LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » General Support » WBZ-TV 4/14 broadcast "Doctors Divided on Tx of Lyme..."

 - UBBFriend: Email this page to someone!    
Author Topic: WBZ-TV 4/14 broadcast "Doctors Divided on Tx of Lyme..."
22dreams
LymeNet Contributor
Member # 17846

Icon 1 posted      Profile for 22dreams     Send New Private Message       Edit/Delete Post   Reply With Quote 
Click here to view the video on this 2-minute broadcast on the news last night (over to the right).

Thank you to Trish & Donna and Dr. Cameron for their willingness to be interviewed. Thank you for all you do~

http://wbztv.com/local/lyme.disease.treatment.2.1633722.html


Doctors Divided On Treatment Of Lyme Disease

STURBRIDGE (WBZ) ―

Trish McLeary's Sturbridge home is surrounded by green ribbons.

They are part of her crusade to raise awareness about Lyme disease; a tick-borne illness that she says nearly killed her.

"In June of '06, I woke up and within hours I was completely paralyzed," she said. "I couldn't walk. I couldn't talk. Couldn't feel, move or
speak."

McLeary doesn't recall a tick bite, or a tell-tale bulls-eye rash, so she was not thinking Lyme. And neither were the emergency room
doctors.

"We went from hospital to hospital being told, 'We don't know what to do with you,'" she recalled.

Several doctors suggested it was all in her head.

ANOTHER CASE

Donna Castle of Ayer faced similar confusion when her daughter got
sick.

The news she got from doctors was even more horrifying.

"She saw three doctors. The third one diagnosed her with ALS," said
Castle.

Doctors told Castle that her daughter would be in a wheelchair in three
months, and dead within a year.

NEW DIAGNOSIS

After seeing dozens of doctors, both McLeary and Castle's daughter, who
did not want us to use her name, were diagnosed with chronic Lyme
disease.

They were given months of IV antibiotics.

"I could see I was getting my life back," said McLeary.

"She was walking up stairs better, talking, less confused," Castle
remembered. "It was like a miracle."

SEEKING TREATMENT

Boston has some of the best doctors in the country, but long-term
antibiotic therapy is so controversial both families had to go out of
state to find a doctor to prescribe it.

That is because the treatment is not recommended by the Infectious Disease
Society of America.

Doctors from that agency don't believe the treatment works.

"The concept that Lyme disease germs can be lurking in one's body open
endedly... just hasn't been resonating," said Dr. Mark Pasternack, an
infectious disease specialist at Massachusetts General Hospital who
supports the IDSA position.

RISK OF SIDE EFFECTS

The IDSA is also concerned because of the risk associated with lengthy
courses of antibiotics.

IV sites can become infected, and there is concern that the patient
would develop a resistance to the drugs.

Then, if they come down with bronchitis or a kidney infection, it could
become difficult to treat.

That's why the IDSA guidelines call for just 30 days of treatment.

Doctors who prescribe outside those guidelines could be cited by the
state medical board.

NOT GIVING UP

Trish McLeary insists doctors know what's best for their patients.

"Cancer doctors treat cancer, and they treat it how they need to for as
long as they need to. Lyme doctors should be left to do the same," she
said.

Several other states do offer protections for doctors.

Physicians in Connecticut, Rhode Island, New York, and New Jersey are
all protected from any kind of sanctions from their medical boards.

WORKING WITH LAWMAKERS

Massachusetts lawmakers are rewriting a similar bill here.

Dr. Daniel Cameron is a Lyme specialist from New York who treats dozens
of Massachusetts patients.

"Getting a bill like this offers doctors more of a comfort that they can
practice without having the state looking over their shoulder," he
said.

But Dr. Pasternack is one of the many doctors urging lawmakers not to
pass it.

"Passing laws regarding the practice of medicine is kind of just a bad
concept," he said.

FOR HER KIDS

Trish McLeary believes this controversial treatment is the only reason
she is alive today, and she wants to make sure it is available to her
teenage sons who both tested positive for Lyme.

"The Lyme community is just getting too big," she said.

Cost of treatment is another big issue.

Insurance does not cover the cost of treatment so McLeary and Castle had
to pay thousands out of their pockets.

The IDSA believes that's just another reason why doctors shouldn't be
prescribing it.

The International Lyme
Disease Association is the organization that supports the use of
long-term antibiotics.

Posts: 571 | From Massachusetts | Registered: Oct 2008  |  IP: Logged | Report this post to a Moderator
mtree
LymeNet Contributor
Member # 14305

Icon 1 posted      Profile for mtree     Send New Private Message       Edit/Delete Post   Reply With Quote 
ditto on the thank you's....

[hi] mtree

--------------------
worrying about tomorrow takes its strength away from today

Posts: 968 | From Point PLeasant , NJ | Registered: Jan 2008  |  IP: Logged | Report this post to a Moderator
RDaywillcome
Frequent Contributor (1K+ posts)
Member # 21454

Icon 1 posted      Profile for RDaywillcome     Send New Private Message       Edit/Delete Post   Reply With Quote 
Great Job! Thank you.
Posts: 1738 | From over the rainbow | Registered: Jul 2009  |  IP: Logged | Report this post to a Moderator
22dreams
LymeNet Contributor
Member # 17846

Icon 1 posted      Profile for 22dreams     Send New Private Message       Edit/Delete Post   Reply With Quote 
up

watch the video~

Posts: 571 | From Massachusetts | Registered: Oct 2008  |  IP: Logged | Report this post to a Moderator
lpkayak
Honored Contributor (10K+ posts)
Member # 5230

Icon 1 posted      Profile for lpkayak     Send New Private Message       Edit/Delete Post   Reply With Quote 
this surprises me-about MA i mean-isn't there a llmd in boston?

--------------------
Lyme? Its complicated. Educate yourself.

Posts: 13712 | From new england | Registered: Feb 2004  |  IP: Logged | Report this post to a Moderator
22dreams
LymeNet Contributor
Member # 17846

Icon 1 posted      Profile for 22dreams     Send New Private Message       Edit/Delete Post   Reply With Quote 
You have to realize that Boston is IDSA/Steere-Central. and MDs here are scared b/c their licenses are under threat.

My LLMD who followed Dr. H's protocol was forced to stop treating lyme last year. Her practice lasted all of 8 months or so before she came under scrutiny.

the type of treatment that patients with advanced cases need (IV or IV more that 4 wks) is not within reach.

Unfortunately, this is a disease for the rich or for those who have assets or a credit to draw on. It's the same everywhere. But to me it's almost worse, because it's considered to be Highly Endemic historically.

Our schools and universities have programs where they test ticks outside MA (i.e. NH) but they're not monitored here in the same way. It makes no sense.

Meanwhile, I live in the city and have ticks in the shrubbery lining the concrete sidewalk that infected me.

makes absolutely no sense.

Posts: 571 | From Massachusetts | Registered: Oct 2008  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.