13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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valymemom
Frequent Contributor (1K+ posts)
Member # 7076
posted
Pam
Everyone from Natcap on Sunday whom I have spoken to can not thank you enough for your six years of investigation.
You peel back the layers of the tick borne diseases health crisis so beautifully. The mysteries unravel page by page and you have achieved a remarkable study to propel the demand for more research and conversation.
I encourage anyone who can make the drive to go hear Pam and buy her book for family and friends.
You are getting wonderful reviews, Pam; the last one I read was from a Yale professional (I forget name and title)
What an accomplishment!!!!
Posts: 1240 | From Centreville,VA | Registered: Mar 2005
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CONGRATS!!!! I have been posting about the unveiling of your book on lymezone.org.( I am the same name over there too)...
I just want to personally thank you for your advocacy and your voice, as you represent all of us. I can't wait to read your book.
I wish you much success with this endeavor, as I am tired of the "Lies and more lies" that are told regarding our horrible disease. If there is ever anything I can do to help you, please let me know.
DIE LYME DIE!!!!! Liesandmorelies
-------------------- aka: Lyme Warrior
In order to do "real" science, you have to have a "real" conversation with nature.
Well Behaved Women Rarely Make History!
"Just Demand your Rights" Posts: 869 | From nor - cal | Registered: Apr 2008
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posted
How I wish I could be there. I'm glad I got to meet you at Nat Cap. I knew from the chapter I read online that I would like the book; but I had no idea how deeply it would impact me. I haven't finished yet, but as I read, I am finding such validation - the doubts piled upon us by skeptical doctors and family members, the agonizing decision to "walk on the wild side", wondering if we were hastening our daughter's demise. You have set my mind at ease for all those decisions and have given me courage to squarely face the doubting doctors and family members and say, "Here, read this! And then we'll talk!"
I bought 5 copies: three to circulate, one for my daughter and one for me to read over and over, until I absorb it all!
Please keep us posted on your future events. May God richly bless you, Pam!
Cindy
Posts: 422 | From Herndon, Virginia | Registered: Oct 2005
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
I was saddened that I couldn't make it when you were in NY & I'm not going to be able to make this one either.
Any chance you may be coming to NJ?
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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lymednva
Frequent Contributor (1K+ posts)
Member # 9098
posted
There is a list of upcoming book signings and speaking engagements on the site she mentioned.
I think it will probably be updated as she adds to her list, so keep looking back if you don't see one near you yet.
-------------------- Lymednva Posts: 2407 | From over the river and through the woods | Registered: Apr 2006
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
Thanks Lymednva
Drats! I missed NJ, it was the first one. There is one that I wonder if I could make it to:
Thursday, June 19, 6:30 p.m. - Launch Event Co-sponsored by St. Martin's Press and Columbia University at the Arader Gallery in New York, Special Panel on Contested Diseases; click here for more information.
I'm wondering if that one is open to the general public. ???
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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posted
Ali --The Columbia event is closed to the public because it is largely for the media. In some other venues ie in Framingham we intentionally did NOT invite the media but only the community. The bookstore and library events are for the public. I hope to be adding a few more events, to take place during the summer, including one in Dutchess County. I will keep you posted. Pam
posted
Argh....we were too ill to travel to Framingham today. We are very disappointed, and wanted to go so badly.
I flew in from my daughter's graduation in Oregon late last night and my wife has been herxing for over a week, so we missed this event which we had been looking forward to.
We did pre order the book on Amazon several months ago, guess we will have to wait for that; unless we can make it to another book signing event.
It sounds like today's event however would have been the perfect setting to have been at, dang it.
-------------------- Positive 10 bands WB IGG & IGM + Babesia + Bartonolla and NOW RMSF 3/5/09 all at Quest
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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shazdancer
Frequent Contributor (1K+ posts)
Member # 1436
posted
Pam,
Just received my copy in the mail, and have only had time to go over the index and read a few passages. (It's the librarian in me, looking at the index, lol.)
I have 2 words:
THANK YOU.
Posts: 1558 | From the Berkshires | Registered: Jul 2001
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Hurray! I was able to read Chapter One on Line.
Sent an email off to local public library asking them to consider ordering it along with web site url.
Giving my brain a rest and then will go back to read more that is on line...the intro, etc.
It may be a month or two before I can do that due to limited reading skills.
I have the need to find out how your son is doing if at all possible.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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shazdancer
Frequent Contributor (1K+ posts)
Member # 1436
posted
When you go to recommend this to your local library, be sure to tell them the book was recommended by Library Journal, which is the journal of the American Library Association. Their recommendation carries a lot of weight in the library field.
-- Shaz
Posts: 1558 | From the Berkshires | Registered: Jul 2001
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posted
Thank you all for an interest in my book, CURE UNKNOWN. I want to clear up the questions about distribution.
The book is now in bookstores across the US, from NY to CA to Maryland: At Borders, Barnes and Noble, Walden, etc. They are also available online at Amazon. Hopefully it will be in many libraries.
As to sale and donations --those monies are donated by the sellers themselves. If someone has signed on as an official book seller with my publisher, St. Martin's Press, they may contribute their entire profit (up to 50% of the cover price) to anyone they want, but the next such fundraiser I am aware of will not be until July 12 in Ridgefield, CT. The monies collected there will be donated by the seller toward studying ticks in Connecticut, a very worthy and important job.
Again, meanwhile the book is available in most bookstores --so you can just pick it up.
You can see my upcoming tour stops here, including events next week in Stony Brook on Long Island and in Stamford, CT. Pam Weintraub
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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posted
Pam, I think you said that you feel that the researcher in comparative medicine - SB -is one to watch for possible breakthroughs. Do you feel that he is independent of this group who are controlling everything? I ask because I just saw his name listed as an advisor to the ALDF. If you go to their website and click on the "Learn More ABout Chronic Lyme", the only thing it links to is the Forbes article that was such a hatchet job on lyme patients and literate doctors. I can't imagine any self-respecting person associating with a group who would debase their own professionalism with such tacky and immature behavior! He probably isn't even aware of it; but I would like to think that if he were, he would disassociate himself from them!
I apologize for bringing this up on this important thread. Is there a more appropriate place to discuss things like this?
By the way, one person reported that she got the last copy available from her neighborhood bookstore. I'm guessing sales are brisk! This book can open some really important doors as far as public awareness and changing the opinions of practicing physicians if they take the time to read it!
Posts: 422 | From Herndon, Virginia | Registered: Oct 2005
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posted
Tracy --I think 20-25 books can qualify someone as a seller. Send a message and I will put you in touch with the publisher if you want.
re: Dr. Barthold, I feel he has a deep understanding of the Borrelia organism and that he has pursued his vision --even if quietly-- with integrity and an embrace of nuance and complexity. He is a basic researcher who does not care to get involved with the Lyme fight or the patient advocacy. If he were not independent he would not have published this work. I understand that he ALSO is adviser to the patient-founded and run NRFTD. He might provide balance to the ALDF.
valymemom
Frequent Contributor (1K+ posts)
Member # 7076
posted
Pam
Did you see your book and Andy's movie are both mentioned with a short description in the Washington Post Health section?
Posts: 1240 | From Centreville,VA | Registered: Mar 2005
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