posted
Went to see Dr. J on Monday, had a great visit. Other than some lingering left sided neuro weakness, all other physical issues seemed back to normal.
Dr. J believes he has recovered & has said he can stop the antibiotics. We are watching him for any symptoms returning, he said if they do return, they should within the month.
If symptoms return, he'll begin antibiotics again.
My son did complain of feeling "dizzy" for 2 days after stopping, also complained of not feeling good. But now, he seems better. Think it was just because of stopping the antibiotics?
Anyone else experience that when stopping?
Fingers crossed that my lil' one is truly better. Can't believe how far he's come in just 10 months.
When we went to Dr. J.... my son was very sick. He vomited almost every day, (he only weighed 60 lbs), he limped when he walked, he was losing his vision.
Today he never vomits and now weighs a healthy 75 lbs, he runs like the wind, and he hasn't had any visual problems since last summer.
Thought I'd share our success story.... God is great.
-------------------- Mom to a 5 year old lymie.... Taking it one day at a time. Posts: 182 | From Ipswich, MA | Registered: Jul 2008
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
What wonderful news for you and your son. To think that this wonderful doctor has been dragged down such an awful path lately is so disheartening.
Then to read your post....Dr J is lead by a higher power.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6489 | From Louisville, Ky | Registered: Jan 2002
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posted
Hi Pam... We spoke to Dr. J about the recent ruling. Had a very good conversation & despite all, he's determined to continue to fight. My eyes welled up with tears a few times while talking with him.
What he continues to go through to help children afflicted with lyme is nothing short of heroic....
My lil' one hugged him before we left and I thanked him for all he does, for all the kids. But thank you can never be enough...
-------------------- Mom to a 5 year old lymie.... Taking it one day at a time. Posts: 182 | From Ipswich, MA | Registered: Jul 2008
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posted
Songbird - When they stop the antibiotics do they just do it cold or taper off slowly?
And do they continue with any supplements at all?
So happy to hear of your families success, hope we can say the same in a few months!!
Posts: 448 | From minnesota | Registered: Feb 2010
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joalo
Frequent Contributor (1K+ posts)
Member # 12752
posted
That's awesome news!!
-------------------- Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006. Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007
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We had my son seen and treated by the same Dr too and my son has been off abx for 5 months now and still doing well! We did however taper off slowly after 18 months of abx. My son was not as ill as yours was but my gut instinct was to make sure to hit all the co-infections pos. tests or not.
We have my son on the very limited Cowden protocol and some supportive supplements to keep his immune system up! I still give him pro-biotics just not as many months after abx. I think it is a good idea as the gut has 70% of our immune system in it and abx destroys a lot of that good flora.
Now the way I went about my son getting off abx was not something the Dr. we speak of is into but I followed my instinct with what I thought was best. I would think that being on any meds. would give us some type of dependence and that is why I opted to wean off slowly. It is so good to hear another sucess story and I am sure you are more then thrilled to see you child be healthy again.
Posts: 476 | From Columbus, Ohio | Registered: Aug 2007
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Always great to hear that there is light at the end of the tunnel........
Posts: 648 | From northeast | Registered: Feb 2009
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momintexas
Frequent Contributor (1K+ posts)
Member # 23391
posted
Great news!
Posts: 1408 | From Tx | Registered: Nov 2009
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Great News!
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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Jane2904
Frequent Contributor (1K+ posts)
Member # 15917
posted
Songbird,
I am so happy to hear the wonderful news.
Hugs to you and your son, Jane
Posts: 1357 | From Massachusetts | Registered: Jun 2008
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posted
Stacy, very encouraging to hear that your son is still well too. I plan on continuing with the probiotics, probably forever, lol. I do believe they are a good thing.
And Jane, thanks so much. Betting your daughter isn't far behind in her recovery. : )
-------------------- Mom to a 5 year old lymie.... Taking it one day at a time. Posts: 182 | From Ipswich, MA | Registered: Jul 2008
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posted
Songbird: Thank you for sharing your success story. How wonderful for your son. I hope Dr. J's magic will have the same result for our family too. Posts: 15 | From princeton, nj | Registered: Feb 2010
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