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» LymeNet Flash » Questions and Discussion » General Support » Take my POLL - (will be presented to PA senator)

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Author Topic: Take my POLL - (will be presented to PA senator)
17hens
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We're trying to do a poll on 100 people.
ASAP of course!

And since there are no names, if you know the answers for other family members or friends who have lyme, please add them too.


1. Do you have Lyme Disease?

2. Did you test negative? (what test/lab)

3. Did you test positive? (what test/lab)

4. Have you been treated for Lyme Disease?

5. If so, for how long?

--------------------
"My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26

bit 4/09, diagnosed 1/10

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momlyme
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1. Do you have Lyme Disease? yes

2. Did you test negative? (what test/lab) no

3. Did you test positive? (what test/lab) yes - Quest Elisa + W.B x2

4. Have you been treated for Lyme Disease? yes

5. If so, for how long? 6 months

--------------------
May health be with you!

Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began.

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17hens
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1. Do you have Lyme Disease? yes

2. Did you test negative? (what test/lab) yes CDC WB 3x, MDL 1x WB & co

3. Did you test positive? (what test/lab) no

4. Have you been treated for Lyme Disease? yes

5. If so, for how long? 15 months

--------------------
"My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26

bit 4/09, diagnosed 1/10

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17hens
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hubby

1. Do you have Lyme Disease? yes, clinical diagnosis

2. Did you test negative? (what test/lab) n/a

3. Did you test positive? (what test/lab) n/a

4. Have you been treated for Lyme Disease? yes

5. If so, for how long? 11 months

--------------------
"My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26

bit 4/09, diagnosed 1/10

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17hens
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daughter

1. Do you have Lyme Disease? yes

2. Did you test negative? (what test/lab) no

3. Did you test positive? (what test/lab) yes, CDC WB

4. Have you been treated for Lyme Disease? yes

5. If so, for how long? 3 weeks, 7 years later 10 months

--------------------
"My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26

bit 4/09, diagnosed 1/10

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17hens
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son

1. Do you have Lyme Disease? yes, clinical diagnosis

2. Did you test negative? (what test/lab) n/a

3. Did you test positive? (what test/lab) n/a

4. Have you been treated for Lyme Disease? yes

5. If so, for how long? 3 months

--------------------
"My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26

bit 4/09, diagnosed 1/10

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randibear
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1, yes
2. western, elisa, quest
3. igenex
4. yes
5. 2 years.

--------------------
do not look back when the only course is forward

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Hambone
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quote:
Originally posted by 17hens:
We're trying to do a poll on 100 people.
ASAP of course!

And since there are no names, if you know the answers for other family members or friends who have lyme, please add them too.


1. Do you have Lyme Disease?
YES

2. Did you test negative? (what test/lab)
YES,QUEST Band 41 only

3. Did you test positive? (what test/lab)
YES, IGENEX Bands 31, 34, 41, 58

4. Have you been treated for Lyme Disease?
YES

5. If so, for how long?
3 months


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skies
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1. Yes.

2. Yes, negative w/Quest, 2 bands present.

3. Yes, positive w/Igenex.

4. I'm in treatment now.

5. About 3.5 months (w/LLMD, that is).

--------------------
"The simple things can get you through the hardest times."  -

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365SunnyDays
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1. Do you have Lyme Disease?
YES

2. Did you test negative? (what test/lab)
YES,UCLA ELISA negative

3. Did you test positive? (what test/lab)
YES, IGENEX Bands 31, 34, 41, 83-93

4. Have you been treated for Lyme Disease?
YES

5. If so, for how long?
3 months so far; anticipate at least 12-18 months

--------------------
We really know so little about the body and the microbiome.

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Starfall
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1. Do you have Lyme Disease? Yes

2. Did you test negative? Yes, Elisa, WB/Quest

3. Did you test positive? No-indeterminate/Igenex

4. Have you been treated for Lyme Disease? Yes

5. If so, for how long? 2 years

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n2themystic
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1. Do you have Lyme Disease?

