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» LymeNet Flash » Questions and Discussion » General Support » When did you finally realise something was drastically wrong?

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Author Topic: When did you finally realise something was drastically wrong?
Liz D
LymeNet Contributor
Member # 16739

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For me it was after 20 odd years of strange scarey symptoms. On a flight, a normal flight, and suddently they turned the oxygen off -or so I thought. I looked around the cabin and everyone was behaving normally but I was waiting for them to fall down and pass out - and nothing happened. It was beyond frightening and now of course know its what we know as 'air hunger'. I really knew then something was terribly wrong.
Liz D.

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adamm
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Two weeks after my bite, when I started forgetting what I had
been doing half an hour ago and got a headache that just would
not go.

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bettyg
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going to 40 - 50 drs. who never diagnosed me correctly and believing every one of them; WHY WASN'T I GETTING BETTER?!? [toilet] [cussing] [puke] [tsk]
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MariaA
Frequent Contributor (1K+ posts)
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realizing that I'd taken a whole bottle of ibuprofen in just one month and that this shouldn't have been happening due to 'aging' at 28. It helped that I did recall a tick bite and the 'flu'

--------------------
Symptom Free!!! Thank you all!!!!

Find me at Lymefriends, I post under the same name.
diet: http://lymefriends.ning.com/group/healthylowcarbrecipes
Homemade Probiotics thread
Herbal Links Thread

Posts: 2552 | From San Francisco | Registered: Apr 2006  |  IP: Logged | Report this post to a Moderator
Peedie
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My legs ached so badly for a week - then one morning I awoke to unbearable pain, and my legs were weak and trembling. I was afraid I would lose the ability to stand - or walk.
There have been many days since I am amazed I can stand and walk. Some days not so bad.
And I'm very grateful that I can. After 5 months of treatment - I'm getting better - yay!

-p

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randibear
Honored Contributor (10K+ posts)
Member # 11290

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after the bite, getting severe headache and tinnitus...night sweats and then putting it all together that maybe i've had it a loooong time.

also my feet would turn blue and red at work like my hands....

and the hot neck, and the facial twitching.....

finally i got on the internet because no doctor would help me....

VIOLA.....lyme

--------------------
do not look back when the only course is forward

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kpoindexter
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Only after 13 years of going to the doctor for inflamation in just about every part of my body and being told to take naproxin and go away.

During year 14, my body has just given up and I guess stopped fighting it. I've progressed over the past year

Daily Migraines

Extremely high BP

Shortness of Breath

Heart Problems

Adult onset Asthma

Numbness in every part of body at one point or another

Extreme joint pain

Short term memory loss

Complete neuropathy

Only after a good friend told me that my symptoms sounded like lyme (because she had it and my symptoms were very much the same as hers) did I realize that this was more serious than all the symptoms.

It definately wasnt due to any Doctor, although I now have a LLMD who has positively diagnosed me.

I will most likely start treatment this weekend.

There is light at the end of the tunnel, but only because good people like us are willing to help others who are suffering.

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Geneal
Frequent Contributor (5K+ posts)
Member # 10375

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At first I put the numerous pink eye infections, fatigue, joint pain, etc.

Down to getting older while having two small children to take care of.

Then I blamed it on Katrina (hurricane).

When I started feeling like I was leaning to the left when I walked,

And I couldn't remember what was said to me or find the words to explain that...

One day in Walmart, getting short of breath and almost passing out....

I really thought I had a brain tumor as I knew I had neurological issues.

When I got really sick.....I went downhill really fast.

Hugs,

Geneal

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IMHisda
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Difficulty with moving my legs to walk accross

my living room. Severe memory problems at

work. With 80 plus people I had to work with I

was forgetting who I had talked to that morning.

--------------------
RV

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AlisonP
LymeNet Contributor
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When I drove past my house without recognizing it.

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 -

The obscure we see eventually. The completely obvious, it seems, takes longer. --- Edward R. Murrow

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desertcanyon
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When arriving at work one day, I had to stop halfway up a single flight of stairs to catch my breath while carrying my laptop computer bag.

I had to stand there and just take deep breaths for awhile before I could continue up the flight of stairs.

Then I started getting people's names wrong, over and over.

BTW, I like your signature, Alison.

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Grant that I may not so much seek to be consoled as to console; to be understood, as to understand; to be loved, as to love

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MissMari
LymeNet Contributor
Member # 11274

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After being given nearly every serious diagnosis in the book --- from MS to a brain tumor and everything in between,

based on NO positive test results for any of them (other than one --- guess which? Lyme!) ---

and being treated with everything from NSAIDS to methotrexate.....

I knew something was drastically wrong when I was asked "how much gas do you have in the car?"

Looked at the gauge (which showed a half tank)...

And answered, "Quarter after 3".

That's okay --- I still have to look at my password for this site every time I log in!

--------------------
The Bite: July 1995
Next 13 years: Treated for things I didn't have
Symptom total: 45
1 faint Lyme IgM May 2000
5 More negative tests
IGeneX says YES! 3/16/09
Finally feel human: 2012

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Liz D
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Its a wonder we are not all stark raving mad.
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Ocean
Frequent Contributor (1K+ posts)
Member # 3496

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MissMari,
Awww... I just stopped having to look up my password about a week and a half ago.

For me, I just suddenly changed. My mind turned anxious and then extremely morbid. I would look at my friends at school (I was a senior in high school) and would picture them dead in a casket, without wanting to picture them like that! It was very scary. Thought about death constantly, and this was coming from a previously overly optimistic lover of life!

Of course I noticed the constant twitching, couldn't swallow and was sleeping constantly. I think the defining moment for me was about a year into the hell, I was driving to the health food store to read books because the doc's couldn't figure anything out besides Chronic Fatigue Syndrome, and I suddenly didn't know where I was. I could not remember where I was going and what I was doing. Scared me to death! Of course this was in the late 90's before everyone had cell phones.

If someone has never had Lyme, they don't know the horror that it does mentally to you. It feels like constant torture, and when you don't know what you have, it's even scarier.

Take care,
Ocean

--------------------
http://www.healingfromlymedisease.blogspot.com/

Sick since 1996...Diagnosed 10/2008

IgM:23-25 IND, 31+++, 39 IND, 41 +++
IgG: 31 IND, 41++, 58+

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