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» LymeNet Flash » Questions and Discussion » General Support » Just stopping by, still well one year later

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Author Topic: Just stopping by, still well one year later
mlkeen
Frequent Contributor (1K+ posts)
Member # 1260

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I've been gone after being well and getting a life. I had lyme and some co-infections from about 2000 and of course didn't have good treatment or complete co-infection testing for awhile.

The burning question is what did I do, unfortuately it isn't anything many of you haven't tried, leading us back to the question why do some get well and others not?

My effective treatment was 2+ years of tetracycline, 1500mg a day. This addressed lyme, bart, Rocky Mountain and Mycoplasma all of which I tested positive for thru Quest of all places.

Then we then did several cycles of diflucan followed by omnicef/ketex(just before the scare). My son showed immediate and ultimately complete improvement on this protocol and I was about 90% well.

Meanwhile I had greatly restricted my carb and wheat intake. My llmd had me do no carbs at all for 3 weeks to see how I felt. I felt great and haven't relapsed. My son just went blissfully along eating whatever, of course I fed him only what I could east, but he bought school lunch every day.

What we believe is that I'm gluten intolerant, my antibodies were normal, but I'd been very annemic for years and have had other deficencies as well. I have eaten wheat occationally this past year to test my reaction and about 4 days later the finger pain and inflammation return and then subsides over a week or so. This was one of my first sysmptoms, so maybe I had this before lyme or in any case the second problem further compromised my immune system. I don't know and can't know which I had first.

But my pressing questions always were how was being annemic related to having lyme and why do some people get well easily and others not.

It seems to me that you need a healthy immune system to heal. Too many assults and it functions poorly or shuts down. In addition to eliminating wheat, I have reduced chemical intake as much as possible. This means eating nothing artifical, no chorlinated/florinated water. I have a large organic garden that I have been eating out of for weeks. My diet is basic food, (but no wheat and very few carbs), with olive oil dizzled on to get enough calories.

The path to wellness will always be individualized. So, I can't say you would be gluten intolerant, but maybe some other food sensitivity, or maybe mercury fillings or some other agent that you come in contact with nearly every day.

I wish you all a healthier day tomorrow.

Mel

Posts: 1572 | From Pa | Registered: Jun 2001  |  IP: Logged | Report this post to a Moderator
AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804

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Glad to hear you are doing well.

Also great to hear that your soon has recovered.

Thank You for coming back to share your good news.

Best wishes [Smile]

--------------------
multiple chemical sensitvity group:
http://www.lymefriends.com/group/multiplechemicalsensitivities

Group for artists. All media welcome:
http://www.lymefriends.com/group/creativecorner


http://groups.yahoo.com/group/Lyme_Artist

Posts: 3860 | From nj,usa | Registered: Mar 2001  |  IP: Logged | Report this post to a Moderator
5dana8
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Way to go mlkeen!! [woohoo]

so happy to hear you & your son are doing better [spinning smile]

Thanks so much for stopping by & sharing your sucess story [Smile]

good luck in the future [Smile]

--------------------
5dana8

Posts: 4432 | From some where over the rainbow | Registered: Sep 2005  |  IP: Logged | Report this post to a Moderator
dmc
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wonderful & happy news. thanks for the update.
Posts: 2675 | From ct, usa | Registered: Jan 2004  |  IP: Logged | Report this post to a Moderator
bettyg
Unregistered


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MEL, WHOOPIE! 1 yr. anniversary of still being well & son!!

please copy your link to SUCCESS STORIES IN GENERAL AT TOP OF PAGE! we all need these to overcome many months/years of depression and giving up.

stop by again any time! [group hug] [kiss] [group hug]

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Meg
Honored Contributor (10K+ posts)
Member # 22

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Hey Milkeen,

Good to see you again, and good to hear how well you're doing!

I'm so happy that treatment has worked for you.

You hinted at anemia being a problem, how did you treat the anemia? Or did the diet contribute to its resolve?

--------------------
Success Stories---Treatment Guidelines

Posts: 10010 | From somewhERE OVER THE Rainbow | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
AZURE WISH
Frequent Contributor (1K+ posts)
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hi meg

I am going to assume that what mkleen was talking about in reference to the anemia and other deficencies

was that fact that she suspected gluten intolerance

Celiac disease can cause one to have problems absorbing certain things leaving a person affected by it with defecencies that may present with symptoms.

If a person with celiac disease stops eating the foods that cause the disease the intestines will start to heal and the person will start to absorb things like they should again.

This is just what I have read on the disease... I know there are quite a few people on the board who are gluten intolerant and I know that there have been posts about it in the past.

--------------------
multiple chemical sensitvity group:
http://www.lymefriends.com/group/multiplechemicalsensitivities

Group for artists. All media welcome:
http://www.lymefriends.com/group/creativecorner


http://groups.yahoo.com/group/Lyme_Artist

Posts: 3860 | From nj,usa | Registered: Mar 2001  |  IP: Logged | Report this post to a Moderator
Meg
Honored Contributor (10K+ posts)
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Thanks Azure [Smile]

--------------------
Success Stories---Treatment Guidelines

Posts: 10010 | From somewhERE OVER THE Rainbow | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

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Hey Mel! That's so awesome!! I found out a year ago that I am also gluten intolerant and have been for many years.

I'm feeling much better since eliminating that offensive food!!

So glad to hear that you are doing great!! and thanks for letting us know!! [woohoo]

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95968 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
hopeful123
Frequent Contributor (1K+ posts)
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mel,

i'm so happy for you i don't know what to say!! yippee!!!!!!!!!!!!!!
[kiss] [hi]

--------------------
some days you're the bug, some days you're the windshield  -

Posts: 1160 | From NY | Registered: Oct 2002  |  IP: Logged | Report this post to a Moderator
lymemomtooo
Frequent Contributor (1K+ posts)
Member # 5396

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Mel, keep up the success...And continue to stop by once in awhile..lymemomtooo
Posts: 2360 | From SE PA | Registered: Mar 2004  |  IP: Logged | Report this post to a Moderator
   

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