IP: Logged |
posted
I have hand-out info, and it scares me to death. I will get some of it on here.
One thing is you dont have to evan get bit by a tick, to get Lyme's.....!
Just being bit by a misquito, that just bit some one that has Lyme's, is all it take's.......!
And you now have Lyme's, and will neaver know how,or what you have, till it's found out later.
If 1,000 spirakett's only make 1" on the ruler, how many of them is on the "Skitter's" little needle when he stab's ya next.....?
It also said that if mom has Lyme's, and when she has the baby, that the baby will be free, of Lyme's, Unless she breast-feeds the baby. Then the baby will have it also.
And if one person has Lyme's in the family, within 3-5 years, everyone will get it,evan the pet's too.
The CDC is fianly being forced to let some of this info out,and it scares me to death, that there are so many people out thAre that have no-clue, as to what's happen'ed to them.
I will scan some of this info,copy&paste it on here, for ya's. I dont want to scare anyone, but knowing all this, is better than not knowing at all, and wondering. Tex Posts: 39 | From Branson Mo. | Registered: May 2007
| IP: Logged |
posted
Hi Geneal: I am grateful that when we have lyme, like you, we will be able to help others and prevent their suffering. It comes full circle.
As severe as my lyme has been, I am lucky and grateful to be alive. I echo the sentiments of my dear friend, 5 Dana 8. Life is precious. Hugs to you and your family.
Posts: 719 | From Delaware | Registered: Jan 2006
| IP: Logged |
Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Thank you all.
It's funny Dar that you mentioned mosquitos today.
We happen to be part of the mosquito abatement program in our area.
Caught the guys checking the mosquito traps, from where they collect and count mosquitos weekly.
Asked if what they sprayed killed ticks? No.
Does it kill biting flies? No.
Will it kill anything but mosquitos? No.
Great. So I mention that we are having a real problem with Lyme in our area,
And although we believe the tick to be the probable vector,
we are all very concerned re: mosquitos.
The poor guy was in shock. Uh.....um.....mosquitos don't carry lyme.
Really???!!!
I told him to check with his epidemiologist, but yeah, they do.
I also told him to be very careful out there.
He was practically running for his truck!
Good thing mosquitos don't carry 'em. Sheesh!
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
| IP: Logged |
Cobweb
Unregistered
posted
I'm grateful that I only have 4 more days of flagyl left.
I am extremely grateful that I learned here that I can dip my flagyl in olive oil and it goes down smooooooth.
I am grateful that I am doing infusions so that I have a good excuse to pop in a movie.
I am grateful my kids play softball on the same team so I can sit on the sidelines for two hours and breath fresh air.
I am grateful that I now have a good excuse to wear stretch jeans(to keep the ticks from crawling up my pants).
I am grateful that no one said "I told you so..." when I did two months of peripheral IV before getting a picc.
I am grateful that I am not allergic to the new dressing material.
I am grateful.(period)
I'm grateful I know which way to turn the pages in a book now since treatment began.
to be continued later-gotta run to the library for more movies, readings,etc , then go to this evening's softball game. Tough life
IP: Logged |
Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Dear Cobweb,
I am grateful to hear from you. I was getting a little worried
Since I haven't read any humorous quips from you lately.
I like stretch jeans too.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
| IP: Logged |
Cobweb
Unregistered
posted
Have to admit Geneal, flagyl wears me out. I don't feel that bad now, just sluggish as in "like a slug", too much effort to respond sometimes. I have been following your situation closely.
I save my energy for things like setting up my folding chair. My daughter C caught the high fly ball to center field this evening ensuring another win for the Blue Belles!
I thank God for friends here,too-and the opportunity to go to bed early! I don't even care who won American Idol !
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/