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» LymeNet Flash » Questions and Discussion » General Support » can we talk about S-E-X ?

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Author Topic: can we talk about S-E-X ?
MDW005
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I have not seen any posts about this little word.

Is it forbidden? If it is please forgive me. I will make this short and sweet.

Ever since I have had lyme this little word has been a big issue in my relationship.

Between the fatigue and the pain the interest is gone.

When you get well from lyme ... does the desire come back?

I stopped having a cycle when I was 40, but the dr.

says I'm not in menapause. Could lyme have
caused this?

--------------------
God's promises mean you always have something wonderful to look forward to.

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TnFlowerChild
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"Our" get up and go has got up and went...too!

"We"(fella & I) do HOPE it gets better after we start treatment and get to feeling better!

Our 1st LLMD appt is in April...

Cause??? I don't know, but "fatigue & pain" says a whole lot... takes away the desire to do much of anything!

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ladycakes
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The first time I was sick, it was an issue for sure. I was tired, and in pain, and very much not interested. It does come back, at least it did for me. This last relapse though, I can't leave the poor man alone. Weird how that works.

As for your other questions, I really don't know.

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sutherngrl
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S-E-X has left the building!
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MDW005
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I wish it could be like old times.

My youngest daughter (24) says "eewww" old people
(i'm 48) and parents don't do "THAT" anymore.

Thanks ladycakes.

--------------------
God's promises mean you always have something wonderful to look forward to.

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Florence1
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At my first LLMD appointment she asked my husband and I what birth control we used.....I looked at her and said "LYME".......my husband chuckled she said ok and carried on........thats the last thing on my mind right now.......

--------------------
Oct 09 Positive CDC Western Blot
Jan 10 Positive Babesia Duncani
Jan 10 Cd57 28
Mar 10 EBV, IgM, IgG
HHV-6 IgG

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Keebler
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-
The body has to prioritize in order to stay alive. Energy is needed for basic functions and sex (often) just takes too much energy from what the body needs to survive.

There are still many ways to enjoy intimacy and touch. It's one thing for sex to have to take the back burner but you never need to deny being close, being touched or giving and sharing various levels of intimacy in quieter ways.

Touch is still vital. Babies die without touch. Never make the mistake of giving up touch just because sex is on a hiatus. It is important for clear communication around all this regarding expectations - but never, ever give up touch. Too bad so many think it has to be followed by sex.

A professional massage can also be very nice to let our body feel touch - without any expectations.

Adrenal support can help but should never be used to push beyond energy supplies. There's hope: when the body is not functioning solely in a survival mode, all systems will work again.
-

[ 03-17-2010, 04:42 PM: Message edited by: Keebler ]

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randibear
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what's sex?

--------------------
do not look back when the only course is forward

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sixgoofykids
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If you're in pain, it's actually a great remedy. Pain and pleasure have an inverse relationship, sooo if you have a patient partner willing to work to get you interested, then you at least feel better for a little while.

I never was in the mood, but if my husband worked with me a bit, I was always glad I didn't just say no.

--------------------
sixgoofykids.blogspot.com

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17hens
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I agree with Six. In the beginning, feeling so badly, I wasn't interested for sure.

Then when feeling bad started to feel normal, I could find a spark now and again.

Then I found that when the spark led to sex, I actually felt pretty good the next day. It seems to stop the electrical, tingly feeling which is a great relief and give me a little burst of energy!

I say, on a good day, try it...you'll like it!
Maybe you'll like it enough to try it again on a bad day [Smile]

--------------------
"My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26

bit 4/09, diagnosed 1/10

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massman
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6goofies - are you saying tat if we have it all the time [Eek!] we would not hurt at ALL [confused] [kiss]
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sixgoofykids
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I guess that might be what I'm saying, massman! Actually, I think it would steal too much energy. [Smile]

--------------------
sixgoofykids.blogspot.com

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Lymetoo
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quote:
Originally posted by massman:
6goofies - are you saying tat if we have it all the time [Eek!] we would not hurt at ALL [confused] [kiss] [/QB]

Hey, now there's an idea!! [lol]

--------------------
--Lymetutu--
Opinions, not medical advice!

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TnFlowerChild
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I'll have to share these thoughts with the other half- especially yours, massman!!! I think he'll apprecite the logic!! & 17hens too!

The mind is willing, but the body is weak! But it would put us both in a better mood for sure! [Smile]

MDW - my GYN finally agreed that I'm in "Men-o-pause" only because my bloodwook said so - same age [Smile] - My fella wants to build a box for me to sit in in front of the air exchange so I can heat the house during my "power surges!"

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MDW005
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When I saw my GYN last year he said the blood work

says peri-menapausal... this year, same tests
show nothing ???

--------------------
God's promises mean you always have something wonderful to look forward to.

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TF
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Lyme certainly can cause a false menopause. It did it to me. And, I know others also. Look at the list of lyme symptoms in Burrascano's lyme treatment guidelines, and you will notice "menstrual irregularities" as one of the listed symptoms. False menopause falls under that.

