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» LymeNet Flash » Questions and Discussion » General Support » Finally after 6 years and a long fight

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Author Topic: Finally after 6 years and a long fight
livinlyme
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I had my decission from SSA the other day.. SOme of you might remember in 06 when i got a closed award but now finally after I have lost everything I ever worked for including our Home and car...

I stood in front of the AJL and broke down in tears when he said "congratulations you are now disabled, enjoy the rest of your life". I could not stop crying .. I was overwhelmed after all these years of fighting.. and after the last time though in Florida when the attorney called me the night before my hearing and asked me where my medical reocrds were?

said we had to go for a closed award and then re apply in a year to fight for a contious award.. Even my Doctors ALL OF THEM said I got raked over the coals by the attorney.. well now finally I have what i fought hard for.. medical care and a low income..

when I turn 50 I will be entitled to widow survivor benefits via my late husband who also died of Lyme Disease..
So finally this disease is giving back after all it has taken....
Linda D

--------------------
"Hatred paralyzes life; love releases it. Hatred confuses life; love harmonizes it. Hatred darkens life; love illuminates it."

Posts: 1389 | From who knows, who cares, but somewhere over the rainbow | Registered: Mar 2003  |  IP: Logged | Report this post to a Moderator
Geneal
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That is good news that you've waited and worked so hard for.

So how does it feel to be "disabled"? [Smile]

Go celebrate!

Hugs,

Geneal

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Starfall1969
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Isn't it a horrible thing that one has to "celebrate" being disabled?

I swear, if the doctors aren't raking us over the coals, the legal system is. Let 'em all burn in hades!!!!!

I'm sorry, I feel very ill this morning and I'm just in a very cynical mood.

But I am glad that you finally got what you've fought so long and hard for!

Posts: 1682 | From Dillsburg, PA | Registered: Sep 2008  |  IP: Logged | Report this post to a Moderator
Need Lots of Help
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I am sorry you lost everything, but I am glad you finally got approved.

Now, maybe some stress will be released and you breath a little easier!!

Shalome

Posts: 893 | From Florida | Registered: Dec 2008  |  IP: Logged | Report this post to a Moderator
bettyg
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so you were FINALLY APPROVED for SSDI? your subject line is confusing for this neuro lyme patient of 39 yrs....sorry.

CONGRATS; sorry you had to lose everything.

6 yrs; you should be given MEDICARE BENEFITS BACKDATING to when they "officially found you eligible for benefits" !!

now with their going back, you would be eligible to submit claims for thigns you PAID FOR OUT OF POCKET that your health insurance & medicare SHOULD have paid back then.

i'm very sorry for your loss of your beloved husband to lyme also [Smile] was this recent or how long ago? [group hug] [kiss]

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jt345
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Hi

I know how You feel,I do hope You can start too live some sort of a life again.

I don't understand,why the people We vote in to office,can be so blind and uncaring.

I lost everything too,but You have a chance too breath. The fresh air is good isn't it.
appleseed

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John S
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I hate idiots who give snide comments like that.
"Congratulations you are now disabled, enjoy the rest of your life".

I wish I could be some sort of super hero that fights for the chronically ill, yea that's it The Chronically Ill Avenger!

At that moment I'd appear with my flowing cape, rapidly slap em in the face a few times, and then disappear just as quick as I came leaving derserved retribution in my wake.

Oh the satisfaction!

I'm sorry Mr. So and So you only have 4 positive bands on your Western Blot. I'm afraid your pain syndrome is just a somatoform disor...WHO ARE YOU! FEEL THE MIGHTY BACKHAND OF DESERVED JUSTICE! SLAP!, UGH!, SLAP! UGH!, 15 MORE MACHINE GUN STACCATO MEATY SLAPS! Prostrate, red faced evil doer feebly groans, "Who... the... hell... was... that... masked man!" as I ride off into the sunset.

