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» LymeNet Flash » Questions and Discussion » General Support » Where did BettyG go? (Page 1)

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Author Topic: Where did BettyG go?
Tracy9
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She is no longer listed as a member...I find it hard to believe she was banned....so that leads me to believe she may be one of the new moderators who chose to go incognito?

I dont' see anyone else asking about this, is it the big elephant in the room or am I missing something?

--------------------
NO PM; CONTACT: [email protected]

13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG.

Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005  |  IP: Logged | Report this post to a Moderator
madge
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a few days ago she posted that she was fed-up
with things that was going on...and if things

didn/t change she was leaving...well i guess
she left...i went back a week in post and can't
find it...she was upset about something i don't

know what....i will miss her...she was the best
thing about this site...she help everyone...please
someone who knows whats going on...help us....

we need Betty....

please Betty know i miss you....Madge

--------------------
madgen

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catskillmamala
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Betty has left the board, she is not a moderator. She was unhappy with the tone of posts directed at her and the actions of the new moderators. But rather than continually complain or cause strife, she removed herself.

I feel her loss has been tremendous. I can honestly say that I'm not sure my family would be well without her.

I see posts way down in the list with zero reponses, she would have responded.

I see posts by clueless newbies without a welcome post in their thread and although her welcome post was looooong, it was kind and comprehensive.

I see posts that are huge blocks of text and no one is breaking them up or explaining to the poster that short paragraphs with lots of white space are easier on the eye.

I truly believe that fewer people will get the help and insight they need from lymenet because she is not with us here.

It would take ten of us to make one Betty G.

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madge
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thank you so much...you are right on...Betty G
was the Best of Lymenet....it won't be the same...

you are soooo missed Miss Betty G...

thank you soooo much for all your help....

i will miss your kindness and knowledge here...

Mande

--------------------
madgen

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lou4656
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"I truly believe that fewer people will get the help and insight they need from lymenet because she is not with us here."

I couldn't agree more!

--------------------
LouLou

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2roads
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I feel so sad about loosing Betty to the board....

and a bit angry at those that contributrd to her leaving. [cussing]

If you know who you are, you had better get your act together, because we can't afford to lose the love and kindness and guidance of people like Betty....and there aint alot of'em.

I pray she reconsiders and comes back. She is a senior member of this family and belongs here to be given upmost respect, courteousness....yeah, and some love in return.

Ditto to all that was prior said, especially catskill.

2roads

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sixgoofykids
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It is our understanding that Bettyg is taking a break from the board. We all appreciate all that she did, and if she needs a break, she certainly deserves one. I think all of us who have been here any length of time have taken a break at one point or another.

Thank you for your concern, Tracy. [Smile]

--------------------
sixgoofykids.blogspot.com

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joalo
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Ditto what catskillmamala said!!

I couldn't have said it better.

--------------------
Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006.

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ping
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quote:
Originally posted by joalo:
Ditto what catskillmamala said!!

I couldn't have said it better.

Me too. There have been numerous times when bettyg was the first person to post to my thread and ask about my welfare. She's the best traffic cop in the business.

bettyg, if you're reading this, please reconsider and come back after the Holidays; it's such a stressful time of year. I think we get stressed out and possibly don't realize where all the pressure is coming from. My Lyme friends keep phoning me and the story is the same: "It's that I can't participate in ways that I used to do. Cooking, shopping, family and friends. I'm tired and there's nothing I can do and they don't understand..." Everyone is very frustrated and emotionally challenged to the edge of sanity. [shake]

Rest for now and have a wonderful Turkey and Tree! [Smile]

ping
"We are more than containers for Lyme"

--------------------
ping
"We are more than containers for Lyme"

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Keebler
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-
Betty's goodbye post was removed and she was banned, actually. She is no longer able to post anything.

She has shared the details with me and is sad that her thoughts were taken down so soon after she posted.

There was some very harsh treatment of Betty that was not fully addressed and she felt she had to leave. But she did not expect her goodbye letter (and her request to have the bullying to be adequately corrected) to get her banned.

She and I email now and then and I will let her know that she is missed.
-

[ 11-24-2009, 05:56 PM: Message edited by: Keebler ]

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feelfit
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Thanks for the truth Keebler. I saw betty's 'goodbye' letter and felt terrible for her.

We are all different people. It is our intentions that matter. And whether or not some did not like Betty's long welcomes, or her policing....I don't think that there was EVER any malice in Betty's intentions.

