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» LymeNet Flash » Questions and Discussion » General Support » My bank account has never been this low. This disease is taking all my money

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Author Topic: My bank account has never been this low. This disease is taking all my money
BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725

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I am a single woman, no one helps me. I spend about $600 a month out of pocket for med bills each month. I work full time, have a crappy insurance that covers practically nothing. Also working on removing my 18 amalgam fillings bc I have Mercury issues too..this is too much pressure.

Anyway, just venting [Frown]

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First Symptom 9/09
Multiple docs, negative Labcorp test
LLMD: 1/10
Positive Igenex/CDC test
Treatment 2/10
2/10-8/10 Amox, ceftin, zith, flagyl
Currently: Bicillin, Minocycline, still dealing with severe breathing issues

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Posts: 1121 | From New York, New York | Registered: Dec 2009  |  IP: Logged | Report this post to a Moderator
TnFlowerChild
LymeNet Contributor
Member # 24717

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I'm with you... it stinks! I don't know what I would do without my Bob and his help...

Vent away.... @#$#@**&&%*([email protected]@$!!!

Woo.. that helped me!

Posts: 236 | From Jackson, TN | Registered: Mar 2010  |  IP: Logged | Report this post to a Moderator
BackinStOlaf
Frequent Contributor (1K+ posts)
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it's so hard because I saved up money for years - I lived at home until 29 yrs old to save up. I am turning 31 next month and all that money is dwindling away because a bug bit me!! !!

--------------------
First Symptom 9/09
Multiple docs, negative Labcorp test
LLMD: 1/10
Positive Igenex/CDC test
Treatment 2/10
2/10-8/10 Amox, ceftin, zith, flagyl
Currently: Bicillin, Minocycline, still dealing with severe breathing issues

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Posts: 1121 | From New York, New York | Registered: Dec 2009  |  IP: Logged | Report this post to a Moderator
LightAtTheEnd
LymeNet Contributor
Member # 24065

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I'm in a similar spot, except with nothing saved up, I will shortly have to move back home in order to afford to have this illness.

If you're in a mood to look for something positive about it (and I sure can't blame you if you're not), be glad you had some money available when you needed it.

It's not fair, though. This little bug comes along, and poof! all our plans for our lives, gone up in smoke.

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Don't forget to laugh! And when you're going through hell, keep going!

Bitten 5/25/2009 in Perry County, Indiana. Diagnosed by LLMD 12/2/2009.

Posts: 756 | From Inside the tunnel | Registered: Jan 2010  |  IP: Logged | Report this post to a Moderator
BackinStOlaf
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Yes Light- I see what you are saying.

I just signed a new lease for my apt and my brother moved back home so no more space for me

--------------------
First Symptom 9/09
Multiple docs, negative Labcorp test
LLMD: 1/10
Positive Igenex/CDC test
Treatment 2/10
2/10-8/10 Amox, ceftin, zith, flagyl
Currently: Bicillin, Minocycline, still dealing with severe breathing issues

 -

Posts: 1121 | From New York, New York | Registered: Dec 2009  |  IP: Logged | Report this post to a Moderator
kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691

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I'm really sorry. I can't imagine how hard it would be to be by yourself in this situation.

My daughter is the one who has lyme in our family, and my husband works two jobs to pay for everything.

We are hoping that we can get her well in the next five years so that he can slow down a little.

This disease takes so much from families. It stinks!!

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symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections.

Posts: 1468 | From Tennessee | Registered: Dec 2009  |  IP: Logged | Report this post to a Moderator
BoxerMom
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Member # 25251

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My credit card debt is over $50K because of this dumb illness. Oh, and I have student loans and a mortgage and all the other regular bills.

I told my husband last week that we live like children. We don't participate in life like adults. No vacations, hobbies, parties, friends. No extra money = no fun at all.

He said, "We don't live like children, Honey. Children have fun. We live like indentured servants."

Seriously, we work and pay bills and treat Lyme.

What a blast.

Oh, and we hit our 40s before getting diagnosed, so we probably don't get to have kids.

This disease is beyond devastating.

But we have to keep treating. Getting our health back is step #1 to getting our lives back.

Keep going...

--------------------
 - Must...find...BRAIN!!!

Posts: 2867 | From Pacific NW | Registered: Apr 2010  |  IP: Logged | Report this post to a Moderator
Robin123
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This is why I think it's important to tell anyone who's still well what's going on, because not only will they have to deal with the physical difficulties but also the financial ones as well.
Posts: 12929 | From San Francisco | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
John S
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I would try more aggressive treatment, but knowing I would bankrupt my family keeps me from it.
Posts: 743 | From New York | Registered: Apr 2009  |  IP: Logged | Report this post to a Moderator
sparkle7
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Member # 10397

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John S - you don't really know that more aggressive therapy would even work...

I don't know if it's worth "betting the farm on" - so to speak. Been there, done that...

---

I worked for over 25 years & I'm in the same predicament. I tried to get disability but I was denied 2 times. I just didn't want to fight it anymore. My diagnosis went from Fibromyalgia to Lyme. I don't know which is worse in regards to getting any disability.

After a point - I don't know what a person does. We just have to try to find joy from different things than what was normally expected.

It's very difficult. This illness ruins alot of people's lives & plans.

Posts: 7772 | From Northeast, again... | Registered: Oct 2006  |  IP: Logged | Report this post to a Moderator
John S
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Yes, I realize that, but it would be nice to try pulsing IV for a year.
Posts: 743 | From New York | Registered: Apr 2009  |  IP: Logged | Report this post to a Moderator
abbyjo
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Member # 16073

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Boxermom, I could not have said it better!

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abbyjo

Posts: 243 | From Southern CA. | Registered: Jun 2008  |  IP: Logged | Report this post to a Moderator
BoxerMom
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Thanks, abbyjo!

This is a financial ranting thread. Share your rant! I want to know!

And it's surprisingly therapeutic.

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 - Must...find...BRAIN!!!

Posts: 2867 | From Pacific NW | Registered: Apr 2010  |  IP: Logged | Report this post to a Moderator
littlebit27
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I completely get it. My husband and I work together, so we have one income. We have two kids with us full time, but have 5 total together. I'm the sick one, and thank God the only sick one right now.

Don't know what we'd do if more of us was sick, it's hard enough with just me.

I do thank God though that I got sick after my husband and I started working together because if he had still be working for his old boss I never would have been able to been seen or tested in the first place. There is no way we could have afforded it.

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*Brittany Lyme Aware on FB*
http://littlebithaslyme.wordpress.com/

Posts: 2310 | From Southeast | Registered: Feb 2010  |  IP: Logged | Report this post to a Moderator
Geneal
Frequent Contributor (5K+ posts)
Member # 10375

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Money come and with Lyme.....money goes quick!

I hate to worry about finances.

I really have to work on Letting Go and Letting God.

Even after the loss of our house to Katrina (where we lost everything including our jobs),

God never left us without shelter over our heads.

If I had to say what is more important....

Treatment of my whole family or a new car...

Treatment will win everytime.

So will our collective health.

Prayers of comfort to you.

Venting is always good.

My Mom always told me that you measure your riches in the people who love you.

While at this moment I have under $40.00 in my bank account

Which has to make it for another 5 days,

I am rich beyond belief in love and friends.

Hoping for easier days ahead for you.

Hugs,

Geneal

Posts: 6250 | From Louisiana | Registered: Oct 2006  |  IP: Logged | Report this post to a Moderator
   

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