I'm taking applications for sidekicks.

[ 04-27-2009, 04:10 PM: Message edited by: John S ]

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Starfall1969
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John S, lol.

I'm more the romantic type.

I've been thinking about a knight in shining armor named Sir Herxalot who rescues those in the throes of Lyme and company.

He has to fight against the evil King Idsanore.

I haven't gotten much further than that.

Someday, I'l write....

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John S
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As long as King Idsanore gets in the end it sounds like my kind of book!
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livinlyme
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OK ty for the replies sorry I havent been up to being on lately.. feels no different.. I thought it would unload the stress .. That never happend,,,

I am still waiting for the award letter.. the wait is unbearable..

The doctors are raking everyone over the coals

Betty: I had a closed award granted in 2006 for three years and cause the lawyer didnt have my medical records the night before going in front of the alj I had to reopen a claim after a 6 month wait .. LAzy good for nothing lawyers.. even DR H told me they screwed me over..
Still waiting for the Medicare card and award letter
John S
I dont think the judge was being synical...
He keep saying to the MD in the hearing,,
DO you see she has cardiac issues
do you see she hass fibromyalgia?
Do you see she has Seizures?
Do you see ETC. so long I cant lists it all my mind is gone.. fried from this BS..
HE was sincere i beleive he felt i should have had it the first time as well

ANd both of you make a movie it pays more!

--------------------
"Hatred paralyzes life; love releases it. Hatred confuses life; love harmonizes it. Hatred darkens life; love illuminates it."

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Jin
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Dear John S,
I do comicbook art, and am working on something similar myself. Currently, I am trying to design a female character similar to The Punisher. She is actually a mixture of The Crow, The Punisher, and some others. My father always said if I were a Greek goddess, I would be Nemesis, the goddess of vengeance and justice. I have a lot of the story planned already, but character design is still in the works.

Sincerely,
Jin

--------------------
Celiac Disease (2007)
Candida Overgrowth (2006)
Thyroid Disease (2004)
Gallbladder Disease (removed- 2003)
Fibromyalgia (2001)
Ovarian Cysts (5 in less than 10 months - 2000)
Anemia (2000)
IBS (1999)
Acid Reflux (1999)

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livinlyme
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Jin I Think you should start another post and get John S in the title this topis is old and he probably forgot he answered that.. so to grab his attention try to post a topic on that..

--------------------
"Hatred paralyzes life; love releases it. Hatred confuses life; love harmonizes it. Hatred darkens life; love illuminates it."

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just don
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how about the white knight in shining armour,,with a lance made of,,,,,wait for drum roll,,,,a giant syringe and needle so it is sharp enough to goad the ducks

--------------------
just don

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Jin
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Dear livinlyme,
Thank you for telling me! I will do that.
Congratulations on your obtaining assistance! We all are happy for you on here. Getting any help from the government is like pulling teeth.

Dear just don,
Yes, we should be able to pop them one. They deserve it. Ducks are evil! They must pay for their sins! To the dungeon with them! LOL!

Sincerely,
Jin

--------------------
Celiac Disease (2007)
Candida Overgrowth (2006)
Thyroid Disease (2004)
Gallbladder Disease (removed- 2003)
Fibromyalgia (2001)
Ovarian Cysts (5 in less than 10 months - 2000)
Anemia (2000)
IBS (1999)
Acid Reflux (1999)

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bettyg
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livinlyme,

may i suggest also you show you WON SSDI in subject line? many going thru this, and can learn from you. just click on pencil, 3rd box to right of your name on 1st post to open up subject line; click edit send when done [Smile]

thx for additional info. since the lawyer was bad, I'D CONTEST MONEY HE GETS!!
----------------------------------------

max is $5300 now until june 1; but since they all stated he wasn't anygood and he did NOT have medical records YOU SENT HIM?? INCOMPETENT!!

where was your lawyer from?

he has to have a complete breakdown ...

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