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» LymeNet Flash » Questions and Discussion » General Support » New member any feedback??

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Author Topic: New member any feedback??
Junior Member
Member # 13085

Icon 11 posted      Profile for Lynda     Send New Private Message       Edit/Delete Post   Reply With Quote 
I got bit prob sometime in June. Had a swollen rash in the groin
area, swollen lymph nodes and flu like symptoms. Went to the Doc on
June 22, he put me on Doxy for 14 days. I felt better. Lyme test came
back neg.
Started feeling crappy in July. went back to the doc Aug 6 with
arthritis type pain all over my body and could barely get out of bed.
Doc put me back on doxy for 14 days. Retested for lyme and she did a
sed rate. Lyme came back pos and sed rate was slightly elevated at 28.

Never really felt 100 % after bite. Now I have pain in my back, neck
and hips, tired all the time and a dull headache that never goes
away. [Frown] I feel like crap.
Went to the doc yesterday. Unbelievably he said he doesnt think its
the lyme!!! Gave me muscle relaxants and moore blood work... a sed
rate and a hla B27. They are not back yet. I feel like crap Ive been
in bed all day. I took the muscle relaxant (Tizanidine)just knocked
me out didnt help anything! Oh ya and he was nice enough to make an
appointment with a Rhumatologist in OCT!!! Im so frustrated but when
I call around to other docs they cant take me now either.


Posts: 8 | From Raynham Ma | Registered: Aug 2007  |  IP: Logged | Report this post to a Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
Skip the rheumie and the duck you just saw!! Go straight to an LLMD!!!

If that's not lyme, I'll eat my hat!!

Lyme Disease Symptoms List
1. Unexplained fevers, sweats, chills, or flushing
2. Unexplained weight change--loss or gain
3. Fatigue, tiredness, poor stamina
4. Unexplained hair loss
5. Swollen glands: list areas____
6. Sore throat
7. Testicular pain/pelvic pain
8. Unexplained menstrual irregularity
9. Unexplained milk production: breast pain
10.Irritable bladder or bladder dysfunction
11.Sexual dysfunction or loss of libido
12.Upset stomach
13.Change in bowel function-constipation, diarrhea
14.Chest pain or rib soreness
15.Shortness of breath, cough
16.Heart palpitations, pulse skips, heart block
17.Any history of a heart murmur or valve prolapse?
18.Joint pain or swelling: list joints_____________
19.Stiffness of the joints, neck, or back
20.Muscle pain or cramps
21.Twitching of the face or other muscles
23.Neck creeks and cracks, neck stiffness, neck pain
24.Tingling, numbness, burning or stabbing sensations, shooting pains
25.Facial paralysis (Bell's Palsy)
26.Eyes/Vision: double, blurry, increased floaters, light sensitivity
27.Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
28.lncreased motion sickness, vertigo, poor balance
29.Lightheadedness, wooziness
31.Confusion, difficulty in thinking
32.Diffculty with concentration, reading
33.Forgetfuiness, poor short term memory
34.Disorientation: getting lost, going to wrong places
35.Difficulty with speech or writing
36.Mood swings, irritability, depression
37.Disturbed sleep-too much, too little, early awakening
38.Exaggerated symptoms or worse hangover from alcohol

Opinions, not medical advice!

Posts: 95877 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
Member # 11141

Icon 1 posted      Profile for sixgoofykids   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Yes, skip these doctors and go to an LLMD.


Posts: 13449 | From Ohio | Registered: Feb 2007  |  IP: Logged | Report this post to a Moderator
LymeNet Contributor
Member # 11730

Icon 1 posted      Profile for elle108     Send New Private Message       Edit/Delete Post   Reply With Quote 
The doctors you are going to are, in all liklihood, going to assume that the 2 weeks of doxy you had would eliminate any question of Lyme. Chances are, they wouldn't even retest you.

I wouldn't even bother with the rheumatologist. Get an appt with a LLMD and get properly evalated for Lyme. It sure sounds like you have it and most mainstream docs have no real training in diagnosing or treating it.

Posts: 217 | From New Jersey | Registered: Apr 2007  |  IP: Logged | Report this post to a Moderator

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