This board meant a lot to her and I am sure she is hurting. So Betty, [group hug] [group hug] [kiss] [kiss] all of that is for you in case you're around here and reading.

Feelfit

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Robin123
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BettyG was often the first person to take action here with new people, let alone any of her responses to the regulars and also her activism postings, which I always found valuable.

I hope she comes back here after the break.

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ping
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Speaking of Newbies...HELP! Many are slipping thru the cracks.

I miss you bettyg-baby. [kiss]

--------------------
ping
"We are more than containers for Lyme"

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Keebler
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-
Messages left here cannot be read by Betty.

I passed along the good wishes to her via email and gave her the link. She asked me to convey a thank you and explanation of her inability to read your posts because of having been totally banned from the site:

"No longer even having the ability to VIEW the board in any manner - and no access to any of over 31,000 posts or lists of links" that she provided -

She wants to make it clear that she's ``NOT taking a break; left LymeNet for GOOD!!''

``please thank everyone for their very kind comments and their missing me; it does help knowing I MADE A DIFFERENCE.

thx for thinking of me. Betty''

-

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WildCondor
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Why don't the moderators explain to us why all her explanation was deleted! This should be public info...things just keep getting worse here, all the long time members are leaving for a reason. I think it's ridiculous that a member cannot access his/her posts. She made them, she has a right to see them to help others. If she told us why she left, why can't we see that? Betty was a long time valuable member...you might all not agree with some of the way she did things but she did try to help, and she deserves respect. The patients are the ones suffering here! Explanation please!
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glm1111
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I just moved into a new apt and experienced some adrenal exhaustion so haven't been able to post. Betty was a very valuable member and contributor here to many.

I just find it very upsetting that she was banned for expressing her opinions about how she was treated. Betty was very efficient and an organizer in keeping this board in order to help people navigate and be able to read.

I think that when she did that it was misconstrued as being bossy. She made order out of choas. I am very sad to see her go. Another VERY VALUABLE member lost who made a difference.

[group hug] [group hug] [group hug] [Frown]

Gael

--------------------
PARASITES/WORMS ARE NOW
RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS*

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randibear
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i don't have a clue as to what happened and didn't read any posts. guess they were deleted before i saw them.

i agree. i may not have agreed with some of her methods but she was a member of this board and a very long standing one, surely some explanation would be helpful.

it would put to rest any speculations.

--------------------
do not look back when the only course is forward

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Jenifer
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If Betty's post was not deleted, that would be a double standard. She demanded I remove posts that bashed her (obviously, I would not intentionally leave a post up that bashed another member), but her "Goodbye" post went on to bash members, as well as moderators.

So, that is why it was removed. Rules apply to everyone. Also, disrespecting the moderators is not tolerated.

And please keep in mind that you only know one side of the story. The moderators and myself see all sides.

In any disagreement, it's easy for someone to paint a great picture in their defense for all to see, in an effort to get you on their side. Moderators have to see beyond that and make tough decisions.

Members who are banned, I believe, can still be able to view the forums, but can't log in to do so.

Betty requested time away from the board, so we hope she is enjoying her down time and looking forward to the happy holiday season ahead.

--------------------
Jenifer Stolow
LymeNet.Org Webmaster

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ticked-offinNc
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Keebler,

Thank you for the truth.


I have not cried from the heart in a long time,but the loss of Betty is too much. I am so sorry for you Betty,you do not deserve such treatment,for giving so much of yourself.

I am equally sorry for all of us, and the loss of your great value, and knowledge.

There will be a hole here that can not be filled.

And honestly, it makes me not want to be here anymore.

What has happened to all of us on this board, that this can happen? We are family,and friends, when others have abandoned us with lack of understanding.

What happened to the respect we had for each other,even in disagreements.

We are all different, but we used to be united by such a huge common cause, and life stealing disease.

What happenes to our kindness towards each other,even though we were all facing the biggest challenge of our lives?

What happened to us? Where did my best friends go?

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Lymetoo
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I'm really shocked that her goodbye was deleted. I never saw it either.

--------------------
--Lymetutu--
Opinions, not medical advice!

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randibear
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jennifer, thank you for the explanation.

yours is a tireless and often painful job. such is evidence by this latest episode.

i'm sorry you have to go through this.

