LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter

The Lyme Disease Network receives a commission from for each purchase originating from this site.

When purchasing from, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive

The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » General Support » Cured?!

 - UBBFriend: Email this page to someone!    
Author Topic: Cured?!
Member # 21864

Icon 1 posted      Profile for Lymegirl82     Send New Private Message       Edit/Delete Post   Reply With Quote 
I haven't been to this site in a while. I've been busy trying to piece my life back together after Lymes pretty much tore it apart.


I was diagnosed in May 09 after being sick for almost 2 years before hand. Three regular doctors and infectious disease doc ( he was a complete joke!)later

I finally found a nurse who realized what I had ordered the test and proved to EVERYONE I wasn't losing my marbles.

I suffered migraines, fatigue, dizzy spells, limbs going numb and severe memory loss to name a few. At one point I was unable to walk.

She found an infectious disease doctor that was not only compatent but also fought with my insurance co. to get my IV treatment.

Now fast forward to the presant I am starting to feel like myself again. I have read people talking about what it's like to be sick but what happens once your on the road to recovery.

When I was sick many people who should have been there for me weren't. Now that I am better I find myself spending more and more time alone.

I try not to hold a grudge against the people that treated me poorly but now that I am functioning I dont want anything to do with people it seems.

I have focused my energy on reestablishing my goals and setting everything to right.

But what do you do once you are on the road to recovery. Every twinge that I have, everytime I feel tired. I wonder, Is this normal? Am I getting sick again?

I realized that though I am trying to move forward I am afraid to commit to anything because I have been supposedly cured before only to get even sicker a few months later.

Sorry this turned into a novel but I was wondering has anyone else delt with this?!

Posts: 22 | From Bordentown, NJ | Registered: Aug 2009  |  IP: Logged | Report this post to a Moderator
LymeNet Contributor
Member # 22537

Icon 1 posted      Profile for BHealthyNow     Send New Private Message       Edit/Delete Post   Reply With Quote 
Glad to hear you're on the road to recovery.

Lyme, Bart, possible Babs
Currently on IV Doxy, Bactrim, Zithromax, Nystatin, Mepron
Been on nearly every antibiotic since 10/09

About 60% improvement. Dizziness, air hunger remain.

Posts: 333 | From Boise | Registered: Sep 2009  |  IP: Logged | Report this post to a Moderator
Frequent Contributor (1K+ posts)
Member # 25251

Icon 1 posted      Profile for BoxerMom     Send New Private Message       Edit/Delete Post   Reply With Quote 
I sure understand the isolation part. We all do.

I think many will chime in regarding remission and relapse.

Please don't live your life in fear. If you relapse, you can resume treatment. Don't let that stop you from pursuing your goals.

 - Must...find...BRAIN!!!

Posts: 2867 | From Pacific NW | Registered: Apr 2010  |  IP: Logged | Report this post to a Moderator
LymeNet Contributor
Member # 27221

Icon 1 posted      Profile for jlp38     Send New Private Message       Edit/Delete Post   Reply With Quote 
I'm still sick, so no, I'm not going through what you are. I have thought about those things though. And I know when I start getting better, I will have the same concerns as you. Glad you are feeling better.
Posts: 707 | From Colorado | Registered: Jul 2010  |  IP: Logged | Report this post to a Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
Just keep moving onward and upward!! Don't look back!! [Smile]

Opinions, not medical advice!

Posts: 96201 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
Frequent Contributor (1K+ posts)
Member # 16270

Icon 1 posted      Profile for sutherngrl     Send New Private Message       Edit/Delete Post   Reply With Quote 
I know what you mean. I am at a place where I am starting to feel a little better. It feels like a "transitional" period and it is a confusing time for me.

I feel well enough to finally do more normal things, but not well enough to be considered cured or in remission.

This may sound crazy, but I feel like I don't know how to be a well person anymore. It seems like a foreign place to me.