Yes

2. Did you test negative? (what test/lab)

Elisa, WB, Igenix WB

3. Did you test positive? (what test/lab)

Igenix PCR

4. Have you been treated for Lyme Disease?

Yes

5. If so, for how long?

2 years. 85% better since starting treatment

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365SunnyDays
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REALIZED THAT I NEGLECTED TO INCLUDE ALL MY IGENEX TESTS; PLEASE USE THIS ANSWER INSTEAD. SORRY.

1. Do you have Lyme Disease?
YES

2. Did you test negative? (what test/lab)
YES,UCLA ELISA negative

3. Did you test positive? (what test/lab)
YES, IGENEX WB Bands 31, 34, 41, 83-93; IGENEX Positive Plasmid PCR

4. Have you been treated for Lyme Disease?
YES

5. If so, for how long?
3 months so far; anticipate at least 12-18 months

--------------------
We really know so little about the body and the microbiome.

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Florence1
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1. Yes
2. Yes Bartonella igenex
3. Yes, lyme WB-labcorp, Babs duncani-Igenex
4. yes
5. 14 months

--------------------
Oct 09 Positive CDC Western Blot
Jan 10 Positive Babesia Duncani
Jan 10 Cd57 28
Mar 10 EBV, IgM, IgG
HHV-6 IgG

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lou
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Are you asking if people are testing CDC positive?
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17hens
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Well, actually I was asked if I could get 100 people to answer these questions, but I did not make the questions up myself so I don't know exactly what direction they're heading in with this.

It sounds to me like that is part of the point trying to be made.

Thank you all for helping with this. I knew I count on my lymenet friends!

--------------------
"My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26

bit 4/09, diagnosed 1/10

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BoxerMom
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1. Do you have Lyme Disease? --Yes

2. Did you test negative? (what test/lab) --Yes, Igenex Western Blot, few single postive and indeterminate bands, negative by Igenex and CDC standards

3. Did you test positive? (what test/lab) --No for Lyme, Yes for Bartonella with Igenex, Yes for Babesia with Fry labs

4. Have you been treated for Lyme Disease? --Yes

5. If so, for how long? --2 years, 9 months

--------------------
 - Must...find...BRAIN!!!

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Robin123
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1. yes
2. ELISA, don't know which lab (not IGeneX)
3. yes, IgG IGeneX
4. yes
5. 4 and 3/4 years

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onbam
Unregistered


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1. yes
2. quest elisa, labcorp western blot
3. yes. Igenex,Western blot, labcorp CD57
4. yes
5.3 years

for grandmother

1. yes.
2.no
3.no
4. no.
5. n/a

also try posting this around on facebook

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Tincup
Honored Contributor (10K+ posts)
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Hens

Since you are in a hurry... check out the surveys below to see if they can help you. Done nicely and presented well for the IDSA Panel Review. It may save you lots of time and energy.

https://sites.google.com/site/marylandlyme/lyme-survey

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

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fatherguido
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1. Do you have Lyme Disease? YES

2. Did you test negative? (what test/lab) NO TO WB, ELISA, TITER

3. Did you test positive? (what test/lab) YES TO IGENEX (6 BANDS)

4. Have you been treated for Lyme Disease? YES

5. If so, for how long? 12 MONTHS

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payne
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1. YES

2. Neg - titer

3. YES - Igenex

4. YES

5. 3 months

--------------------
TULAREMIA/rabbit fever ?

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LymeMom Kellye
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Daughter

1. Do you have Lyme Disease? Yes

2. Did you test negative? (what test/lab) Yes/Elisa Quest

3. Did you test positive? (what test/lab)Yes Western Blot Igenix CDC and NYS positive. Frye: Hemobartonella

4. Have you been treated for Lyme Disease? Yes

5. If so, for how long 10 months

Husband

1. Do you have Lyme Disease? Yes

2. Did you test negative? (what test/lab)Yes Igenix had a few positive and indterminate bands

3. Did you test positive? (what test/lab)No, clinical diagnosis

4. Have you been treated for Lyme Disease? Yes

5. If so, for how long 6 months

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MADDOG
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YES

Negative on the western blot,borderline elisa.