--------------------
do not look back when the only course is forward

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WildCondor
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Thanks Jenifer,

So it was deleted because Betty G bashed the moderators and other posters. That makes some sense. I have seen posts deleted for no good reason however, so she does have a point. Was there content in the post besides bashing? Betty was helping me organize all of these links and now she is gone...so I cannot do this alone. Everyone is gone who was helping. I need a vacation too.

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Keebler
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-
What was perceived as bashing was really someone who had been bashed asking that all the slams at her be deleted. She just wanted to be heard.

It was a very complex series of communications back and forth with finally, the bullies saying "well, we WERE nice."

It would have been hard for anyone to keep up with the dizzying manner in which comments were slung but I know - because I read all of it - that Betty's criticism was directly related to the manner in which she had been treated.

And that had not been resolved, even in many emails back and forth between a couple moderators. It's the emails that probably tipped the scales. She never felt heard and the emails tried to spell it all out but it just got too complicated. She also was not addressed very kindly in emails and then the volume increased.

She was hurt and angry and did "raise her voice" and that was perceived as disrespectful. As for her bashing, she was simply pointing out inconsistencies and where insults remained that were hurtful to her.

But that was so much to sort through - for anyone. The fire had to be put out as fast as it could.

In the end, bullies will always have passive aggressive tactics and wrap their barbs in syrupy compliments all the while declaring how very nice they are and how much they really love someone. But the wounds from these barbs run deep. And the terrain changes.

Bottom line: there was a struggle of power and Betty lost because of complications and because she asked posters to post so that all could read and some just didn't like her asking for that. That started it. It was not the request but the attitude of those wanting to smash her and her finally standing up against them.

I read all the emails back and forth and this is my perception.

She helped many here and LymeNet will be poorer in her absence. But she may be better off for it's really hard to know just when the bullies will strike out again. Maybe that's human nature but who needs that?

If we can stick to the matter at hand - helping others - LymeNet might still have a chance.

-

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LuluBellesMama
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I read the post, and responded. I didn't see anything as bashing. Maybe people were being too sensitive (lyme does that to us, no?)

I am a moderator on many boards and lists, and didn't see anything but the mods cya-ing by deleting her message. I know some people cut and paste and post the messages on this board publicly elsewhere on blogs. I thought to myself perhaps this was one they would be deleting and maybe i should have saved it....

I have not been here long, but it seems there is always a "I am leaving post."

"Supposedly," there is a lot of GREAT information here. But, this forum has not been the one that helped me as greatly as others.

--------------------
------------
9.16.09 IGG+ 23 41
9.25.09 dx w/Lyme
10.22.09 first LLMD Appt

http://www.mylymelife.com

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sixgoofykids
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Betty should have no problems reading the board. Anyone can read it without signing in, they just cannot post. I read it for weeks prior to joining.

Keebler, I was never unkind to Betty and I wrote several of the emails you are referring to. I resent the implications. I even posted a sticky in seeking a doctor to help make things easier for all involved and edited it to add suggestions made by two different members. You make it sound like we moderators did nothing to accommodate Betty, when in fact, we tried to reach agreement with her.

I will not publicly discuss what the problem was. I don't publicly say negative things about people. You say that in the end Betty lost a "power struggle", the truth is, in the end, it's the webmaster who has the power. We spent many, many hours of our time trying to come to a compromise with Betty. She chose to leave and announced it on the board. That was the end of the compromising. We did not give up on her.

I do hope that at some time in the future she comes back to the board.

--------------------
sixgoofykids.blogspot.com

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2roads
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How is that done?

Does she just log on as someone new?

How do you go about coming back to the board once you have been banned?

I think we all need to understand that. I feel like I'm treading in shallow water expressing my feelings.

I would like to know what the options are?

I did not fight your fight, but I cannot imagine losing what she offered for much more then alot of hell....but that's just me.

2roads

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Keebler
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-
Sixgoofykids,

Betty can't read the board. For some reason, her computer will not connect to this site.

Sorry if you thought I meant you with the emails. In no way did I mean you. It is not you to whom I was referring. There were others - many others from many different people. I named no names on purpose. It would serve no need. Everyone knows if they've been nice or not.

The power struggle I was describing was between posters - that is want escalated it and it just blew up into a big mess. I do wish it could have been handled better but it was chaos and I would run screaming into the jungle to escape it, for sure.

SGK, You are one of the ones who have maintained a professional demeanor around all this and your welcome note in "seeking" does incorporate Betty's suggestions.

