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» LymeNet Flash » Questions and Discussion » General Support » Man in wheelchair counsels others - his LD "too late to treat"

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Author Topic: Man in wheelchair counsels others - his LD "too late to treat"
22dreams
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Man in wheelchair counsels others to overcome handicaps

By JILL WHALEN (Staff Writer)

Published: December 13, 2009

In the span of just a few years, Brian Lang went from walking on his own to needing a cane, a quad cane and then a walker.

He's now in a wheelchair.

Although multiple sclerosis robbed him of the use of his legs, it's not stopping him from helping others. The Hazleton man meets with others who are disabled in hopes that they'll find a level of independence they're comfortable with.

"I know what (disabled) people are going through," said Lang, of Hazleton.

As a peer mentor for the Anthracite Region Center for Independent Living, Hazleton, he visits handicapped individuals who are in nursing homes to let them know they can be mostly self-sufficient in their own home or apartment.

"It's very rewarding work," he noted.

Lang has been in a wheelchair since 2005, a few years after doctors diagnosed him with multiple sclerosis. He was also diagnosed with Lyme Disease that year, a disease that's spread through bites from deer ticks.

"I was an avid archery hunter," he said, guessing he probably was bitten during one of his hunting trips.

While he knows now that he likely had Lyme Disease for years, doctors didn't diagnose it until about five years ago - after it was too late to treat.

Lang said doctors said symptoms of both diseases can be similar, and told him they believe his multiple sclerosis is probably overriding the Lyme Disease.

Despite treatment, which came with what Lang called "terrible side effects," Lang eventually was unable to walk.

read more here

Posts: 571 | From Massachusetts | Registered: Oct 2008  |  IP: Logged | Report this post to a Moderator
Robin123
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Some Lyme patients are going to New Delhi, India for stem cell injections and reversing their multiple sclerosis symptoms and their inability to walk.

The LymeTimes, published by CALDA, did a feature on this in their winter 2009 magazine issue.

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blinkie
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Yeah, what doctors are telling him it's too late to treat? That's baloney. I suspect these are not LLMD's, they would never say such a thing.

Is there a way to contact this guy and give him a LLMD referral?

Posts: 1104 | From N.California | Registered: Jan 2008  |  IP: Logged | Report this post to a Moderator
lpkayak
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sometimes it is too late...my mom had demetia so bad she wouldn't undertand the pain of herxes

more than one well knwn llmd couseled me it would be torture for her with minimal improvemert

but it doesn't sound like that for this guy

at a minimum seems he couel make buhner tea and start real slow so it doesn't interupt the life he is comfortable with

or-like i did when i had to work-pulse...treat on fri, sat, sun and stop tx on mon-thurs or whatever days he goes out

the misinforation and ignorence out there is horrible

--------------------
Lyme? Its complicated. Educate yourself.

Posts: 13712 | From new england | Registered: Feb 2004  |  IP: Logged | Report this post to a Moderator
   

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