Good lyme treatment got everything reversed for me.

I lost the ability to respond to sexual stimuli thanks to lyme. I believe it had to do with it attacking me gynecologically as it did.

If you want the details of all it did to my body gynecologically, write me privately. It was a whole lot, and it was bad.

And, the loss of periods for at least 7 years thanks to lyme most likely contributed to me having osteopenia now. (They always record on the bone density test that I went 7 years without a period.)

I did not produce any estrogen during this time. That has a lot of bad effects, including loss of protection of your bones.

I went on hormone replacement therapy during that time. The gyns all believed I was in menopause. And, I went to quite a few trying to get rid of this "menopause from hell." My ovaries became very, very small.

Finally, an endo I visited said, "This is not menopause" and tested me for lyme disease. Bingo. I thank God for that doctor to this very day.

Just want to say that lousy lyme treatment did not get me back to the pre-menopausal state. It took very good lyme treatment to correct this problem. The doc that got me well followed the Burrascano lyme treatment guidelines. My 2 previous lyme docs did not.

You will be thrilled to see all your symptoms reverse and you going back to a normal person. But, the doc is the key.

It has now been 5 years since I completed my lyme (and babesiosis and bartonella) treatment, and I am still symptom-free, enjoying my life.

I do nothing to stay this way--no meds, supplements, etc. But, I don't smoke or drink. That is very important.

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ping
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Ok, back to the sex talk now... No more men-pawzing. [dizzy]

I found it interesting that Pam W. talked about "hypersexuality" as a sx of Lyme. Many pts I've talked with report this, as opposed to loss of libido. [woohoo] (Which they also say sex is about the only thing they enjoy... [woohoo] )

[ 03-18-2010, 03:00 PM: Message edited by: ping ]

--------------------
ping
"We are more than containers for Lyme"

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Elaine G
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Hormones, get those hormones checked out. [bow]

Sex and TBD is great if the hormones are balanced, in my opinion. Everybody needs that release and that close feeling from sex.

I also think that sex helps the relationship of the TBD person and the well partner.

Bio identical hormones works for me and I'm 64 !!
[woohoo] [woohoo]

Not bragging, just happy to have the hormones in balance so I can enjoy this beautiful part of my marriage and life. It helps my mental outlook also.

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map1131
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Wonder when my hyper sx is going to start. My hubby would be very happy happy with that sx?


Maybe Tiger Woods has lyme and his #1 sx is hypersexuality?

Pam

--------------------
"Never, never, never, never, never give up" Winston Churchill

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Topaz
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Sex? What is that??
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emla999/Lyme
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quote:
Randibear said:

what's sex?

quote:
Topaz said:

Sex? What is that??

I don't know what it is either but I have been told that it is almost as good antibiotics!!! [Big Grin]


.

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dmc
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Libido does come back...sex is fun again.

Hang in there...my husband & I had the same jokes and sadly weren't joking. [Wink]

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ThatColorGreen
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I never had a sex drive until after my picc line treatment.

I'm almost 25 years old and was afraid that if I didnt want to have sex now, i probably never would.

After 7 months of intense abx and supplements, I am delighted to say I started having a sex drive [Smile] and all my stuff is functional! [Wink]

might be TMI, but i know how scary, upsetting and frustrating this part can be.

So know that it IS possible.

and i went at least 16 years undiagnosed with lyme and friends.

<3 <3 <3
~Green

--------------------
...trying to be the coffee bean, not the egg.

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ThatColorGreen
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quote:
Originally posted by 17hens:


I actually felt pretty good the next day. It seems to stop the electrical, tingly feeling which is a great relief and give me a little burst of energy!

I say, on a good day, try it...you'll like it!
Maybe you'll like it enough to try it again on a bad day [Smile]

having an orgasm releases endorphins and the natural morphine in your body. that explains the 'after effects' [Wink] [Wink]

~The green one

--------------------
...trying to be the coffee bean, not the egg.

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treepatrol
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Sex and Lyme Disease

By Robert C Bransfield, M.D.



How does chronic Lyme disease affect sexual functioning, and how can it be treated? Lyme can affect sexual functioning by its effect upon the central nervous system, the endocrine system, the autonomic nervous system, the peripheral nervous system, and/or the body.

It is well recognized that Borrelia burgdorferi (Bb) causes depression, obsessiveness, panic disorder, and phobias that are functions of the emotional aversive pathways of the brain. However, we can also see dysfunction of the reward pathways as well, which affect capacity for pleasure, feeding, bonding and sex. Since Lyme disease alters the aversive pathways which affect what and who we are repelled from, it is understandable that Lyme can also alter sexual attraction and behavioral patterns as well. With this in mind, I shall begin with some patient accounts and observations.