That request made sense and it's good to see that mentioned.

It was probably not so much that it alone was the fight, but that it was used as a springboard for some who just didn't like this or that about someone.
-

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seekhelp
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She'll be back someday hopefully. She's a Lyme activist. [Smile] Time heals wounds. They all return eventually. I hope she enjoys her time off. This board really can be a soap opera at times.
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lymemomtooo
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WE may not know everything that happened but from all that I have seen, Betty is a strong asset to this board and I hope those who are in POWER will find it in their hearts to reconsider.

I became a member a little before Betty, but she has many thousands of messages. She is always trying to help and save lives. That must be considered.

My lymie has once again become a danger to herself and Betty is even helping me while off this board..

Everyone doesnt always agree with her methods but her heart is better than most and she will help until her last breath if possible.

Again, please reconsider. lymemomtooo

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seekhelp
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Lymemomtoo, you have 38,000+ posts more to catch up to BettyG. [Smile]
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Silverwolf
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<<<<< Betty' >>>>>,

I miss you,and hope you can come back someday!!!

--------------------
2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain.
[ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94
Diabetes*2 Dx 10/'08

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sixgoofykids
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quote:
Originally posted by Keebler:
-
Sixgoofykids,

Betty can't read the board. For some reason, her computer will not connect to this site.

Sorry if you thought I meant you with the emails. In no way did I mean you. It is not you to whom I was referring. There were others - many others from many different people. I named no names on purpose. It would serve no need. Everyone knows if they've been nice or not.

The power struggle I was describing was between posters - that is want escalated it and it just blew up into a big mess. I do wish it could have been handled better but it was chaos and I would run screaming into the jungle to escape it, for sure.

SGK, You are one of the ones who have maintained a professional demeanor around all this and your welcome note in "seeking" does incorporate Betty's suggestions.

That request made sense and it's good to see that mentioned.

It was probably not so much that it alone was the fight, but that it was used as a springboard for some who just didn't like this or that about someone.
-

Thanks, Keebler. I *thought* you probably meant it this way but that is only because I have read all the emails that were exchanged. I agree that it is best to keep names out of it, but when you do, it can make some look bad who were not. The struggle was between posters and we were "moderating," but in your post that wasn't clear. Thank you for clearing that up now to the others who are reading who have not read all the correspondence.

That is strange that Betty's computer cannot connect to the site. There is nothing we can do on our end to do that, the admin can make it so people can't post. On our end, this is temporary until things calm down. On Betty's end, I don't know. Hopefully, she will reconsider.

--------------------
sixgoofykids.blogspot.com

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kam
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Wasn't able to read what others post. Just responding to the question.

In my minds eye Betty is off on a much needed cruise and vacation.

In another world other than the lyme world.

Not even thinking about us because she is having so much fun living her life.

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springshowers
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There are always two sides to every story. Its too bad that there could not be a compromise made. That is all I think anyone .. wanted.

I think everyone has value.

I have seen lots of good things from her and I have seen some not so good things.

It is really up to the moderators. I think we really have to just trust they know things that the rest of us do not and they did their jobs.

I also think they DO NOT HAVE TO and even SHOULD NOT post the specifics here. It is not nor should be public knowledge.

It is between her and the forum. And that is it.
The forum and moderators in my mind are breaking confidentiality if they post specifics.

IF I got banned I surely would not think I would have to worry about the moderators going on and telling everyone why I was banned and specifics that are not something I already disclosed on the board.

I think the that curiousity is normal but that it is not our business really...

I know she is active on other boards as well using the same screen name....she was quite active and I am sure will remain so..

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seekhelp
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I want moderator power for a day just to know the excitement of hitting the giant delete button. [Smile]
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sixgoofykids
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Thank you, springshowers, that is correct, we should not be revealing what happened. Everything that has been revealed has been revealed by people BettyG has spoken to. [Smile]

Seek, it's just like your delete button but we can edit anyone's post .... it's not an exciting, giant delete button! And you can't delete without taking all the rest of the job. Haha.

--------------------
sixgoofykids.blogspot.com

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lou
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We have lost other lyme activists on this board who never came back. Thinking of Californialyme, Cave76, Joe Ham, and others. I always hate to see the oldtimers leave as they have a lot of institutional memory and we need them to balance all the newbies who show up lost and helpless.
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WildCondor
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Exactly Lou...I have one foot out the door too....it's really a bad situation. Newbies helping newbies. I wish things would be fixed, really badly. I have too many emails from people begging me to stay so what to do!!! Ahhh!
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Tracy9
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Well said, spring showers, and thank you for answering my questions, sixgoofykids.

