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» LymeNet Flash » Questions and Discussion » General Support » Lost my vision in left eye

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Author Topic: Lost my vision in left eye
iceskater
LymeNet Contributor
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After three years of battling lyme and deteriorating eyesight, I woke up two weeks ago to discover I am now completely blind in my left eye. Have been working int the past with Dr S., lyme neuro opthamologist ,and local eye groups to no avail. Was wondering if anyone else has or knows someone who has lost their sight to lyme and coinfections, or have had some degrees of visual impairment. Thanks.
Posts: 719 | From Delaware | Registered: Jan 2006  |  IP: Logged | Report this post to a Moderator
Tincup
Honored Contributor (10K+ posts)
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I have Lyme eye/brain problems also. I have also known people who have lost their vision and regained it. Sooooooo..

You said you had worked with others in the past.. but not recently. Soooooooo..

Get to Dr. S IMMEDIATELY!!!!

PLEASE! PLEASE! PLEASE!!!

If I can do anything to help, just let me know.

You are not alone with this situation.

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
iceskater
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All tx modalities that Dr S recommended have failed and there is damage to both optic nerves. I was just wonderinmg if anyone else have had these problems. Thanks for the advice, Tincup.
Posts: 719 | From Delaware | Registered: Jan 2006  |  IP: Logged | Report this post to a Moderator
just don
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Sorry to hear of your circumstance skater,,,

Have you tried,,,OR are you taking Ocuvite AND lutien??

I heard they can help with sight probs, going to try it myself soon as I get to the store!!!

KEEP treating the disease underneath and hope!!

I forget ,,,do you have bart also??still--just don--

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just don

Posts: 4548 | From Middle of midwest | Registered: May 2001  |  IP: Logged | Report this post to a Moderator
bettyg
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skater, I'm so sorry to read of your latest eye loss news!

this thing hit you so hard, and you've been everywhere I know.

yes, other folks on here have commented a lot lately about their starting to lose eyesight.

glad tincup replied since she's lost majority of her sight as well.

up so others who are effected can share info with skater, my very DEAR friend! [group hug] [kiss]

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tdtid
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iceskater,

I'm so very sorry to hear you are going through this. I actually have lost vision in both eyes but it's always come back in a day or two.

As others have said, I would definitely call your LLMD. My LLMD felt it could have even been a side effect to one of the meds I was on at the time, but I still had it happen afterwards, so after my horrid horrid panic of the first time and wondering if I'd ever see again, I have found in MY case, it was part of a horrid herx.

Eye sight is so valuable, so I hope it's just been a herx for you as well, but I would get in to see your doctor asap, no matter what.

Good luck and keep us posted.

Cathy

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"To Dream The Impossible Dream" Man of La Mancha

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Andie333
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Skater...oh, Skater, I was so sorry to hear this!!
Just know you're in my thoughts, and hopefully, there will be something you can do to reverse or at least help this.

You take care, Skater...

Andie

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Draba
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Ohhh no!!! I'm so sorry to hear about your eyesight. I hope you get it figured out, and that it is fixable.

Your Lyme buddy,

Draba

--------------------
Really tired of being sick. Wanting to go to college and have a life. Really happy that I have a puppy.

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Tincup
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I had damage to both optic nerves.. very noticable on tests. I was given.. FINALLY.. IV Rocephin.. and they improved. That was also VERY noticable on the tests.

They are now not perfect.. but it stopped more damage and reversed some of it.

Are you treating the infections adequately?

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

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Cobweb
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My eyes were really bothering me before 8 months of IV Rocephen.

Now I am just at high risk for macular degeneration-so I still wear my sunglasses all the time-as advised do eye drops for blepharitis, and keep track of the flashes-which signal problems with the retina.

But I am sorry to hear about the damage to your optic nerve-that's a bit more advanced I'd say.
Sucks royally.Crap.

What does your eye doctor say?

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Lymetoo
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I'm really sorry to hear this, skater! I hope you can find a treatment that will prevent further damage.

Have they checked you for fluid on the brain? I know Lyme can cause that and it can cause damage to the optic nerve.

[group hug] skater [group hug]

--------------------
--Lymetutu--
Opinions, not medical advice!

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tdtid
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Are you still out there, Skater? Please give us an update when you are able.

Cathy

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"To Dream The Impossible Dream" Man of La Mancha

Posts: 2638 | From New Hampshire | Registered: Oct 2006  |  IP: Logged | Report this post to a Moderator
LymeMECFSMCS
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My eyesight has suddenly started deteriorating in my right eye and I'm scared. I just contacted my LLMD and am awaiting a response, and I started doing the Stephania eyewash recommended in Healing Lyme.

I was reading that in syphillis, sudden vision loss can happen due to a herx and can be very serious (it sounded irreversible). On the flip side, Lyme itself can cause vision loss and that seems to be treatable with antibiotics, according to the studies I read.

I am so sorry you're dealing with this.

Posts: 927 | From Massachusetts | Registered: Oct 2007  |  IP: Logged | Report this post to a Moderator
   

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