I appreciate you taking the time to listen. Dr Jones mentions lymenet.org in his comments. By default he has to rely on all of us to get the news out about him, as he purposely does not have a website of his own.
Posts: 8 | From Asheville, NC | Registered: Nov 2006
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
I thought that he said some very interesting things that are not widely known, such as:
--Children who are treated with antibiotics for 2 months after all symptoms of tick-borne diseases are gone and the child feels that it is all gone DON'T relapse. They can get bitten again, but they don't relapse.
--To get lyme in the first place, the person has to have had "pheromones that attract ticks" and that people are born with pheromones that attract ticks.
I have come to the conclusion that there is something about me that attracts not only ticks but also mosquitos. This is the first time I have heard a lyme doc support my conclusion.
I found this very interesting. These statements are made about 1/3 of the way into the interview if you want to jump right to them.
Posts: 9931 | From Maryland | Registered: Dec 2007
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posted
TF, thanks very much for your comments. I just wanted to clarify what Dr Jones said about children and relapse. He says they can relapse, but it is not as bad as the first time, and that's because they can detect it much earlier and get treatment.
There is definitely some support for your conclusion about being attractive to ticks. In my interviews with Lyme docs, at least three of them talk about the notion that there might be something in a persons' blood, or pheromones, perhaps, that attracts ticks. It's very interesting.
Ginger Saveley, RN, who has treated about a thousand patients with Lyme and tick-borne related diseases in her San Francisco clinic, talked about how she sees many family members who are all infected. Ginger concludes that this can mean that they all hang out in the same tick-rich environment, such as the family farm, but it may also indicate that they share a pheromone or something that makes them vulnerable to tick bites.
Posts: 8 | From Asheville, NC | Registered: Nov 2006
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Hey earth, I listed to what Dr. Jones said over and over. And, I wrote down his exact words.
So, what I said he said regarding "children don't relapse" are his exact words.
Have you listened to the tape?
It's easy to prove what he said that way.
Posts: 9931 | From Maryland | Registered: Dec 2007
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posted
Not all of us have equipment to listen to podcasts. Any other way to hear this?
Posts: 8430 | From Not available | Registered: Oct 2000
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bettyg
Unregistered
posted
earthdiva,
would you copy your post about dr. jones to my LYME VIDEO COLLECTION at top showing length of video and link
thanks so much! i'm on restricted time pc so don't have time myself.
also, please go back to your longer post above mine here and DELETE RN's name and city ... no no
just click on pencil, 3rd box to right of your name IN THAT POST where her name shows up....thanks! hugs
you can show Calif.'s RN S who used to be in texas will help many folks know who you are talking about ok.
i'm on cancer pc, and today it will not let me listen to any videos; it was end of yesterday when they were closing up i had this on, and wanted to hear it again.
will keep trying .... thx again for posting and YOU interviewed him. hugs/kisses
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posted
I love Dr. J and thank God for finding this place so I could find him.
He's only been undergoing treatment with Dr. J since May, and already I see lots of improvement. His gastro issues have lessened considerably, he doesn't vomit daily anymore. Since treament, he's put on 5lbs and grew 2"....
And my biggest concern, his visual disturbances (blurriness, black outs and hallucinations)have been gone for over a month now.
For the first time in almost 3 years, I truly believe my son will be ok.
Thank you Dr. J.... <3
-------------------- Mom to a 5 year old lymie.... Taking it one day at a time. Posts: 182 | From Ipswich, MA | Registered: Jul 2008
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Sorry, but I started reading what others posted and forgot what the number of children are that he has seen in this last year...1600...1800...wow.
Compared to those on the panel who have seen what??
Whatever it is it is nothing compared to what our lyme docs see and treat.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
The other thing that stands out is long term abx.
Alternative to support but a must need for abx.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Ah yes...the length of time that a tick needs to be attached.
I don't recall his words on this but my thought has always been why are they putting so much importance to this...doesn't make sense to me.
I had my mechanic tell me it had to be on for 2 days.
I told him I felt differently about that and many of us never see what bit us.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
I also thought I couldn't listen to it because it said podcast.
But, clicked on podcast and all went well.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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