As a moderator on another board, I will say when things get very heated, I have had to ban members when they are about to leave because when they are very angry, they will sometimes make a damaging grand exit that is hurtful to all the other members.

I am in no way saying Betty was going to do that, but I have seen it happen and therefore sometimes it becomes prudent to ban someone when you know they are heating up and planning to leave anyway.

I honestly had no idea what happened, and was just wondering where she went! Thanks for answering. Sounds like it was handled very fairly, and that she will be welcome back after a cooling off period.

That is about as fair as fair can be.

--------------------
NO PM; CONTACT: [email protected]

13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG.

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Lymetoo
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I know what you mean, WC. Every time I think I've done my time here.. someone leaves and I feel I am needed even more.

The newbies need us all to step up and not let them fall through the cracks!!

--------------------
--Lymetutu--
Opinions, not medical advice!

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randibear
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ok, ok, i'm going to step in. anything i can do?

i haven't a clue tho i should warn you...

--------------------
do not look back when the only course is forward

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sixgoofykids
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Randi - [kiss]

--------------------
sixgoofykids.blogspot.com

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randibear
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hey listen, you may live to regret this!!!

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do not look back when the only course is forward

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sixgoofykids
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You're assuming I'll live through moderating Lymenet!!! [lol]

--------------------
sixgoofykids.blogspot.com

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randibear
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touche!! good one.

hey, maybe i am better qualified. civil rights specialist/mediator...hmmm

--------------------
do not look back when the only course is forward

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Geneal
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Keebler,

Please let my sister know that I am praying for her for now and always.

Thanks.

Hugs,

Geneal

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Robin123
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Six, I think you're doing a good job - honest, balanced, and gentle with folks. Even tho you've volunteered to moderate, which can be a tough job, everyone still needs people with good heart. Maybe you should call yourself SixGoofyKidsPlusZillionsMore...

CaliforniaLyme was not banned. She left because she was being harassed in her personal life.

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seekhelp
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I don't know Cave76, but after the stuff I read this poster put on LNE, I'm shocked there's any regret Absolute ruthlessness and attacks on many.

quote:
Originally posted by lou:
We have lost other lyme activists on this board who never came back. Thinking of Californialyme, Cave76, Joe Ham, and others. I always hate to see the oldtimers leave as they have a lot of institutional memory and we need them to balance all the newbies who show up lost and helpless.


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Ocean
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Wow! I am in shock! I didn't know any of this went on!!

I too had become friends with Betty and I am so sad that she is gone...she was an asset to the site and to newcomers...she helped me several times with lists of doctors and their numbers...I can't imagine how upset she probably is with all of the thousands of hours spent trying to help people.

Betty...I hope you have a wonderful holiday season and that somehow you are able to come back to Lyme.net if you are able.

Hugs,

Ocean

--------------------
http://www.healingfromlymedisease.blogspot.com/

Sick since 1996...Diagnosed 10/2008

IgM:23-25 IND, 31+++, 39 IND, 41 +++
IgG: 31 IND, 41++, 58+

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sixgoofykids
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Thanks, Robin, LOL! [kiss]

Ocean, we hope, too, that BettyG will come back after this passes ... that truly is what we are hoping for. [Smile]

--------------------
sixgoofykids.blogspot.com

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opus2828
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I too am surprised by this. I do hope BettyG comes back. I will miss her.
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Keebler
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-
Betty has asked me to say that she "will never return." She does not think the matter was handled fairly at all (by two of the many moderators) and that her concerns were not heard. Nor do I.

She was told by one moderator that they just didn't even want to hear another word out of her and she could not even point out problems with some of the posts that attacked her.

I followed the insults and bashing (and Betty shared emails for advice). I don't feel like she was treated fairly, either. Some of the insults and bashing was harsh (and only some removed) but those were not the people who got banned. Instead, it was the person who just didn't want to take snide remarks anymore and she raised her voice, making it appear as if she was the problem. She was pointing out the problem and got swallowed by it. The trouble makers had an uncanny way of wiggling out of it.

Enough said.

-----

SixGoofyKids, I know you are working hard and I don't know how much of this you saw as I can't assume the moderators all confer. Regardless, this is not about anything you have said or done. I appreciate your work here. I do home LymeNet grows in professionalism.