Sexual arousal:

Most patients report a decline in both libido and overall sexual functioning. Some state that their interest in sex and sexual functioning remain normal while a few report increased libido. One such patient described a greatly increased libido, but was frustrated because the multitudes of chronic Lyme disease symptom made it painful to be touched and/or hugged. Others describe increased libido associated with hypnagogic hallucinations. A patient with this symptom was described in the medical literature two years ago. She displayed sexual obsessions, sexual hallucinations, and a tendency to compulsively masturbate in a dream-like state eighteen hours per day if left undisturbed.*

Some patients develop an obsessive compulsive disorder with sexual obsessions, compulsions, intrusive images, and vivid dreams following the onset of chronic Lyme disease. Of particular interest, a few patients report a change in the content of sexual imagery. A change to more violent sexual themes is sometimes noted. This, in turn, sometimes altars sexual behavior.

Could Borrelia burgdorferi or other infectious diseases sometimes alter sexual orientation or contribute gender dysphoria, or altered patterns of sexual arousal? There is evidence that sexual functioning is altered by a number of other parasites, including Wolbachia, Spiroplasma, Rickettsia and Microsporidia. When Bb infections begin in childhood, are there some cases where it may have an effect upon sexual development? Is infectious disease one of the many factors that may affect sexual development? When changes in sexual imagery occur in adults, most are upset by the changes, which result in a decline of sexual interest. However, there are times when some individuals act out these fantasies.

*Stein Sara L., MD. Et al, American Journal of Psychiatry 153:4, April 1996, Clinical Case Conference ``A 25- Year-Old Woman With Hallucinations, Hyper sexuality, Nightmares, and a Rash.''



Fertility:

Patients complain of infertility with surprising frequency. Is infertility more common in chronic Lyme disease patients?



Atrophy of genitalia:

A few patients who have been infected for over ten years report atrophy of the genitalia. Males have reported atrophy of

the penis and testicles, a change that is reversed by IV antibiotics. Females report lack of vaginal lubrication, painful intercourse, and anorgasmia. One female patient reported atrophy of one breast.



Anesthesia of genitalia:

On occasion, some patients complain of a loss or sensation of the genitalia. I have also seen this symptom in a few chronic fatigue patients.



Orgasm induced migraine headaches:

Although uncommon, this is seen in chronic Lyme disease patients.



Lymphocytoma of the nipple:

This has been reported In Europe, but I have never seen such a case in my practice.



Menstrual irregularity:

A common symptom in about 50% of menstruating patients.



Breast swelling, tenderness, and lactation:

Some patients complain of this symptom.



Premenstrual Syndrome:

There is a significant tendency towards worsening of the chronic Lyme disease symptoms in the premenstrual period.



Besides these symptoms associated with Lyme disease, there are many other symptoms which indirectly affect sexual functioning, i.e. - fatigue, chronic pain, depression, paranoid, hyper vigilance, mood swings, low frustration tolerance, temper outbursts, apathy, etc. These mood symptoms often alienate their partners. It is no surprise that many chronic Lyme disease patients report marital discord.



Treatment
A well-planned treatment approach for chronic Lyme disease can help the overall prognosis, thereby possibly helping any of these symptoms. The treatment of sexual dysfunction is one of the last frontiers in medicine. Three new drugs for male erectile dysfunction are approaching approval for marketing. The first will be Viagra, developed by Pfizer. Loss of libido and a loss of sexual functioning are treated by a number of methods Testosterone treatments are sometimes effective for loss of libido in both men and women. Dopamine agonists such as Wellbutrin and Parlodel are also used as treatment modalities.

More interesting than the treatment of sexual dysfunction is the question - can some individuals with abnormal patterns of sexual arousal be treated with antibiotics?

--------------------
Do unto others as you would have them do unto you.
Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.

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Starfall1969
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I have been almost asexual for the past about 2 years (I was dx'ed a little over a year ago). Hubby was despairing of ever having his wife back.

About a month ago, I was starting to feel a lot better, and LLMD took me off Rifampin (which, unfortunately, only lasted a month).

SInce then my libido has definitely returned, and I can definitely think about it again.

Granted, we don't actually have sex anymore (we have birth control disagreements--I can't be on any kind, and docs are all Catholic so they won't prescribe anyway. Hubby wants me to get tubes tied, I told him to get himself fixed. I want to do NFP, but he doesn't trust it...), we just do the heavy petting stuff.

But for the past 2 weeks, it's just been unreal how interested I am--we had activity twice in one week. That hasn't happened since before the kids were born!

Unfortunately, after the last round, the next day I had a serious relapse of sx that hasn't gone away.

I had to restart Rifampin, and I'm still not feeling right; in fact today is downright discouraging because I'm back to neuro sx I haven't had in a long time.

So yeah, there is hope for a return to the "S" word, lol.

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capecliff
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Hi all, I am new to the community, and LD... I think. I have been having excruciating headaches on the right side of my head for the past 4 weeks, Dr's all gave different diagnoses, finally last week my GP ordered blood test and it came back with positive Lyme Titer... I don't recall ever being bitten by a tic, had no rashes that I am aware of, and am puzzled by the timing... being outside of tic season here on Cape Cod, perhaps this is not a new infection, I just don't know... Other than the sudden relentless headaches and some general malaise, I don't have any other symptoms. I am just now digging into all the Lyme web resources and am SO thankful I found Lymenet.org! It appears to be a bountiful source of information and support.

