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» LymeNet Flash » Questions and Discussion » General Support » other children with lyme

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Author Topic: other children with lyme
annissa
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Member # 29371

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I was wondering what symptoms other children are having from lyme. My son is 5 and was recently diagnosed, we believe he is late stage.
Posts: 4 | From indiana | Registered: Nov 2010  |  IP: Logged | Report this post to a Moderator
julielynne4
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My children all have different symptoms, but here are some of them: chronic ear/throat/sinus infections, light/sound sensitivity, night terrors, irritability/mood swings/rage; speech delays (in two of my children), pain in legs, chronic throat clearing, chronic fatigue, mild hearing loss, excema.
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Andie333
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I am SO sorry!

Just wanted to say that...

andie

Posts: 2549 | From never never land | Registered: May 2005  |  IP: Logged | Report this post to a Moderator
annissa
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julielynne4-my son has had the throat clearing and eye blink/rolling, it was said to be a nervous tick. He also had speech problems and a lot of leg pain. He had a borderline test result and we have been sent to see a rheumatologist. Do you think this is the best route? These symptoms have been on going for years and are now getting worse.
Posts: 4 | From indiana | Registered: Nov 2010  |  IP: Logged | Report this post to a Moderator
momintexas
Frequent Contributor (1K+ posts)
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Annissa - my son started out with the same symptoms and we were also told it was a nervous tic, or allergies, or "boys do that", or "he'll grow out of it". I could go on and on.

Please take your son to see a LLMD. Also, get him tested for all co-infections.

Erlichia, Bartonella, Babesia, Mycoplasma Pneumonia and Strep can all be a factor here.

I'm sorry to hear of another child having this.

Posts: 1408 | From Tx | Registered: Nov 2009  |  IP: Logged | Report this post to a Moderator
s0ngbird1962
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First off, want to say I'm sorry.

My son was infected at age 4 & despite symptoms including the bullseye rash, he was misdiagnosed until age 5 when he became hobbled because his knee blew up.

Went downhill from there. Symptoms were joint pain, vomiting daily, headaches/tingling in face,left sided weakness, hallucinations & then began having complete vision loss.

Was sent to every "ologist" there was, had EEG's & MRI's... Tested strongly positive, still treated with nothing more than 8 weeks of amoxycillin.

When he was getting worse, not better, was basically told it was an autoimmune response and he'd have to live with it. Although all agreed he was suffering from lyme, was told he was treated within the guidelines. A pedi-neuro dr. wanted to treat him with seizure medicine (son has no seizures) also tried to convince me he was having "silent migraines." NOT!

How does one live with their child losing his vision? Dropped the pedi & immediately sought out help.

Found this site & a LLMD name who I truly believed saved my son's life. He was treated aggressively with omnicef & zithro....

He became better almost immediately & after 9 months we stopped treatment. Has been 8 months now since stopping treatment & all is basicallly well. I've had a few worries that perhaps it's still lurking in there, but for now, I watch.

He has problems with focus/attention, is struggling with reading & math. I do believe that it is the result of his lyme. Guess we'll never know because of his young age at infection/diagnosis.

He's now 8, getting help in school (for reading/math) but otherwise is totally normal.
Whatever that is, lol...

On this day of Thanksgiving, I am thankful that I found this site, has been such a strong support system, am thankful for our LLMD who has put everything on the line to help the children.

God bless....

--------------------
Mom to a 5 year old lymie....
Taking it one day at a time.

Posts: 182 | From Ipswich, MA | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
ktkdommer
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My youngest had migraines, then cyclic vomiting syndrome. Then with every virus a new symptom- palpitations, tachycardia, tight muscles, easy bruising, slow healing, sinus issues, POTS, fibromyalgia, twitching, tingling, gastroparesis, fatigue, poor sleep, broken thermostat, nausea and pain. Oh, the cognitive issues have been terrible and a complete personality and behavior change that took him away for 5 months. He is coming back and feeling better!!
My oldest has just had tight muscles and swollen glands for 9 years.
To all the moms that replied- do your husbands have Lyme?

--------------------
Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome.

Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010  |  IP: Logged | Report this post to a Moderator
t9im
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I have found as parents we are so busy with caring for our children and then trying to work its difficult to post as much as I should.

I hope this helps.

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/98969?

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Tim

Posts: 1111 | From Glastonbury, CT | Registered: Apr 2010  |  IP: Logged | Report this post to a Moderator
jwall
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My son is 4. I believe he got lyme when he was bitten at age 2...and then again last June when he was almost 4. He got the big rash the 2nd time, but was put on amoxicillin right away. However, he'd had symptoms for a while prior to the 2nd bite. His labcorp western blot was positive for bands 39 and 41.

His symptoms were/are: frequent night waking, screaming his legs hurt or his knee needed a "band-aid" at night or his foot was "bitten by a snake", "foggy" eye, personality changes, irritable, rage/temper tantrums that went from screaming to laughing hysterically and back to screaming, not wanting to play with others, when he'd walk he complained his legs were so tired/hurt and would kind of fall limp with exhaustion, neck aching, headaches, unexplained fevers, weight loss/inability to gain weight/small for his age, eye rubbing, inability to sit still and walking in circles...I'm sure there are more, but can't remember right now.

He is getting much better with treatment (it's been 2 months since starting treatment) and has gained 5 lbs in 2 months. [Smile]

Posts: 618 | From NC | Registered: Oct 2009  |  IP: Logged | Report this post to a Moderator
momlyme
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My son is 11. He started with flu like symptoms, fever, throwing up and red cheeks. Lasted 3-5 days. Got better. Then came back worse than the first flu. Throwing up, fevers, pounding headache, then came the aching knees, aching ankles, bottom of the feet like fire... went to Primary Care Physician (PCP) and ASKED for test for Lyme and Rheumatic Fever. (on a Friday)

Got test results Wednesday... the original test was CDC positive for Lyme & he was also Strep positive. They started him on Amoxycillan and I thought he should be on Doxy... he got progressively worse... still throwing up every day, fevers, pain all over, face and neck twitches, splitting headaches, couldn't sleep at night... they would not give him anything for the pain (tylenol and ibuprofin don't touch it).

On next visit (after 21 days) they gave him prednisone and doxy... he got MUCH worse. Could not walk, neurological twitches got MUCH more severe, could not sleep, severe stomach issues (by now he had gone from 85 pounds down to 70 pounds)

Went to see an Pediatric Infectious Disease Specialist (WRONG MOVE) she told me and him that it was all in his head and that he had already been treated adequately. She suggested, he should see a counselor.

Then I found this forum.

Thank God! And thank you, each and every person who contributes in any way.

--------------------
May health be with you!

Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began.

Posts: 2007 | From NY/VT Border | Registered: Aug 2010  |  IP: Logged | Report this post to a Moderator
merrygirl
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God bless all of you and your children.
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momlyme
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Thanks! Right back at you with blessings!

[kiss]

--------------------
May health be with you!

Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began.

Posts: 2007 | From NY/VT Border | Registered: Aug 2010  |  IP: Logged | Report this post to a Moderator
blinkie
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My son is almost 2. We got a mild positive Igenext but his CD 57 is 40. He is starting treatment after Christmas.

Merry Christmas, huh?

I just wanted to say that I'm joining all the parents here with a lyme child.

Posts: 1104 | From N.California | Registered: Jan 2008  |  IP: Logged | Report this post to a Moderator
Tincup
Honored Contributor (10K+ posts)
Member # 5829

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The sections, Children With Lyme... and Dr. Jones... may help you.

www.MarylandLyme.org

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
   

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