Good luck.
-

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MusicMan
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Well Betty [Smile]

You can always come visit us at LymeLand any time ya want. It's quiet and very peace loving.

Steve

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sixgoofykids
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Thanks, Keebler. I saw it all. There are two sides to everything, and mistakes made on both sides. It also came at a bad time ... with the new mods and all.

I hope she reconsiders once everything cools off.

--------------------
sixgoofykids.blogspot.com

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seekhelp
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I stil think BettyG will be back. Lymenet's the biggest stage in the Lyme world and she's the biggest Lyme advocate. [Smile] Time heals wounds.
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sixgoofykids
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quote:
Originally posted by Keebler:
-
Betty has asked me to say that she "will never return." She does not think the matter was handled fairly at all (by two of the many moderators) and that her concerns were not heard. Nor do I.

I just wanted to clarify that by two sides to every story, I was referring to this part of your post when I said that. [Smile]

I know you read the emails regarding the one issue. Also, you are free to pass on information about what happened from Betty's side. On the other hand, I can't tell the story from our side and destroy people's confidence in myself and the other moderators that we have discretion in keeping private issues private.

Even though there were emails you have read, you may not have read every correspondence, we don't know, and it doesn't matter. I am sure you didn't read the emails we received from other parties that Betty never saw. We were "moderating" and trying our best to be fair to all involved. Betty chose first to distance herself from the board, we agreed, especially when she took her grievances public.

I just want to be sure that people understand, the mods aren't perfect, we're just one of us, just one of the board members (sorry to burst some of your bubbles, some of you probably thought you were perfect, LOL!) and we're doing the best we can. It's a difficult job. Many of us are also dealing with illness, so get frustrated at times, just like you do.

In the end, there were differences, as you said. Everyone on every side thinks they were right. Everyone needs a break from the discussions, and that's what we're doing. Betty was not permanently banned. She needed a break and so did we. That's all. We've all been there in our own personal lives. Time to simmer down so we can discuss more clearly. That's all.

I'm sorry Betty got hurt. I can't really tell more about the whole story. I'm glad you're there for her and I hope that you can help her to calm down about it so she will come back in the future. She was a great asset to the board, gave many hours, and all of us would hate to lose her.

I hope everyone has a Happy Thanksgiving. I also hope this discussion can be put to rest .... we've had the answer to the original question. Thanks to you all for keeping within certain parameters so that we didn't need to edit or delete ... honestly, it's not as fun as seek thinks it sounds.

--------------------
sixgoofykids.blogspot.com

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joalo
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I did read what happened and I think the wrong person left lymenet. [rant]

Betty was very frustrated and was only trying to defend herself and ask for fairness. [shake]

What happened to her wasn't fair and it saddens me. I'm afraid she won't come back....

--------------------
Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006.

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sixgoofykids
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quote:
Originally posted by joalo:
What happened to her wasn't fair and it saddens me. I'm afraid she won't come back....

We weren't done negotiating .... she left ... we knew we had not reached an agreement between all parties

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glm1111
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Thanks Keebler for being so articulate and speaking up for Betty when she couldn't. You are a true friend.

As much as I would like to see her return, it would be like returning to an abusive spouse and I think she knows that the attacks could come again. She is a very wise woman. She knows she deserves better and I wholeheartedly agree.

Gael

--------------------
PARASITES/WORMS ARE NOW
RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS*

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Tincup
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"Betty has asked me to say that she "will never return."

If I had a nickel for every time I've said that ... oh my!

Or a nickel for each time I've heard others say that...

[lol]

And what I've learned after I exploded and said that is...

The problem wasn't with the members or the moderators... although at the time you couldn't convince me of that .....

Heck, a whole post of mine was deleted just last week by a moderator (you suck it up and get use to it and try not to do it again)....

Anyhow.. it wasn't them that was the problem.....

It was me.

I've learned that although I may THINK I am right and think that I'm right very strongly and sincerely ... sometimes I'm not.

And.. what the moderators say is the final word. No matter what, it's their baby and they are the boss.

I also figured out when things went bad what I needed was a time out to reflect ... and I've learned to take it. It does help.

I hope once BG has some time to think and gets some rest she will come back and be with her friends.

[Big Grin]

BTW- If BG has a desk top link to this site that she is using ... tell her to remove it and instead have her go to google and type in LymeNet... and go to the site that way.