My question as it relates to the S-E-X topic is: I have read several websites that claim Lyme is transmittable through intercourse http://www.canlyme.com/sex.html. That seems to contradict what I am reading in this thread, which is basically - if able go for it... And the CDC site says it is NOT.
The last thing I would ever do is put my wife in jeopardy, so I was wondering if someone could give me the latest data or general community consensus on this. I must assume it is NOT transmittable, but don't want to even consider without inquiring first. Thank you in advance, I look forward to contributing to this awesome community.

--------------------
I was introduced, quite by chance to a rather surly, very curly little fella that goes by the name of Lyme... He must go - be it slow - as I'm not so happy with this little chappy, but it appears that it will take time...

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map1131
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I don't have data. Someone will come along with it. Just wanted to say....better safe than sorry.

Oh yeah, the CDC has been wrong before.

Pam

--------------------
"Never, never, never, never, never give up" Winston Churchill

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MDW005
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treepatrol, thankyou... your post was so enlightening, there was so much of me in your post. It is scary.

Diane

--------------------
God's promises mean you always have something wonderful to look forward to.

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Keebler
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-
capecliff,

Yes, lyme can be sexually transmittable.

The "go for it" in this thread is seemed to be a discussion among established lyme patients who have already taken the proper precautions.

Actually, I wondered about that at the start - every thread should have detail for those brand new to lyme.

So, yes, indeed - lyme can be sexually transmittable. And lyme is definitely a major concern in pregnancy regarding the health of both mother and baby.

So, Yes - Precautions are advised. Safe sex is important until one reaches a point in treatment when the LLMD says it's okay if one has the energy. Often, both partners are treated for lyme.

Still, with safety measures in place, and all other matters of energy considered, closeness is still possible. It may not be as it once was - or will be again - but closeness and the whole world of nurturing touch has many levels and is really what it's all about, anyway.

Even with "safe sex" - the physical energy required is often just not safe for a patient. Lyme is very taxing and rest is the rule rather than the exception in the first many months of treatment.

There are many past threads on this topic. You can search in the subject line here:

http://flash.lymenet.org/scripts/ultimatebb.cgi/ubb/search/search_forum/3
-

[ 03-23-2010, 01:30 PM: Message edited by: Keebler ]

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capecliff
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Hi Keebler,

Thank you for the reply. I should have done a search prior to my post, but the bottom line is I got the answer I was looking for. I very much appreciate your taking the time to point out the nuance of this particular thread. It makes sense that this is a discussion amongst responsible established Lyme patients contemplating a very challenging topic.

I'm just overwhelmed at this point by all I've read on Lyme, and it seems so nebulous on so many fronts... I'm scared sh*tless to be honest, and now my families safety is a concern, as is our sex-life. There is a chance based on my test results that mine was a false positive, but I am not going to hang my hat on that until my Cipro is completed and I am re-tested, and even then it appears that Lyme can hide so well, I don't know if I'll ever rest assured of anything.

I am certain that this forum is a valuable resource and it's members are providing a great service to those that are new to Lyme such as myself. Mucho appreciated!

I feel like I have just scratched the surface in regard to understanding this disease, and again I thank you for your crystal clear answer to my question.

--------------------
I was introduced, quite by chance to a rather surly, very curly little fella that goes by the name of Lyme... He must go - be it slow - as I'm not so happy with this little chappy, but it appears that it will take time...

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Keebler
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capecliff,

So I did not have to ask so many questions, I tried to find some history of your tests, etc. but I see that your only two posts are in this thread. So . . . here goes.

Re-testing is not as reliable as one might think. Lyme is not at all like any other infection in this regard. Success will not really measured along the way with blood tests. It comes with how a patient feels.

But, I think I hear you saying that you are thinking you might not even have lyme and expect a second test - if negative - to confirm its absence. If another test is negative, it still cannot rule out lyme. Now, you may not have lyme but it would be best determined by a seasoned LLMD (lyme literate medical doctor).

Are you seeing an ILADS-educated LLMD? It does not sound like you are if your doctor thinks retesting after one round of abx will give you a definite answer -as - sadly, it will not.

There really are few false positives. A new case of lyme, if treated right away, should be treated for at least 30 weeks, according to one LL author. That seems to be the minimum.

Also, you should be assessed for other TBD (tick-borne disease - or tick-borne infections - TBI is a term for Traumatic Brain Injury so we use TBD).

What kind of test did you have? Which lab?

I assume you were/are having symptoms. Did you EVER have a bulls eye rash after a tick bite? Not every does and there are other kinds of rashes but a bulls eye is clear for lyme.

