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» LymeNet Flash » Questions and Discussion » General Support » How do you start a support group?

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Author Topic: How do you start a support group?
merrygirl
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I want to start a local support group in my area. The closest locations are over an hour away. I live in a heavy tick area (we have the second most reports of Lyme in our county)

The thing is that I am relatively new to Lyme disease. Is this going to pose a problem?

I just thought even if a few Lymies got together to discuss what everyone is going through etc.

Any advice appreciated. Melissa

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CaliforniaLyme
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You just need 2 people to have a meeting!!!

If you have one, THEY WILL COME*)!!!!!!!!!!!!!!!

Local libraries rent out rooms or donate them for free- so do churches-

and you can put up flyers or get local radio stations to announce you!!!!!!!!!!

Yay*)!*)!! One more support group*)!*)!!
We need every one*)!!!!!!!! & Everyone*)!*)!!!!!

Take care-

--------------------
There is no wealth but life.
-John Ruskin

All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer

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merrygirl
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Thanks! I will start calling around.

Melissa

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tanzi2u
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merrygirl, check your PM's.
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merrygirl
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up
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tanzi2u
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Merrygirl and I have been in contact, small world actually.

So the question is what works, what doesn't...what is the best way to avoid the pitfalls...and what are the common ones anyway?

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lymednva
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I am also interested in this thread.

Lymeout and I are working on starting a group at our church. Their first inclination is to lump us with the autoimmune support group. We did our best to explain why we don't belong there!

There are quite a few members at our church who have Lyme, in varying stages.

--------------------
Lymednva

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merrygirl
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up for more help please

[hi]

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CaliforniaLyme
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Diva, you could explain that maybe
some of those people belong with *you**)!*)!!

--------------------
There is no wealth but life.
-John Ruskin

All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer

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imanurse
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I would be willing to share the information I compiled. I posed this question here longer ago and got little response, so I wrote up my own info using resources I found.

I have -
Guide to Starting a LD support group
Tips for Running a Support Group (includes pitfalls)
Support Group Membership Rules

Just send me a pm. I like to share.

--------------------
**Eat Chocolate**

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merrygirl
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Thanks imanurse! PM sent!

melissa

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pineapple
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" A leader is one who knows the way, goes the way and shows the way." ~ John C. Maxwell

"The first task of a leader is to keep hope alive." ~ Joe Batten

"Leadership is action, not position." ~ Donald H. McGannon

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=3;t=018290

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jimmystermite
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Good for you, merrygirl... I have been "toying", actually more than toying, with the very same idea myself...
There is nothing around where I live either, but I am just not sure how to go about starting it...
I have not yet even been diagnosed with Lyme, only Fibromyalgia, so I have been very hesitant..
Hope it works out well for you...

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LaurenTurner
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I almost posted about this same topic the other day. I am interested in started a group too. There are no support groups in my area. I think the closest one is in Austin- which is like 8 hours from me. My local doc told me that he is treating over 60 patients with Lyme Disease. So there has to be a lot in my area. EVen though according to the CDC there are no incidences of Lyme Disease in my area. [Roll Eyes]
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merrygirl
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Well I did it. It is official. I started the support group with the help of another Lymenetter! If you guys are thinking about it it DO IT it was relatively easy. I am glad I did.

If you have any q's about what I did PM me and I will share! Good Luck! Melissa

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AP
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I started one last October via meetup.com. Though I just handed it over because I am moving, we grew pretty darn fast.

--------------------
Sometimes when I say Oh, Im fine I want someone to look me in the eyes & say tell the truth

Myspace: http://tinyurl.com/5p64ed

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pmerv
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IMA, maybe your articles would be good for the Lyme Times! Care to share?
[email protected]

--------------------
Phyllis Mervine
LymeDisease.org

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Tracy9
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www.vistaprint.com

YOu can get things made cheap; I made hundreds of large postcards for my support group but ive never gotten it off the ground. I will though; just need to feel well enough to circulate them.

--------------------
NO PM; CONTACT: [email protected]

13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG.

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imanurse
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Hi all,

Congrats Merrygirl on the success of your first support meeting!

Those of you that sent me a PM or those that are interested in some info, please send me your email address so I can send you the files.

Sorry I neglected to check back in with this thread in a more timely manner.

--------------------
**Eat Chocolate**

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imanurse
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quote:
Originally posted by LaurenTurner:
I almost posted about this same topic the other day. I am interested in started a group too. There are no support groups in my area. I think the closest one is in Austin- which is like 8 hours from me. My local doc told me that he is treating over 60 patients with Lyme Disease. So there has to be a lot in my area. EVen though according to the CDC there are no incidences of Lyme Disease in my area. [Roll Eyes]

Hi Lauren-

Have you contacted your state association and told them you are interested in starting a group in your area? They would probably be a great resource and help with announcing your group.

Send your email address to me by PM if you want some info.

--------------------
**Eat Chocolate**

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pmerv
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IMA my email is pmerv at hughes dot net
thanks

--------------------
Phyllis Mervine
LymeDisease.org

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