Our grandson, Cade, has Autism ... specifically he has Asperger's syndrome. Fortunately this is high functioning autism which refers to individuals within the autism spectrum who do not experience severe intellectual impairments.
We believe Cade's autism is due to our daughter, Lori, suffering from Lyme disease prior to and during her pregnancy with Cade.
Now it's time again for Cade's Crew to Walk Now for Autism!
*Autism is the diagnosis of another child every 20 minutes *Autism affects one in every 150 children born today *Autism is the most common developmental disorder in the United States *Autism's cause is unknown *Autism does not have a cure
It's painful at times to watch Cade struggle through life with such difficulty. He suffers quietly with the different aspects of autism that we can't even begin to understand. And yet, there's another whole side of Cade that is unique, lovable and totally unselfish. When we visit his house, we no sooner have our feet in the door than we hear, WHOOSH, a running sound which is followed by a giant hug which is followed by the words, "Hello Grandma, Hello Grandpa", said in rapid succession then, WHOOSH, he's out of the room again. He doesn't stay around too long for day-to-day pleasantries. He CAN'T. It's too difficult for him. He has made progress, though, in so many ways. A few years ago he never made eye contact with us. Do you have any idea how wonderful it is when Cade looks in our eyes now and smiles?
Please watch the montages Angela made for Cade. You may have to copy and paste them.
You can donate to Walk Now for Autism and/or join our team online using the links imbeded in this post. Donations can also be mailed to Autism Speaks using the donation form located on our page or send a check made out to Autism Speaks to Lou & Angela Bachmann 16 Willow Ct Totowa, NJ 07512-1108.
Donations are tax deductible to the fullest extent allowed by law. Autism Speaks 501 (C)(3) Tax Id #: 20-2329938
Matching gift program: Many companies provide their employees with matching gifts. Please consult your employer on its matching gift guidelines and attach matching gift forms accordingly.
Thank you from the bottom of our hearts for helping to eradicate this vicious disorder. Autism ... It has stolen our children away from us. These are our precious babies and grand-babies. We absolutely cannot let this continue!!!
Now, please forward this to everyone interested in helping Cade's Crew. Our team is going to do great this year. Don't forget to sign up everyone in your families. The Autism Speaks people want to know how many people will be at the event. If you live in northern NJ, please join our team and walk with us.
Love, Grandma Ang and Grandpa Lou
-------------------- Lou B Posts: 2200 | From Mount Hope, New Jersey, USA | Registered: Oct 2000
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posted
Thank you so much, Grandpa Lou, for posting this.
It's been horrible watching Lori suffer through Lyme, and now with our grandson, Cade, wow, it really is painful to watch him suffer through the day to day pains of autism. Any of you who have babies or grandbabies know how Lou and I feel.
Please do me a favor and email Lou's letter or print it and spread the word. Autism is another Lyme-like disorder. What I mean is that people don't believe in it. We have to fight for recognition and our babies are lost to this horrible disorder.
One time I told a person that Cade had autism and her reply was that "that's just something that's in nowadays. It's the rage!!" "Everybody has it!"
I know you believe that sentence because it's been said of Lyme so many times to all of you. It was said to Lori in the hospital years ago. "Oh, Lyme is just something that everybody claims they have!"
Well, as we all fight for Lyme, Lou and I are fighting like crazy for our grandson and all the other children who are affected with autism.
This horrible disorder has kidnapped our babies...stolen them from us.
Dear God, please help them all.
Bless you, my friends, always Angela (Grandma Angela)
-------------------- Love, Angela Posts: 572 | From New Jersey | Registered: Oct 2000
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bettyg
Unregistered
posted
how very touching grandma angela and grandpa lou bachman.
i look forward to looking at the links during daylight hours; signing off for tonight here...
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posted
Cade's sister and our granddaughter, Jordan Rose, will be joining us in the walk for Autism.
If you'd like to see a montage of Jordan and get to know her a little better, here's the url http://tinyurl.com/c342wl
Read about Lyme Disease and Autism. The parents of children with Lyme and Autism as well as adults with both disorders should band together and really let our voices be heard. http://www.lymebook.com/lyme-autism-essay
Thanks for your donations.
Love, Grandma Angela
-------------------- Love, Angela Posts: 572 | From New Jersey | Registered: Oct 2000
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Thanks for your good wishes, but we're not doing very well. There's only 36 days until the walk. I've tried so hard to raise money. Don't know what to do.
Love you...... Angela
-------------------- Love, Angela Posts: 572 | From New Jersey | Registered: Oct 2000
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tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
Hi Angela and Lou,
The montages were wonderful and so very well done. Good job, Angela!
You have a beautiful family. It was good to put faces to names we have been hearing about for so long.
I know many of us are/or will be passing on this link or letter and although many here are strapped for cash due to paying our lyme treatments out of pocket, I know that this lyme family does pull together in a crunch.
My thoughts and prayers go out to Lori and Cade and hope you will keep us updated on how the Walk for Autism turns out. Diseases that no one understands is something we ALL relate to here.
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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posted
I received another $25.00 dollars in the mail today! That makes me happy!
Love, Angela
-------------------- Love, Angela Posts: 572 | From New Jersey | Registered: Oct 2000
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Is there a paypal link?