Now, I understand being scared beyond belief - so take a few minutes and just do that. Then, see if you can turn that around to taking a big breathe. First, I hope you have or can get to an experienced ILADS-educated LLMD. After that, self-care needs to be excellent but if you have a good doctor, that is 70 % of the way to success.

And, if you turn out to not have lyme (which would be so nice) . . . well, then you will have learned so much about prevention for yourself and all those you know and love. This is all stuff we should have been taught long ago.

=============

www.ilads.org

ILADS
============

www.igenex.com

IGENEX - testing for all tick-borne infections

(Fry Labs is also good for some tests.)

=============

http://www.ilads.org/lyme_research/lyme_articles4.html

Lyme Disease: Two Standards of Care

=============

This explains WHY you need an ILADS-educated or ILADS-member LLMD:

www.clinicaladvisor.com/Controversy-continues-to-fuel-the-Lyme-War/article/117160/

CONTROVERSY CONTINUES TO FUEL THE "LYME WAR" -

========================

As you are on abx (antibiotic), are you also taking Probiotics and some sort of liver support such as Milk Thistle?

Magnesium and Fish oil are also key.

If you want more detail, you might post a new thread over in medical. You could even copy and paste part of your above post if you'd like.

With Cipro, be very careful about over stretching the tendons in your legs. Take it easy.

Good luck.
-

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Keebler
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Not at all about lyme but, perhaps, of some help in understanding libido differences:

http://www.randomhouse.com/catalog/display.pperl?isbn=9780767920100

The Female Brain - by Louann Brizendine, M.D.

-------
http://www.randomhouse.com/catalog/display.pperl/9780767927536.html

The Male Brain - by Louann Brizendine, M.D.

-------
Here's a article from CNN today:

http://www.cnn.com/2010/OPINION/03/2

Love, sex and the male brain

- By Louann Brizendine, Special to CNN - March 24, 2010
-

[ 03-24-2010, 07:41 PM: Message edited by: Keebler ]

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randibear
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well after having my gallbladder one year, total hysterectomy the next, hospitalizations for pneumonia practically every dang year, i just flat out lost all interest.

not even gerard butler would do me any good.

i'm too tired, too much pain, and i hate this fat old body. i look in the mirror and just cry.

nope, you have to like your body before you can expect somebody else too. that's my opinion.

just down, sorry.

--------------------
do not look back when the only course is forward

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Keebler
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Randi,

Your body is a reaction to illness. Please don't judge yourself so harshly. If you had other injuries you'd likely be more accepting.

If we take the very best care of ourselves as we can (and that includes the right and even obligation to enjoy good, healthy foods). And, if our bodies are inflamed, swollen or weak from the illness process, we need even more self-love, not less.

And then, it matters not what anyone else thinks. I actually feel very free finally accepting what I just call a "puffy" body because I know I'm doing the best I can. Sure, if I ever conquer lyme, I hope to also then feel lighter on my feet. Still, in the meantime, I refuse to be made to feel bad about myself because Hollywood says we should all be the size of starving preteens.
-

[ 03-24-2010, 09:30 PM: Message edited by: Keebler ]

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MDW005
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The saying in my house is "ewes not fat, ewes
fluffy"

Diane

--------------------
God's promises mean you always have something wonderful to look forward to.

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gridmonster
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I had sex once. I was terrified, I was all alone.

Rodney Dangerfield

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Pinelady
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LOL. I agree with the endorphins theory.

I wish they would bottle it where it don't make

you see blue, can give you a heart attack, or give

you something that takes hours to get rid of....

--------------------
Suspected Lyme 07 Test neg One band migrating in IgG region
unable to identify.Igenex Jan.09IFA titer 1:40 IND
IgM neg pos
31 +++ 34 IND 39 IND 41 IND 83-93 +
DX:Neuroborreliosis

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MDW005
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just wandering if anyone has read the Female Brain, keebler mentioned above.

I think I will go to the library on Monday and see if they have the book.

--------------------
God's promises mean you always have something wonderful to look forward to.

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Starfall1969
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I had to return to this thread and re-read it. Over the past month I have had a complete reversal of whatever was going on before.

I have gone from being completely asexual to I swear thinking about it all the time.

We're definitely more active than we have been, but I still can't stop thinking about it.

It scares me, but I'm afraid to say anything to the LLMD or my gyno about it. I'm afraid they'll try to give me somethng that will screw me up again.

And of course I feel guilty because I've taken to fantasizing about a certain celebrity---which my church says is SIN.

What I wouldn't give to just be normal again.....

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Keebler
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Even "normal" people have sexual patterns that ebb and flow. And, scientifically, it's quite normal to fantasize. It's the way our neurons work. Like dreams from commercials or TV shows, our brain has to process images and they can pop up at odd times.

i'm not a sex expert, but as long as you don't obsess or otherwise mentally intrude regarding a "certain celebrity" it sounds like normal human nature as we are bombarded with images that get into our brain's memory bank to process. Our brain is very literal. Just wants picture.

