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» LymeNet Flash » Questions and Discussion » General Support » Want to Return to my Old Life. Getting Antsy

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Author Topic: Want to Return to my Old Life. Getting Antsy
Suffah
Junior Member
Member # 16461

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I realize that many people have had this disease for much longer but I am wondering if anyone has been able to return to their old life after a few months. I fainted in June and could not stand up again for 2 weeks without passing out. I had gone to the ER 2 times in those 2 weeks because I was convinced I was having a heart attack. After the initial 2 weeks I was extremely dizzy and light headed 24-7. I basically had everything checked out (heart, lungs, MRI) and then I found out I had lyme. My PCP treated me on 200mg of doxy for 2 months (I had to beg for the 2nd prescription) and then I went to my LLMD in August. I was extremely dizzy and light headed 24-7 from June until September. I am only on my second month of being under an LLMD's care but my constant dizziness has turned into dizzy spells lasting only a few seconds (as opposed to being all day long), and I have developed air hunger. I guess what I am wondering is if I can start returning to the things that made me happy. I play roller derby which is an intense full contact sport. I wanted to start getting back into it slowly to see how I do with the exercise. If I do this, will I push myself back a few steps? Is there an issue of pushing yourself too much-to the point of the major symptoms returning? I live in constant fear that the dizziness I experienced for 3+ months will return if I do anything different than my normal boring daily routine.

Has anyone had experience with feeling great and then pushing themselves back into bed?

Thanks
Sk

Posts: 9 | From NY | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
kylasrain
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Oh Suffah,

I am so sorry to hear about what has happened to you! I've been to a few Rollerderby games in Santa Cruz, Ca and those girls are craaazzy! How fun!

You might be able to get back to life, but it will be with some modifications. Too much 'forward' will definitely knock ur butt back. For me, sometimes its worth the pain to pretend to feel normal, but I pay for it for days.

Although I'm not dizzy, just in pain.

Hang tough and take it one day at a time. Listen to your body, it'll tell you what to do.

KR

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http://kylahikeson.blogspot.com

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Geneal
Frequent Contributor (5K+ posts)
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Hi.

Have you ever been checked for Postural Orthostatic Tachycardia (POTs)

Or Neurally Mediated Hypotension(NMH)?

Our autonomic nervous system can be affected by Lyme and can cause this.

As far as pushing yourself too hard too soon.

You really need to take little steps and see how you do.

If you over do it, trust me, you will pay for it for a few days.

I am able to do more today than I used to.

Of course, it depends on the day...the treatment...the stress, etc.

Hang in there. It does and will get better.

Try a few things...but go slowly.

Maybe find a cardiologist who does tilt table testing in your area.

That is how POTs and/or NMH is diagnosed.

There are medicines that help with that and may give you more of your former life back.

Hugs,

Geneal

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Lymetoo
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Yes, check into NMH and POTS... also you could have babesia, a coinfection of lyme.

The dizziness and air hunger are two of the symptoms. You need different meds for babesia.

According to the famous Dr B, the two main reasons people have treatment failure is

1. alcohol
2. lack of adequate rest

So go easy!! [Smile]

--------------------
--Lymetutu--
Opinions, not medical advice!

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Suffah
Junior Member
Member # 16461

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thank you all for your help!

I have not been tested for POTS or NMH. I have been with a LLMD since August 28 and have improved greatly. He is treating me for Babs as well with Mepron and Doxy (im allergic to almost every other abx)....so hopefully this will help.

thanks again and tonight I am going to my first Roller Derby practice since June....though I will be assisting newbies and not doing too much.

Posts: 9 | From NY | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
   

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