I have to be honest, anything that requires more steps than Paypal just overwhelms me and doesn't get done. I'd be happy to send a little something if you have a Paypal account.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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LisaS
Frequent Contributor (1K+ posts)
Member # 10581
posted
I posted this in bulletins on myspace, I have 245 lymie friends on there. Hope it helps!
posted
I'm sorry to say that only one or two people donated for our Walk for Autism this Saturday, May 3. I'm very disappointed, surprised and definitely hurt. I guess our grandson Cade and my husband both are not that important to you.
Lou is always there for you--even when he should be in bed relaxing. He finds Lyme Disease to be so totally important and does a good job of helping each and every one of you. Now we both asked a favor and, obviously, we know where we stand in your eyes.
I'm not going to work with LymeNet anymore because there's too much hurt in the memories of Lori's pain and now this disappointment.
If Lou would like to continue working with LymeNet, I guess I can't stop him. But maybe a nice thing for all of you to do would be to tell him to relax and get off the computer and start thinking of himself once in awhile.
Here's Lou's personal page for the Autism Walk if you want to send in a little donation.
-------------------- Love, Angela Posts: 572 | From New Jersey | Registered: Oct 2000
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bettyg
Unregistered
posted
Angela,
Happy belated 65th birthday to you! I just read your note above about feeling very blue, which I didn't know about without your clue.
I'm so sorry there have been just a few donations for your austism walk; I guess most of you just like to talk.
Now I know what to do so I'll write you my check just for Lou and YOU!
Now you can be happy and exclaim WOO HOO!! instead of saying to us PU!
an original by BettyG
Here's to healthier and happier years for you, Angela, Lou, Lori, and your precious grandchildren.
Angela, our taxes were just finished the day before deadline, and I always wait to see how we come out as last year we were hit big time of owing plus a quarterly payment on top of all this.
This year we lucked out with all our quarterly payments and have refunds from state and federal coming back.
So Angela and Lou, look for a $25 check from me; I'll get it mailed still today; our mailman has been here already.
I'm sorry I'm late, but LATE is the only way I know now after 39 years of chronic lyme.
Thanks Angela for writing from your gut and telling it like it is. You touched my heart, and I felt so guilty for not doing something earlier.
Yes, Lou devotes ungodly hours here I know at the expense of his heart health. He's helped me tremendously over the years. We share many of the same hours here.
You and I have talked briefly only since when I came here almost 5 years ago, you weren't posting or rarely so I haven't gotten to know you Angela as I have Lou.
THANK YOU BOTH for all that you have done for the entire LYMENET FAMILY of your countless hours of FREE VOLUNTEER work as moderators and helpers to all who enter here.
May God find the cure for your grandson's autism and to all our LYME and CO-INFECTIONS of these horrendous diseases!
posted
Wow this is the first I've heard of it. I'll send something. Why wasn't it posted in each discussion cateogory?
This should be posted everywhere.
Posts: 743 | From New York | Registered: Apr 2009
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bettyg
Unregistered
posted
john,
all posts are normally posted in ONE forum only since it duplicates or triplicatees the work of answering folks!! besides we have enough LYME FOG and know we've answered a question, and then NOTHING shows up on the post. makes us feel
there are a few exceptions, but it's encouraged to post in correct area for that thing.
this is about AUTISM fundraiser ... so it's not a medical question about lyme; not asking for a LLMD; but is a SUPPORT thing for the Bachman family since their daughter has/had lyme disease, and her son is autistic.
activism is basically confined to LYME also. so support is the best spot for this or off topic.
frankly, 90-95% do NOT go any further than medical unfortunately. they use that for EVERYTHING, and it hurts when folks are asking MEDICAL QUESTIONS, and all this OFF TOPIC stuff appears and their questions don't get asked.
these are my observations and personal opinions on this john! thanks for participating too john! any friends of yours too that you think of ... lou and angela would love this.
he was making phone calls galore when the last he/i talked to BIG $$$$. i wouldn't be good at that.
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posted
Well for this one he should be able to post it on all the discussion sections in my opinion. That's probably why I never saw it.
Posts: 743 | From New York | Registered: Apr 2009
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bettyg
Unregistered
posted
john, i understand; it was lou's choice. hug...
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi there <<<<< Bachmann family >>>>>,
I will be praying for y'all !!! Your work here is so very very greatly appreciated !!!
Wish I could do more, but I hope the prayers help for now!!!
My cousins son has severe autism,he is college age, and cannot speak, it is very severe.
And my Sis, probably is high functioning Autism/Aspergers among various issues ,tho' she has not been tested/ Dx'ed.
Jus' Silverwolf
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3558 | From SE Idaho | Registered: May 2006
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bettyg
Unregistered
posted
john posted this in medical; getting many replies to his post there; none of them had seen this since they don't come to support.
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So sorry to hear all that your family is going through. Your grandson is beautiful.
As soon as I saw this today I made a donation through the Autism Speaks website. I hope it was made in time to help with the goal you were hoping to make.
I sincerely appreciate all that you do for all of us.
Jeanne
Posts: 345 | From East Coast | Registered: Apr 2008
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bettyg
Unregistered
posted
they SURPASSED LOU'S GOAL .... i think it read like $1600 OVER his goal!!
his page shows also who donated, etc.
CONGRATS LOU AND ANGELA ON YOUR SUCCESSFUL FUNDRAISER. hope your resting up after today's event; beautiful weather in iowa; hope you had the same.
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