LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » General Support » IGeneX results in

 - UBBFriend: Email this page to someone!    
Author Topic: IGeneX results in
MissMari
LymeNet Contributor
Member # 11274

Icon 1 posted      Profile for MissMari     Send New Private Message       Edit/Delete Post   Reply With Quote 
After all negative results from LabCorp on last month's bloodwork....

(though LabCorp gave me a weak positive in 2000)

my LLMD's office called me with the news from my most recent bloodwork from IGeneX.....

which was Positive!!!!!!!!

And, although my LLMD cannot accurately determine how long I've had Lyme, he concurs that it has been "for a very long time".....

I am THRILLED. I am VALIDATED. I am herxing like h*ll from my doxy and feel like CRAP but I'm RELIEVED.

I am also SCARED TO DEATH, but... take one day at a time.

I am also now LETTING GO of all of what I call my "wasted years": the dozens of diagnoses that I was given, and never had,

The hundreds of treatments and meds that I was given for them,

And the docs that either were ignorant of Lyme, undereducated or uneducated about it, or had their practice guidelines dictated by IDSA.

As long as those guidelines are in place and imposed, things will not change.

After all, as much as I am upset at my previous docs, these guidelines protect them ---- at the expense of the patient.

Just today I mentioned my Lyme diagnosis to my aunt's orthopedist, a very respected practitioner.

And he basically said "gee, that's a shame... I mean all you have to do is to look for that bullseye rash..."

In comparison, my LLMD was very quick to point out how sick I really was, despite the negative tests and the various rashes I had.

He also pointed out to me how he needed to be careful with my treatment --- as a too strong herx reaction in my case could in the best case make me stop the ABX, in the worst case kill me.

I feel like I should send his name to the Vatican for sainthood!

SO -- to anyone out there who has been sick a very long time, and has gone thru gobs of drs and been told you have this and that, and you're still sick or getting worse with Lyme-symptoms...

Do it: find yourself an ILIADS LLMD, and have faith.

--------------------
The Bite: July 1995
Next 13 years: Treated for things I didn't have
Symptom total: 45
1 faint Lyme IgM May 2000
5 More negative tests
IGeneX says YES! 3/16/09
Finally feel human: 2012

Posts: 120 | From Plainsboro NJ | Registered: Feb 2007  |  IP: Logged | Report this post to a Moderator
Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239

Icon 1 posted      Profile for Dekrator48     Send New Private Message       Edit/Delete Post   Reply With Quote 
MissMari,

I am so happy for you, that you now have validation of your illness.

All of us here understand that!!

I had a fibromyalgia diagnosis for 21 years, before I discovered, through my own research that I had lyme.

I had my Igenex western blot before I saw a LLMD, so I researched how to interpret it, and along with my symptoms and history, I knew I had found my answer too.

Of course the Dr's all told me it was negative and I didn't have lyme. So typical.

I am glad you found a good LLMD. Mine is awesome also. I'm only 5 weeks into treatment.

I like to think that there is a reason that we suffered for years. Now we will be good advocates, and will be able to help others.

All the best to you in your treatment and recovery!!!

--------------------
The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.

"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11

Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
That's great news! I know how it feels to be sick for years and years with no clear diagnosis.

Could you please post this in Medical where more people will see it!? Thanks!!!

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95343 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
Leelee
Frequent Contributor (1K+ posts)
Member # 19112

Icon 1 posted      Profile for Leelee     Send New Private Message       Edit/Delete Post   Reply With Quote 
Gosh, that's wonderful news! The answer, the validation, the treatment, all of it.

At my first LLMD visit today he asked me how many doctors in the last couple of years I had seen looking for help. I said "about 15".

Since I started searching for an answer many years ago, I would conservatively guess about 40.

It is all so sad. Just so terribly, horribly sad.

I am happy for you and wish you all the best.

Leelee

--------------------
The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr

Posts: 1573 | From Maryland | Registered: Feb 2009  |  IP: Logged | Report this post to a Moderator
bettyg
Unregistered


Icon 14 posted            Edit/Delete Post   Reply With Quote 
mari, mari, quite contrary ...

NOT ANYMORE; WELCOME TO OUR LYME/CO-INFECTION CLUB!!

yes, i had 40-50 other diagnosis/symptoms too for 34.5 yrs. best wishes for starting the road to REMISSION!

IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.