You might try reframing a "brain image" of an anonymous model from a magazine ad to work out any intrusion issues for an actual identifiable person.

Or get some really cool photo of your partner. The brain actually has an easier time grasping onto pictures than the real thing sometimes. Paintings even are more likely to make an impact on our brain's neurons than a photo. At least for being able to visualize a place in nature and spark the imagination.

Still, you might get your hormones checked. An adjustment may be in order.

Also realize that lyme is a very neurologically stimulating infection. The brain is on overdrive. Adrenal and stress hormones are all over the map and that affects sexual functions in a myriad of ways, keeping us guessing and surprised at times.
-

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randibear
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i don't know what that is!!!

and whatever it is, i ain't got it!!!

--------------------
do not look back when the only course is forward

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Joyful
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"If you're in pain, it's actually a great remedy. Pain and pleasure have an inverse relationship, sooo if you have a patient partner willing to work to get you interested, then you at least feel better for a little while."

I like this! ^

I haven't read the whole thread...I got through the first half and will go back and read the second half in a little bit here.

I have nothing to compare to because I've had Lyme longer than I've been having sex...BUT my sex drive is high. Higher than the hub's in fact. (where's the embarrassed smiley face???) We've never had trouble in that area...

maybe it's due to my lyme??? I had never heard that before...

--------------------
I praise you because I am fearfully and wonderfully made...
Psalm 139:14
http://confessionsofalymie.wordpress.com/

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MDW005
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Well, I think I will have to give in soon. Partner has gone way too long and getting depressed and starting to drown self in the beer can. I will try and psych myself for an intimate evening and poof it's gone before I make it to the shower.

--------------------
God's promises mean you always have something wonderful to look forward to.

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Keebler
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Not talking about the "mood" going poof - but physical ability here:

Never wear yourself out as that is not good, either. If your body does not have the energy or is not able to maintain endurance, you could be further damaging your body. Do not overexert. There are many ways to enjoy intimate time together.

And, adrenal support should be considered.
-

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Remember to Smile
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quote:
Originally posted by Florence1:
At my first LLMD appointment she asked my husband and I what birth control we used.....I looked at her and said "LYME".......my husband chuckled she said ok and carried on...

[lol]
LOL! From the mouths of sick Lymie babes...
Smile

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MDW005
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Oh my gosh! I felt that feeel good feeling today.

Don't know why, just happened for no reason [Smile]

I had forgot what that sensation was. Hope it lasts till this evening. Sorry if TMI. It's just been years.

--------------------
God's promises mean you always have something wonderful to look forward to.

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Starfall1969
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MDW005, I hope it hangs around for you too.

In fact, I wish I could send some of my feelings your way.

This is almost comical now--hubby and I have almost reversed roles. I'm ready, willing and able all the time, and it's getting too much for him.

We actually took a chance last night and did the deed (sorry if TMI); even though I was in the mood, it took a long time. Now today hubby doesn't feel all that well.

Lol, and he said if anything comes of our activity, it better be a girl. No worries there...

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Starfall1969
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[lol] [lol] [lol]

In fact last night when we were busy, I said to hubby, "Don't worry, I won't be posting this on Facebook."

BUT, here I am posting it on lymenet.


[lol] [lol] [lol]

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Keebler
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New to lyme ? It can be sexually transmitted.

This is a topic intended to share medical information that includes sexuality as part of the human experience . . . it was mentioned in an earlier post, however . . . for those popping in here at this point and those who are brand new to lyme education, be aware:

Lyme can be transmitted with intimate contact. Protection for one's partner is extremely important and this should be discussed with your LLMD so that everyone can be safe.

Some LLMDs treat both partners.
-

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lymie_in_md
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It's definitedly come back for me. I've had urges as strong as a 20 something again. I guess the term a bull in China shop might be appropriate. [lol]

I suspect sexual desire is associated with zinc. I supplement with this mineral based on lack of it in food. It's also a mineral associated with the KPU protocol. So if a man's zinc level is normal then testorone levels are normal.

I guess with women, not soooo simple. Libido is more of a hormonal issue, so there is no simple remedy like there is for males.

--------------------
Bob

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MDW005
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Keebler,
Is there a real high percent of lyme being transmitted to your partner? I agree with you about protection...very important.

What about oral? Is the danger still there? People do the, ummm you know... the lock jaw kissing, are they susceptible to lyme also?

--------------------
God's promises mean you always have something wonderful to look forward to.

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Starfall1969
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Okay, showing my stupidity here---what is lock jaw kissing?
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MDW005
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Sorry starfall... french kissing

--------------------
God's promises mean you always have something wonderful to look forward to.

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Keebler
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MDW,

any intimate contact that exchanges bodily fluid can pose a risk and, yes, that would include oral sex. As for kissing, different researchers say different things so it's best to have a matter of fact discussion with one's partner and your LLMD. Ask for research your LLMD may have from several sources.

Some research on this suggests that spirochetes can even pass through a condom. But I'd want to read what several researchers think about that and see the actual report. You can find that with a search of past threads in the archives.