That should allow her to see the comments and navigate the site if she can't already.

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

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joalo
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Thanks sixgoofykids for all of your effort and for being the "voice of reason". We appreciate you taking the time to explain things to us. [kiss]

--------------------
Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006.

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randibear
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good heavens, i'm glad i don't say i'm leaving!!!! LOL......

and my posts are ALWAYS within polite boundaries... uh huh....

besides ya'll know if you're mean to me, i'll cry...

--------------------
do not look back when the only course is forward

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lou
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My point was not that all the oldtimers I mentioned were banned, just that they left and had previously provided help to newbies. Having been on lymenet for ten years, when other oldtimers leave, I feel it personally.

The other thing is that ticks bite all different kinds of people, and when they come here, they bring a lot of different personalities. Plus, chronic illness, sometimes brain problems that affect behavior, and all the terrible problems lymies have in getting treatment....well it has got to show up sometime in anger and other destructive emotions. This is a website occupied by desperate sick people, and a few who are now better but have stuck around to help, out of the kindness of their hearts.

I have sometimes decided to write off lymenet, because it is repetitious and my situation seems unsolvable. But it is difficult to get support anywhere else. So, I am still here.

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just don
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Having never been banned,,,but info from others is they CANT read or come here at all when banned.

I thought there IP addy was blocked from accessing the site at all.

I read that last post of Bettys and didnt think it sounded like her at all,,,she was indeed stressed.

I said to myself,this post wont stay long,,,it didnt.

there was some bashing going on there,,at least accusing nature remarks

as to some of the old timers like me,,,some have died,,,like Joe Ham passed away a while back,,,if your wondering.

some have left voluntarily, some not,,,may they all find peace!!!

--------------------
just don

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Lymetoo
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Doesn't make sense that she can't get to lymenet.. maybe Tincup has the answer there.

--------------------
--Lymetutu--
Opinions, not medical advice!

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randibear
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i thought you can re-register using another name.

i'm really ignorant about these things, but when my computer crashed i just logged on differently when i got it working.

hmm, unless there's someway somebody can block your id thingy from getting access to it.

???

sounds like she needs a long break tho. it maybe good for her. you cannot put your entire life and soul into this board. at some point you have to crash and maybe this is what happened to her.

saw it at work a lot.

--------------------
do not look back when the only course is forward

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EllieP50
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I don't know what has gone on in this situation, and I haven't been involved in any of it in any way, but I do want to say that sometimes it's good to have change in viewpoint.

I began visiting this site when I was extremely ill with multiple rashes and neurological issues. I found it difficult to write coherently, but with effort, I wrote a post. I immediately got an email telling me to break the lines up and instructions for doing that (which at that time I couldn't even begin to follow) - I know people are effected differently, but I had extreme neurological issues (including Bell's Palsy,) and writing anything was difficult. In addition, in my case, breaking up the print into two lines at a time made it unreadable to me (once I'd get to the end of a line I couldn't track it if there wasn't anything there and couldn't skip lines - I'd lose the thread).

I felt as though I couldn't post at this site without getting criticized for the format and felt unappreciated when I made the huge effort to post and got a slap on the wrist and instructions to modify it (so that people with neurological issues could read it - I had neurological issues and couldn't read print with the lines broken up - there didn't seem to be any recognition that neurological problems can effect people differently.)

While I don't wish anyone to be hurt, and I'm sure that Betty G. did a lot of good, I think the site can benefit from a change in viewpoint and from realizing that it's important to let people who are having enough problems expressing themselves do it in their own way. I am much better at this point (although not problem free) and can deal with all of this better than I could initially. I have gotten valuable links etc. from this site,and a lot of information so I've appreciated it, but I will never forget how disconcerting that email was.

I hope to hear whether or not anyone else shares these feelings and had this experience. I know a lot of people have been helped, but I wonder how many people wandered away from this site because, of all things, criticism of the format and line spacing they used to post heartfelt problems. I am hoping that the moderators will think about this. I'm assuming that the emails that Betty G. sent out re: post format were approved by the moderators but I think it would be good to reconsider that policy.

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sixgoofykids
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quote:
Originally posted by EllieP50:
I'm assuming that the emails that Betty G. sent out re: post format were approved by the moderators but I think it would be good to reconsider that policy.

No, PM's, whether they be doctor list or instructions to break up a post are done privately, they do not get moderator approval or disapproval.