Very positive Qrib B with giant picks. of lyme cyst forms. Positive 2 kinds of Babs.

Not for six years,then lyme was found and i had 3 months IV Rocephin.(the lyme came back)I had allmost every oral antibiotic since then and 14 months deep intramuscular benzathine penn G.

Been treated on and off for 20 years.

I still have lyme relapses. Total 26 years fighting Lyme.

MADDOG

[ 01-18-2011, 01:00 AM: Message edited by: MADDOG ]

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JunkYardWily
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1. yes
2. yes, 3 bands positive quest and labcorp
3. no as far as cdc is concerned
4. yes
5. 15 months

--------------------
sick since 9-09
igg, 18,23,41 reactive
igm, 41 reactive

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momofthree
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me

1. Do you have Lyme Disease? yes

2. Did you test negative? (what test/lab) no

3. Did you test positive? (what test/lab) yes CDC pos Igenex IGG and IGM

4. Have you been treated for Lyme Disease? yes

5. If so, for how long? 1 1/2 years

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momofthree
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My oldest son

1. Do you have Lyme Disease? yes

2. Did you test negative? (what test/lab) no

3. Did you test positive? (what test/lab) yes Igenex pos IGG and IGM

4. Have you been treated for Lyme Disease? yes

5. If so, for how long? 15 months

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momofthree
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My daughter

1. Do you have Lyme Disease? yes

2. Did you test negative? (what test/lab) no

3. Did you test positive? (what test/lab) yes Igenex IGG and IGM

4. Have you been treated for Lyme Disease? yes

5. If so, for how long? 17 months

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momofthree
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Younger son

1. Do you have Lyme Disease? yes

2. Did you test negative? (what test/lab) yes Igenex IGG and IGM

3. Did you test positive? (what test/lab) no but visual bartonella rash

4. Have you been treated for Lyme Disease? yes

5. If so, for how long? 3 months

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bashibazouks
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1. Do you have Lyme Disease?
Yes

2. Did you test negative? (what test/lab)
Yes, Quest ELISA

3. Did you test positive? (what test/lab)
Yes, Western Blot & Igenex

4. Have you been treated for Lyme Disease?
Yes

5. If so, for how long?
4 months so far, in treatment now

--------------------
Currently infected with Lyme, Babesia, Ehrlichiosis, Rocky Mountain Spotted Fever, Mycoplasma, & Q-fever.

10 months into treatment, currently on Bicillin, Rocephin, Doxy, Biaxin, and Mepron.

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Dekrator48
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1. Do you have Lyme Disease? yes

2. Did you test negative? yes, ELISA and WB, LabCorp and Igenex

3. Did you test positive? no

4. Have you been treated for Lyme Disease? yes

5. If so, for how long? 23 months so far

--------------------
The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.

"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11

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sammy
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1. Do you have Lyme Disease? Yes and coinfections

2. Did you test negative? (what test/lab) No

3. Did you test positive? (what test/lab) Yes, Western Blot from Labcorp and Igenex

4. Have you been treated for Lyme Disease? Yes

5. If so, for how long? Sick for almost 7yrs, have been treating for almost 3 yrs

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Camp Other
Unregistered


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1. Do you have Lyme Disease? YES

2. Did you test negative? (what test/lab) YES 1 negative via Quest, & IgM/IgG WB - CDC negative, Igenex positive

3. Did you test positive? (what test/lab) YES
IgM/IgG WB - CDC positive, Igenex positive

4. Have you been treated for Lyme Disease? YEP

5. If so, for how long? On and off for close to 5 years

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