And I totally get the lonely part. There is an isolation that naturally takes place when a person is ill for a long time. Now that I feel somewhat better it sort of feels like........"what do I do with myself now"???

Like what lymetoo said......just keep moving forward, slowly but surely.

Posts: 4035 | From Mississippi | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
Member # 11141

Icon 1 posted      Profile for sixgoofykids   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
I have been well now for one year and four months (who's counting?!). I STILL ask my husband, "Is this normal" For example, is it normal to be tired after teaching pilates for 3 hours, then working out, then showering, going to the mall for 7 hours Christmas shopping, and eating dinner out?

Honestly, I haven't known what is normal and what is not and I have to ask him stuff like this. I am finally getting more secure about things. It takes time. We want to be on top of it if symptoms do return, so we're constantly wondering if the slightest fatigue is a symptom.

It's normal.


Posts: 13449 | From Ohio | Registered: Feb 2007  |  IP: Logged | Report this post to a Moderator
LymeNet Contributor
Member # 27484

Icon 1 posted      Profile for deerose     Send New Private Message       Edit/Delete Post   Reply With Quote 
This thread really helps as I am improving too.
I identify with the fear of not wanting to commit.

I have been through a long period of not feeling like I will know how to be as a normal person.

I am afraid not to be hypervigilant.
that sort of thing. And also you betcha it has felt lonely.

But I can tell now mostly tell the difference between the ball and chain fatigue that was there crushing me by

mid afternoon and the tired from not quite enough sleep.

So despite my worries there is already evidence that it sorts out as you keep going and paying attention.

Learning to trust the ice isn't going to break under you. Little by little.

I definitely get the pain and hurt of lyme ignorance and being let down by people who are supposed to help at the worst possible times it seemed.

but I have had hurtful things from
other parts of life with people and nothing to do with lyme.

Developing the capacity to recover trust within healthy boundaries and sort out toxic people

and not become or remain cyncial and bitter

and forgiving is a life thing not a lyme thing even if lyme was the introduction.

it is as much of or health and wholeness as anything.

forgiving is not saying nothing happened and excusing something like it doesn't matter...

not at is acknowledging that something did happen or there is no need to forgive.
and it for sure a process.

I just read Miss Margo or someone like that who said...
forgiveness can't fix the past but it can enlarge your future.

From long experience I see that it does not weigh in on their guilt or not but on that you were hurt or harmed or offended and you need to be free to move on in life.

It takes healing too.
so many have been harmed one way or another by lyme ignorance and lack of compasion that the

resiliency to grow in these aspects of life seems to come often with the territory though not inevitably...some folks are surrounded by
authentic support.

and we get to do it while we are already challeged physically and often mentally and sometimes finacially...on so many fronts.

But it is a part of recovery for living as much as all the meds, supplements, diets and all that we do for lyme.

and inch by happens if we set our heart compass in that direction.

all the best...

Not everything in life that can be counted counts and not every thing that counts can be counted...Albert Einstein

Posts: 208 | From Northeast | Registered: Aug 2010  |  IP: Logged | Report this post to a Moderator
Member # 21864

Icon 1 posted      Profile for Lymegirl82     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks to everyone for your support. I honestly dont know what I would do without being able to speak to people who understand.

sutherngrl and sixgoffykids I feel exactly the same way. I ask myself all the time, "What now?" and "Is this Normal?"

deerose: Thanks for your response. I do need to learn to forgive those people and move on. I am trying because I do realize that it make me bitter inside.

I take it one day at a time and continue to work on letting it all go so that like everyone said I can move forward with my life.

Thanks again everybody for taking the time to talk!

Posts: 22 | From Bordentown, NJ | Registered: Aug 2009  |  IP: Logged | Report this post to a Moderator

Quick Reply

HTML is not enabled.
UBB Code� is enabled.

Instant Graemlins

Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:

Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3

The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA

| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.