However, even for those who don't think kissing can pass along lyme, if there is a cut or any bleeding gums for either or both love birds, that can increase the risk. It's very common for any person at any particular time to have a small cut in the mouth - even from certain foods or vigorous flossing - and bleeding gums are more common with lyme.

Biting one's mouth or tongue during a meal happens at least a few times a week - for most people. Some foods also can tear at the lining of the mouth.

Also, since lyme patients often have other chronic stealth infections, this discussion needs to consider the full range.

Love - and sharing love and touch - can be a wonderful thing. But both partners deserve to be fully informed of risks so that precautions can be considered or behavior altered. The advice of one's LLMD is best in these matters but I know not everyone can afford to secure good medical care or even treatment.

I'm sure no one with lyme would wish that on anyone whom they love. And, it can bounce back and forth from partner to partner so it can interfere with treatment success as not all abx cover everything at every time. Also important are the viruses that seems to piggy-back. Abx will not affect those at all.

More about such things as the viral infection HHV-6 (frequent for lyme patients) in the thread below.

=======================

In addition to the usual coinfections from ticks (such as babesia, bartonella, ehrlichia, RMSF, etc.), there are some other chronic stealth infections that an excellent LLMD should know about:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=069911#000000

TIMACA #6911 posted 03 August, 2008

I would encourage EVERY person who has received a lyme diagnosis to get the following tests.

- at link.
-

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MDW005
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sheezz, So lyme is shared with partner like Aides?

--------------------
God's promises mean you always have something wonderful to look forward to.

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brandilb
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I was always told to keep your man happy! I really don't think that he would be has supportive as he is if he wasn't getting a little in return. You just have to find your comfortable position...also I found that a glass of wine can help [kiss] Good luck MDW

--------------------
Without music, life would be a mistake.
-- Nietzsche

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sickpuppy
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Wine? What! Don't you have alcohol intolerance like the rest of us? Don't you know drinking fuels lyme and candida? Yikes.

This is a long thread. I couldn't read it all. I feel enough like a contaminated corpse. The jury is out on sexual transmission--there is no proof and there's no agreement on the subject.

SO. My mojo is gone. My period has stopped now. My relationship is not easy. If you can spread lyme through sex or kissing, I've already done it. IT'S TOO LATE. I worry about it all the time. My husband doesn't take it seriously. These are not sexy thoughts.

I have a damaged hip due to lyme so I doubt sex will ever be pain free. I don't even feel like eating, why would I want to have sex? Uhg.

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Keebler
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Brandilb,

It's true that alcohol is to be totally avoided. You may not yet have read the self-care guidelines so, here's that link - it's good to read the whole section so that you have the best chance possible for remission.

http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf

Dr. Burrascano's Treatment Guidelines (2008) - 37 pages

Sections regarding self-care:

See page 27:

CERTAIN ABSOLUTE RULES MUST BE FOLLOWED IF LYME SYMPTOMS ARE TO BE PERMANENTLY CLEARED:

. . .

3. Absolutely no alcohol!

. . . .
------------

Also see pages 31-32 for advice on a safe, non-aerobic exercise plan and physical rehabilitation.
-

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Keebler
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-
http://consults.blogs.nytimes.com/2010/05/28/can-oral-sex-spread-herpes/?hpw

May 28, 2010

Can Oral Sex Cause Herpes?

By THE NEW YORK TIMES

Excerpt:

. . . Yes. Oral sex is a common way to transmit the herpes simplex type 1 virus from an individual's mouth to the genital tract of a partner. Up to 50 percent of new genital herpes infections are caused by HSV-1. . . .
-

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brandilb
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Generally all wine is gluten free, but it is best to check with the manufacture to make sure that there are no glutinous additives incorporated
into the wine and to also ensure that they were stored in gluten free storage tanks. Some wines are aged in barrels that once contained
another substance that could have held a glutinous product. This is rare, but can happen. Also you will want to avoid Wine Coolers. Wine Coolers are NOT Gluten Free, because they contain barely malt.

--------------------
Without music, life would be a mistake.
-- Nietzsche

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brandilb
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Thank you Keebler, I will read trough it... any info helps. A glass of wine is rare for me but I have noticed that it can help. Also my LLMD says that caffeine will help my headaches and I'm taking migraine meds with caffeine in them. Starting to wonder about the Dr.

--------------------
Without music, life would be a mistake.
-- Nietzsche

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Keebler
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Brandi,

Alcohol will not help. It may numb you but it will not help you get over lyme.

It's the alcohol that is so damaging. Yes, most LLMD suggest being gluten-free but alcohol is to be avoided for many other reasons regarding the liver, brain, glucose stability, etc.

Even one glass can derail treatment and set one back weeks - or even cause permanent liver damage by combining with meds and lyme toxins. The liver is damaged by lyme and very stressed. Alcohol can cause a rise in porphyrins and that can kill cells. Period. That is never good. Our liver is our life line, literally.

