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» LymeNet Flash » Questions and Discussion » General Support » New yet old

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Author Topic: New yet old
CathyMary
LymeNet Contributor
Member # 20071

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I'm new to the network and to a deeper understanding of lyme even though I was diagnosed and treated for it 4 or 5 years ago(can't even remember date of the onset of this traumatic disease).
At that time I presented with the classic bulls eye rash and symptoms, my regular doc tested (positive) me and put me on antibiotics. I got sicker, after three weeks I was sent to a cardiologist who said I had a normal EKG...but prescribed additional 2 or 3 more weeks of medicine.
After that course even though I wasn't completely better my doc said we caught it in time and I no longer needed medicine.
I never did regain my old self. Today I regret not seeking out a specialist, support, or going with my gut instinct. I allowed my doctor to treat my lyme like a common cold, today I suffer for it (lyme. CFS, FM, ????).
On the bright side I no longer have that doctor and I am fighting back demanding to be listened to.
I recently changed primary doc again because she continued to say I was just "depressed" and couldn't have lyme again because I didn't have a "rash", she wasn't even opened to the idea that I could still be suffering from that first tick bite. She did however order another lyme test.
No surprise I tested positive, the western bloc also had many poitives but I was told (by my new doc) that on the last four areas I only tested positive for one so I don't have lyme???
I will be getting copies of test and my old test and taking them to a new doctor. Thanks to everyone who gave me LLMD's yesterday.

Posts: 105 | From Mass | Registered: Apr 2009  |  IP: Logged | Report this post to a Moderator
Starfall1969
Frequent Contributor (1K+ posts)
Member # 17353

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Hi CathyMary. Welcome.

I'm copying and breaking up your post for those who can't read large blocks of text.

I hope you can find a doctor who will listen to you and help you on the road to reovery.

This is a great place to be!
--------------------------------

I'm new to the network and to a deeper understanding of lyme even though I was diagnosed and treated for it 4 or 5 years ago(can't even remember date of the onset of this traumatic disease).

At that time I presented with the classic bulls eye rash and symptoms, my regular doc tested (positive) me and put me on antibiotics.

I got sicker, after three weeks I was sent to a cardiologist who said I had a normal EKG...but prescribed additional 2 or 3 more weeks of medicine.

After that course even though I wasn't completely better my doc said we caught it in time and I no longer needed medicine.

I never did regain my old self.

Today I regret not seeking out a specialist, support, or going with my gut instinct.

I allowed my doctor to treat my lyme like a common cold, today I suffer for it (lyme. CFS, FM, ????).

On the bright side I no longer have that doctor and I am fighting back demanding to be listened to.

I recently changed primary doc again because she continued to say I was just "depressed" and couldn't have lyme again because I didn't have a "rash",

she wasn't even opened to the idea that I could still be suffering from that first tick bite. She did however order another lyme test.

No surprise I tested positive, the western bloc also had many poitives but I was told (by my new doc) that on the last four areas I only tested positive for one so I don't have lyme???

I will be getting copies of test and my old test and taking them to a new doctor.

Thanks to everyone who gave me LLMD's yesterday.

Posts: 1682 | From Dillsburg, PA | Registered: Sep 2008  |  IP: Logged | Report this post to a Moderator
Leelee
Frequent Contributor (1K+ posts)
Member # 19112

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Hi CathyMary,

I am sorry you have gone through so much needless suffering. Most of us on this forum have had similar experiences unfortunately.

This is a good place to visit. There are many well-educated, informed people here who share their profound knowledge and support.

Best of luck to you.

--------------------
The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr

Posts: 1573 | From Maryland | Registered: Feb 2009  |  IP: Logged | Report this post to a Moderator
Tincup
Honored Contributor (10K+ posts)
Member # 5829

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Welcome!

Glad you are here, but at the same time, wish you didn't have to be.

Good folks here... very helpful!

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
bettyg
Unregistered


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welcome cathy,

i think i sent you my welcome letter earlier; if i didn't, please say so, and i'll add it as a reply here ok! [Smile]

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Lymetoo
Moderator
Member # 743

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Welcome, cathymary! We're glad you found us! [Cool]

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95350 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
   

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