I'm glad you've made so much progress. [Smile]

--------------------
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springshowers
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quote:
I hope to hear whether or not anyone else shares these feelings and had this experience. I know a lot of people have been helped, but I wonder how many people wandered away from this site because, of all things, criticism of the format and line spacing they used to post heartfelt problems. I am hoping that the moderators will think about this. I'm assuming that the emails that Betty G. sent out re: post format were approved by the moderators but I think it would be good to reconsider that policy.
Your hoping to hear if anyone else shares your feelings. I do and had the same experience and tried to express that a few times in the past. Your not alone that is for sure.

I think the moderators will and are thinking about this subject but in the past there were no changes to this.

Your last comment about assuming moderators approve the emails and format requests etc. Well that is not true from what I heard. I think the requests were just from this person who felt this way and not directed by moderators. I am sure it was not something that was outwardly intended to affect people negatively, but I know it did so for many and many times over.

I feel that it does and will make a big difference, without those requests, for new people and for people in distress to express themselves without fear of that slap on the wrist. The problem was it did not feel like a request based on how it was written. Sadly just talking about this and asking for things to be said differently caused a lot of problems and was taken personally when it was not.

It was to benefit exactly those people like you and I and many others who experienced the exact same thing.

Sometimes its hard to see the other side of things and esp when your ego is hurt. We got to keep an open mind. And as someone above posted. There are times when it is Us who is the problem even when we do not want to see it. I have gone through a similar experience.

We are all human.. and we are part of the problem and should be part of the solution both..

I hope your post is heard as well.. I appreciate your honesty and your comments about this that will help others coming through this forum

Blessings...

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22dreams
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When I rec'd the same message, I didn't take it as a criticism. I don't think it was meant to be.
I think the emphasis is on how You felt.

I, myself, with the neuro symptoms more advanced later on could appreciate when ppl broke up the paragraphs.

otherwise, I still can't manage to read.
Which means that I could lose out or that I can't then share and someone else may lose out.

I remember someone, maybe her, asking me to use tinyurl to reduce the size of a link as it was making the thread incredibly Wide.

and for the life of me, I tried to follow the instructions that day--

couldn't manage coz of my severe cognitive hurdles. And I just stated that I was sorry, that I was not in a cognitive space to handle learning how to do that now.

On any given day, I wouldn't even have replied to the request because of lack of energy.

I eventually did figure it out one day. when I remembered to. [Smile]

So, if you can't manage, you can't manage.

I dunno. I just see it as etiquette is in place for a reason. different forums is like visiting a different culture.

You want to know the customs when visiting other countries to make yourself understood by the natives and make things easier for yourself too?

I realize some of us have psych and anxiety issues so something like could be perceived as pressure...etc...

Different take.

And if things change, and folks on Lymenet do start posting in whatever format they wish, I doubt I'd be able to continue to use it as a resource. Unfortunately.

The moving icons are difficult enough to contend with some days.

Posts: 571 | From Massachusetts | Registered: Oct 2008  |  IP: Logged | Report this post to a Moderator
sixgoofykids
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The compromise we reached regarding the format issue, because for many of us we cannot read unless it's broken up, is that there is now a sticky in seeking doctors.

If a new poster does not see it, someone can post or PM referring them there - something like, "I'm sorry, due to neuro-Lyme I cannot read your post. Please see this thread (link) for instructions on posting that make it easier for us neuro-Lymies to read."

It is information that needs to go to new members in order for them to get answers to their questions, but at the same time, we don't want to scare away new members, so we came up with a consistent way to pass on the information.

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sixgoofykids.blogspot.com

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randibear
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cool. good idea...

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do not look back when the only course is forward

Posts: 12262 | From texas | Registered: Mar 2007  |  IP: Logged | Report this post to a Moderator
sixgoofykids
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Thanks. [Smile] These are the ideas and compromises we have been working on.

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sixgoofykids.blogspot.com

Posts: 13449 | From Ohio | Registered: Feb 2007  |  IP: Logged | Report this post to a Moderator
Lymetoo
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Six.. your PM box is full!

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--Lymetutu--
Opinions, not medical advice!

Posts: 94530 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
lou4656
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Six -- I just spent 45 minutes writing a detailed message to you -- and your box is full and now my message has disappeared.

UGH!!!

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LouLou

Posts: 1276 | From maryland | Registered: Oct 2006  |  IP: Logged | Report this post to a Moderator
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