Please read through these pages.

===================
http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf

Dr. Burrascano's Treatment Guidelines (2008) - 37 pages

Sections regarding self-care:

See page 27:

CERTAIN ABSOLUTE RULES MUST BE FOLLOWED IF LYME SYMPTOMS ARE TO BE PERMANENTLY CLEARED:

. . .

3. Absolutely no alcohol!

. . . .
------------

Also see pages 31-32 for advice on a safe, non-aerobic exercise plan and physical rehabilitation.

=================

It's very important to have this book as a reference tool for self-care and support measures. It answers so many questions in detail that is impossible here.

http://tinyurl.com/6lq3pb (through Amazon)

THE LYME DISEASE SOLUTION (2008)

- by Kenneth B. Singleton , MD; James A. Duke. Ph.D. (Foreword)

You can read more about it here and see customer reviews.

Web site: www.lymedoctor.com
-

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MDW005
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Thanks Keebler,

I never liked mixing alcohol with intimite time.
I do follow the absolute NO alcohol rule.

--------------------
God's promises mean you always have something wonderful to look forward to.

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brandilb
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There is no evidence that Lyme disease is transmitted from person-to-person. For example, a person cannot get infected from touching, kissing or having sex with a person who has Lyme disease.

--------------------
Without music, life would be a mistake.
-- Nietzsche

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Keebler
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-
Brandi,

There are several researchers who strongly suspect that lyme can be sexually transmitted. Their work is very interesting.

Bottom line is that it IS possible and - even if we don't have all the information for an absolute "yes" or "no" - it would be entirely irresponsible to have intimate contact with another without sharing all we know about ourselves regarding this matter, letting them read from various researchers on the subject and then discussing with our LLMD the safest way to proceed.

We'd all hate to see anyone else have to deal with this. Some LLMDs do assess both partners and advise accordingly.

Especially important for women of child bearing age, lyme and other tick-borne infections can be transmitted during conception (possibly from either partner) and through throughout pregnancy. With care, that can be avoided - or at least treated when it occurs so that the baby is not born with lyme - or at least properly monitored and treated.

There are other infections to be aware of regarding intimate contact. We don't know everything about the range of stealth infections that many lyme patients encounter - but we know enough to be considerate and to be safe - for ourselves and those we care about. Conversation never hurts but illness sure can.
--------

http://flash.lymenet.org/scripts/ultimatebb.cgi/ubb/search/search_forum/1

Archives - to search for past threads here at LymeNet
-

[ 05-29-2010, 06:26 PM: Message edited by: Keebler ]

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brandilb
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I guess I'm just confused...there are so many sites and articles to read I don't no which ones to believe.

--------------------
Without music, life would be a mistake.
-- Nietzsche

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ThatColorGreen
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quote:
Originally posted by MDW005:
just wandering if anyone has read the Female Brain, keebler mentioned above.

I think I will go to the library on Monday and see if they have the book.

I loved it. It takes you from development to post menopause. I esp liked the chapter of the 'teenage brain', haha.

When I get some 'free' time, I want to get her 'male brain' book.

--------------------
...trying to be the coffee bean, not the egg.

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ThatColorGreen
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quote:
Originally posted by brandilb:
There is no evidence that Lyme disease is transmitted from person-to-person. For example, a person cannot get infected from touching, kissing or having sex with a person who has Lyme disease.

...**cough**...
yea.... many a LLMD hold such evidence.
Dr. K has a good ppt up citing other physicians and researchers that have evidence also.

and again, as has been stated before, it doesnt make sense that syphilis is sexually tranmistted and lyme isnt.

and one must also have an open mind (as so many of us want our PHYSICIANS to have) that ANYTHING is possible..... espcially concerning microbes and the human body.

--------------------
...trying to be the coffee bean, not the egg.

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Starfall1969
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Just another S-E-X question here:

Does anyone knw if Rifampin affects sex drive in any way? Sometimes my med schedule gets messed up and I end up taking my Rifampin before bed instead of midafternoon like I usually do.

What I've noticed is that if I take Rifampin before bed and we have any kind of activity, the mood just suddenly fizzles right in the middle for me.

I don't know if it's just coincidence, or if there's something to it.

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MDW005
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Starfall... not sure, I have never been on Rifampin. Maybe you can take it after your activity, then see if it's the medication, or lyme enterfering.(sp?)

--------------------
God's promises mean you always have something wonderful to look forward to.

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buzzsflybox
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As for the Riphampin question,,,,,,I had almost NO libido prior to Riphampin. Now I have NONE.

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5 yr. Vet. of the Lyme war. Helping and sharing are now my only objectives.I have nothing to sell & I no longer interfear with things I cannot control. But, I have learned many good things from my affliction & am a better person for it.

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MDW005
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How do we turn this into a second page? getting too long

--------------------
God's promises mean you always have something wonderful to look forward to.

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Starfall1969
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MDW, I thought it automatically went to a second page after a certain number of responses, but I guess not...
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