First I want to thank all of you who have expressed prayers and concerns for me in the past month since I had a brain tumor removed. I haven't been up to getting on the computer much and have had a bit of trouble using it, though it is coming back to me now. I did read all your messages even though I couldn't answer them all, and they really meant a lot to me.
Second, I saw my brain surgeon today, and my tumor is malignant. There is still a small piece in my brain. I am going to have 6 weeks of radiation and chemo 5 days a week to try to get rid of that. Then I will have an MRI every 3 months to check to make sure it doesn't grow back. The prognosis is very good.
I am doing very well right now. I am healing very well from the surgery, and I have minor damage to part of my eyesight and some high level verbal abilities, memory, etc. All but the eyesight is coming back a little each day as I use it. My doctor says I may get back part of the eyesight in time. I am getting excellent treatment and therapy, and I have the most amazing amount of emotional support from family and friends that has completely blown me away. That is what has made the biggest difference for me, to be able to stay positive about this experience.
Some of you also sent me private messages that I read but couldn't answer. Please know that I appreciated them very very much.
I am all ready to go fight this thing, and I'm going to win. I guess I'll kill some Lyme as well, while I'm out there being a gladiator, LOL.
Thanks again,
Light
-------------------- Don't forget to laugh! And when you're going through hell, keep going!
Bitten 5/25/2009 in Perry County, Indiana. Diagnosed by LLMD 12/2/2009. Posts: 756 | From Inside the tunnel | Registered: Jan 2010
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posted
i dont know what to say. but the prognosis is good..you're getting great treatment and have family support..and you sound like you have a positive attitude on top of it all!
i will continue my prayers for you and family and physicians.
thank you for the update. and yes..you WILL win!
Posts: 624 | From Oklahoma | Registered: Jun 2010
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Light at the End,
I'm so sorry to hear of this news. I'm not very eloquent in this kind of thing - saying the right thing and all but I do wish you the very best and most positive experiences possible during this treatment.
Now, I'm assuming that your doctors have told you to avoid using a cell phone, or use a hand held one and never carry it on your body. The MRI/CT images from cell phone use are stunning here.
I hope that all brain cancer patients are being instructed about this. But, the speakers told of the CDC trying to cover up information and keep it from the public.
I saw this excellent lecture on BookTV this past weekend. Dr. Davis told of a young woman who had an ongoing severe headache and it turned out to be caused by her cell phone.
The lecture had some amazing images (MRI or CT scan, or similar). The proof is in the images - the heat/radiation really invades the blood brain barrier, and targets soft tissue of the head.
Even when not turned on, where a cell phone lays against the body can damage tissue several inches into the body.
You can watch that here - be sure to see the part with the MRI/CT images: ----------------
posted
Yikes.. I'm so glad you found out what was wrong and that you are getting the help and support you need. It would be nice if Lyme patients got real support too, wouldn't it!
I hope the radiation and chemo works great and that you will kill keets at the same time!!
Please keep us posted on your progress as you are able.
Hugs and Love...
Lymetoo
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96109 | From Texas | Registered: Feb 2001
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MDW005
Frequent Contributor (1K+ posts)
Member # 22706
posted
Hi lightattheend, I am not very eloquent with words either, just know I am thinking of you and praying. Please keep us informed of your well being.
-------------------- God's promises mean you always have something wonderful to look forward to. Posts: 2150 | From Georgia | Registered: Oct 2009
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dmc
Frequent Contributor (1K+ posts)
Member # 5102
posted
You will be in my thoughts & prayers.
On a positive note - I have a relative who had brain cancer too. It was 3yrs ago, he licked it & now doing well.
Never lose hope. Posts: 2675 | From ct, usa | Registered: Jan 2004
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Dear lightattheend,
You are a brave and inspirational person.
I will continue praying for you.
Your positive attitude and faith will make all the difference.
I am thankful to hear that your prognosis is good and your family and friends have been very supportive.
You will beat this!!!
My son-in-law (now 33 yrs old) had a malignant brain tumor when he was 14 yrs old. He also went through it all....surgery, radiation and chemo...and he made it.
Never lose hope, never lose faith, and bask in the love of those who hold you dear.
I look forward to hearing how you are doing in the days ahead, when you are able to post.
Lord, please lay your healing hands on lightattheend, and heal her from cancer and lyme disease.
Please give her the strength she needs to make it through the coming months of treatment.
Lord, all powerful and everliving God, please grant lightattheend peace in knowing that You will see her though this.
Please restore her to good health, and fill her with faith, hope and love.
I ask this in the name of the Father and of the Son and of the Holy Spirit. Amen
Isaiah 41:10 (NIV) So do not fear, for I am with you; do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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Jane2904
Frequent Contributor (1K+ posts)
Member # 15917
posted
Best wishes for your recovery.
Hugs, Jane
Posts: 1357 | From Massachusetts | Registered: Jun 2008
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kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691
posted
Thoughts and prayers are coming your way.
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
My very best wishes Light. You're already a warrior...so just keep doing what you know how to do!
You sound like you are in a very good place emotionally and that can make all the difference.
Will continue to hold you in thought. Best to you in your recovery to full health.
xx, Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
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Bless your heart. I'm lifting up prayers for you, dear.
I'm sorry that your post-surgical news was not better news. I know firsthand how difficult it is to go through a frightening surgeries and then to have to digest unwanted news from one's surgeon. I've been where you are.
I also understand firsthand how overwhelming it can be to have Lyme and all the co-infections, have to go through surgeries, and also have to juggle a cancer diagnosis in midst of it all. . .
just the thought of adding, yet another doctor, to one's roster (an oncologist and more) and then have to add on more treatments and drugs can feel beyond overwhelming.
It's a very difficult road and it takes courage and determination.
I'm here to tell you that it can be done. You will get through this!
Posts: 503 | From Maryland | Registered: Oct 2007
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posted
Praying for you.
Posts: 581 | From CT | Registered: May 2008
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Tricky Tickey
Frequent Contributor (1K+ posts)
Member # 26546
posted
Don't give up & keep fighting!!!!
-------------------- Early Disseminated LD- 2010. Currently doing acupuncture and yoga. Negative Igenex (IND & Pos Bands) ISSUES AFTER: Tendonitis, letter reversal, Low immune system. PREVENTION:SaltC,Iodine,Humaworm, Chiropractic. Posts: 1013 | From In a van down by the river. | Registered: Jun 2010
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