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» LymeNet Flash » Questions and Discussion » General Support » How much did you spend on lyme treatment already

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Author Topic: How much did you spend on lyme treatment already
feelbetter
LymeNet Contributor
Member # 21957

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I have spend like 4000 dollars already on those doctors vistiong and test...etc.

I have read people here do all kinds of treatment or even travel to Germany to do the Bionic treatment,I just can't afford it..

Most of us are very sick and don't have a job,so who pay those money for you..?my husband starts to complain already..

Posts: 158 | From pittsburgh | Registered: Aug 2009  |  IP: Logged | Report this post to a Moderator
bcb1200
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I'm upwards of $6000K as of now. My monthly totals average about $400 / month in meds / supplements / follow up dr visits.

The 3 months that I was "undiagnosed" were expensive with numerous tests. I met all of my in network and out of network deductibles.

I work full time.

--------------------
Bite date ?
2/10 symptoms began
5/10 dx'd, after 3 months numerous test and doctors

IgM Igenex +/CDC +
+ 23/25, 30, 31, 34, 41, 83/93

Currently on:

Currently at around 80% +/- most days.

Posts: 3101 | From Massachusetts | Registered: May 2010  |  IP: Logged | Report this post to a Moderator
jkmom
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I haven't added it up, but I would guess tens of thousands. I recently did see our medical budget should be $2,000 per month for supps, trips, doctors, etc.

We've been doing this for almost 3 years.

My husband has a good job and isn't sick. Most of this money is for our daughter's medical care, but some of it is mine.

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Kerryblue
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Hi, I have spent more time,money$$$,travel,over many yrs. that I could even begin to count, NOT to GET WELL, arghhhhhh Not happy camper been in huge flair & not well of late or much sleep so excuse my negativity at this moment.
Huggggssss,To all in Need,Kerry

Posts: 746 | From Clearwater/fl/Pinellas | Registered: Jun 2003  |  IP: Logged | Report this post to a Moderator
momindeep
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Tens of thousands and STILL counting!
Posts: 1511 | From Glenwood City WI | Registered: Jul 2005  |  IP: Logged | Report this post to a Moderator
Robin123
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Probably half a million was spent on UNDIAGNOSED Lyme. That's why I say it is a lot cheaper to get recognized in the first place, including for insurance companies.
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Tammy N.
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I'm in the neighborhood of about $125,000++ and counting. Beyond frustrated. Still not well. Wish I could get that money back and have a "do-over". So much wasted money on useless doctors.....
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Forgetfulgirl123
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Probably a bit more than 100,000 now. It's been 4 years. We probably spend more than 25,000 a year.
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Lymetoo
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moving to General Support

--------------------
--Lymetutu--
Opinions, not medical advice!

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fflutterby
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OH my God, I am terrified....we dont have that kind of money, What happens to people like me? On medicaid, and not working???????

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Psalm 46 1 God is our refuge and strength

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mbdq
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This year we have spent 20-25k so far on treatment and supportive therapies.

Health insurance has paid 50k+ in addition to our expense.

Terrifying....

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AlanaSuzanne
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Yes it is terrifying. Flutter, try to find the best doc you can and have a conversation with him/her. And also speak with the office manager. See if you can get on some kind of modest payment plan. Ask in advance how much a medication is and stick with generics/those covered by medicaid.

Ask your family members for help. That can be a mixed bag depending on your family, but it doesn't hurt to ask. Maybe they don't fully understand your situation so think about having a discussion with them.

You might also consider applying for disability. Then medicare would kick in I think in 2 years.

Also try and do things for yourself that are inexpensive like epsom salt baths and eating right. If you post a topic asking this question, you're bound to get a lot of replies.

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You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face. You are able to say to yourself, 'I lived through this horror. I can take the next thing that comes along.'

---Eleanor Roosevelt

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missing
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Me, my husband and my daughter all have Lyme.

It is costing us around $4000 per month on meds alone.

I am not sure if we will ever have insurance.

I have to work a full time job to pay for it all.

Each day is torture.

Then we have to pay for appointments, tests and flights down to see the doctor.

That's around $20,000 so far this year, plus add in those meds, and if it continues to be this expensive, we are looking at a total of $70,000 per year!

I knew I was sick 2 years ago, but they just told me that all my symptoms were depression, then they said it was a headache in my body!

How stupid!

It may not take long for my husband and daughter to get well, but it's been a year for me and I still feel like absolute crap.

I crash into bed as much as I can. I end up crying alot because I have to do so much and I feel so sick all the time.

I hope that you find help somehow. I don't know how people manage the costs at all.

I read an old post here about ideas of how some people survive, or how they've had to sell everything,,,,etc. etc.

[group hug]

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I am not a doctor. I have no clue.

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fflutterby
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My doctor only charges $100 per month. I am not that sick right now. I do not have to pay for travel since my doctor is only an hour from me.

He knows my financial predicament and says he will keep that in mind. I think I can work, at least part time so that will help.

I am not sure how I will feel once he gets more aggressive. I am seeing him Monday.

My family is super supportive but not rich either.

Will medicaid cover the generic medicine, long term?

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Psalm 46 1 God is our refuge and strength

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Misfit
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fflutterby...I was told by a couple of doctor's offices that I called that it's illegal for that doctor to allow you to be a self pay if he doesn't have a contract with medicaid.

I'm on medicaid myself...so no treatment for me. I'm having to do the best I can with supplements and diet. I have seen improvement. I know I'm not "curing" myself, however.

I'm hoping to get my body in optimum "fighting" condition. Let it do its' job.

I'm not advising you to do this, just what I've been doing since I'm kinda in the same boat you're in. And it's sinking...

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sixgoofykids
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I was spending $20-25,000 per year on travel to my LLMD (airplane), rental car, hotel, doctor visits, supplements, meds, etc.

My insurance paid for most of my meds, I had really good coverage there, but for nothing else.

That was for almost 2 years.

Then I went to Germany and spent about $13,000. That was the last of what I spent except for supplements that I continue to take .... I took supps before I got sick, and will always take them.

So, roughly $60,000 total. I don't know how much insurance covered ..... but I was taking 3 bottles of Mepron per month and only paying $25, and that wasn't the only med I was on!!

My husband is not sick and works. My dad paid for Germany.

--------------------
sixgoofykids.blogspot.com

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LSG Scott
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A Lot

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LSG Scott

Posts: 486 | From Boston, Cape Cod, Mass | Registered: Aug 2009  |  IP: Logged | Report this post to a Moderator
kidsgotlyme
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This thread could send some people into a panic attack!

I think the most important thing to do when you are facing financial crisis is to just think about one day at a time.

If I start thinking about long term, I literally can't breath.

We have always been able to get what we need for my daughter when she needs it. Always!

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symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections.

Posts: 1469 | From Tennessee | Registered: Dec 2009  |  IP: Logged | Report this post to a Moderator
   

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