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» LymeNet Flash » Questions and Discussion » General Support » Lyme sucks

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Author Topic: Lyme sucks
imanurse
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That's pretty much all I have to say.

This freakin' sucks.

--------------------
**Eat Chocolate**

Posts: 942 | From USA | Registered: Mar 2005  |  IP: Logged | Report this post to a Moderator
wantabe
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Right there with you!!!

--------------------
Lyme+ dx Dec.07
Currently: Levaquin,Cefdinir,Plaquinil,Fluconazole
Nystatin,B12 meth, nortriptyline
Ambien,Clonazepam,many supplements
Dairy, sugar, gluten free diet
infrared sauna and exercise

Posts: 235 | From Iowa | Registered: Feb 2008  |  IP: Logged | Report this post to a Moderator
sixgoofykids
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Me, too.

--------------------
sixgoofykids.blogspot.com

Posts: 13449 | From Ohio | Registered: Feb 2007  |  IP: Logged | Report this post to a Moderator
feelfit
Frequent Contributor (1K+ posts)
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BIG TIME SUCKS!!!!

feelfit [Mad]

Posts: 3975 | From usa | Registered: Aug 2007  |  IP: Logged | Report this post to a Moderator
joalo
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I agree...

--------------------
Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006.

Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007  |  IP: Logged | Report this post to a Moderator
heiwalove
Frequent Contributor (1K+ posts)
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amen. it DOES suck. big time. you're not alone.

--------------------
http://www.myspace.com/violinexplosion

Posts: 1848 | From seattle, wa | Registered: Nov 2004  |  IP: Logged | Report this post to a Moderator
CapriceMom
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definitely want to add my support to that declaration... lyme sucks big time!
Posts: 49 | From Florida | Registered: Dec 2003  |  IP: Logged | Report this post to a Moderator
steelbone
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Flat out awful!!!!!!!!!!!!!!

--------------------
All The Best,
Paul
[email protected]

The harder you work the luckier you get!

Posts: 964 | From Nebraska Cornhuskers fan in Massachusetts | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
BOEJR
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I agree, However,,,

The public perseption of lyme is what really truely stinks!!

Most people think they can be cured with the current guidelines and that really sucks.

Julia

--------------------
Please consult your LLMD before making any changes to your treatment regimen.

Posts: 641 | From NJ, USA | Registered: Oct 2001  |  IP: Logged | Report this post to a Moderator
Vermont_Lymie
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I know, this sucks bigtime!
Posts: 2557 | From home | Registered: Aug 2006  |  IP: Logged | Report this post to a Moderator
wiserforit
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Yes, suckorama!

Here's a song that I just heard on the radio. Just imagine the guy as Lyme...and the Way the World Goes 'Round as our roller-coaster Lyme ride/existance!

That's the Way that the World Goes 'Round
John Prine
I know a guy that's got a lot to lose.
He's a pretty nice fellow but he's kind of confused.
He's got muscles in his head that ain't never been used.
Thinks he own half of this town.
Starts drinking heavy, gets a big red nose.
Beats his old lady with a rubber hose,
then he takes her out to dinner and buys her new clothes.
That's the way that the world goes 'round.
That's the way that the world goes 'round.
You're up one day and the next you're down.
It's half an inch of water and you think you're gonna drown.
That's the way that the world goes 'round.
I was sitting in the bathtub counting my toes,
when the radiator broke, water all froze.
I got stuck in the ice without my clothes, naked as the eyes of a clown.
I was crying ice cubes hoping I'd croak,
when the sun come through the window, the ice all broke
I stood up and laughed thought it was a joke
That's the way that the world goes 'round.

Hugs,

wiserforit

Posts: 508 | From Banks of the Hudson | Registered: Jul 2006  |  IP: Logged | Report this post to a Moderator
ThatColorGreen
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I feel the need to also claim LYME Sucks! [Frown]
Blah...
and it's made me question my sanity many a time...

God bless you guys!!

~Green
[group hug]

--------------------
...trying to be the coffee bean, not the egg.

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Robin123
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I agree. Sounds like we need a green popsicle, labeled Lyme Sucks.
Posts: 13013 | From San Francisco | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
MysteryGirl44
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Amen

--------------------
"Life doesn't have to be perfect to be wonderful."

www.myspace.com/lymediseaseawareness

Posts: 514 | From New Jersey | Registered: Sep 2006  |  IP: Logged | Report this post to a Moderator
imanurse
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Member # 7022

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thanks all for validating that i'm not the only one struggling. i have been relapsing, need to go the llmd, not going to happen soon.

the day i wrote this post i fell down the stairs eneded up in the hospital ER. went into shock, bruised the tailbone, ripped my shoulder, broke my finger, etc. My giant rear turned into a giant hematoma of the most colorful i have ever seen. then got an embolism from the traveling clot.

shoulder still hurts and its getting to where i can't raise arm so i am sure i ripped something and need to go to the duck. er duck only xrayed viibly purple finger and tailbone, not shoulder, so i don't know what is going on there.


oh did i mention my daughter got reinfected this summer with another tick on her head? local duck gave her a couple wks doxy is all and she needs more but we took what wse could get at the time. i am out or i would have given her some of mine.

and this week my son was home sick (also has lyme) and the principal wants to have a meeting to update the plan for my daughter. i had to miss it because i was giving son breathing neb treatments every 4 hrs and couldn't leave him home with husband scared of a wheezer.

i really really need to go see someone. i wish they made housecalls, ykwim?

calgon take me away. ohthis burning shoulder go away!! i do not want to have surgery!

Blah blah blah thanks for letting em vent

ima whiner

--------------------
**Eat Chocolate**

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Robin123
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You're not a whiner - you're having a hard time! ouch. I hope you can get the medical care you need soon.
Posts: 13013 | From San Francisco | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
Carol in PA
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ima,
I'm so sorry that you're going though such crap.

Carol

[ 08. September 2008, 03:21 AM: Message edited by: Carol in PA ]

Posts: 6938 | From Lancaster, PA | Registered: Feb 2004  |  IP: Logged | Report this post to a Moderator
Tracy9
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Oh Ima, we need to compare hematoma photos. I feel down the stairs a year ago and think MINE was the worst ever

Game on????

[lick]

--------------------
NO PM; CONTACT: [email protected]

13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG.

Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005  |  IP: Logged | Report this post to a Moderator
IMHisda
LymeNet Contributor
Member # 6998

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Hi

I'm having a momenmentrary lapse of sleeep but I just thought I'd share with my friends out there that the book 90 minutes in heaven might be an encouragement- boy and I thought I was in pain. This guy was actually dead from a semi rolling over his car for 90 minutes before he came back to all that pain. Hope it inspires you like it has me. It's really a breath of fresh air when you feel like you are in just too much pain!

Then I saw McCain unable to move his arms hardly at all after being a POW with two broken arms and a brokien leg and no one to help him.

Wow, It's good to know we'll get through it eventually.

--------------------
RV

Posts: 249 | From Healing in USA | Registered: Mar 2005  |  IP: Logged | Report this post to a Moderator
imanurse
LymeNet Contributor
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Just wanted to update this post:

Received confirmation Friday I did tear the rotator cuff and I have a AC separation. [Frown]

And yes, I have real pain.

--------------------
**Eat Chocolate**

Posts: 942 | From USA | Registered: Mar 2005  |  IP: Logged | Report this post to a Moderator
   

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