Topic: Take my POLL - (will be presented to PA senator)
17hens
Frequent Contributor (1K+ posts)
Member # 23747
posted
We're trying to do a poll on 100 people. ASAP of course!
And since there are no names, if you know the answers for other family members or friends who have lyme, please add them too.
1. Do you have Lyme Disease?
2. Did you test negative? (what test/lab)
3. Did you test positive? (what test/lab)
4. Have you been treated for Lyme Disease?
5. If so, for how long?
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
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momlyme
Frequent Contributor (1K+ posts)
Member # 27775
posted
1. Do you have Lyme Disease? yes
2. Did you test negative? (what test/lab) no
3. Did you test positive? (what test/lab) yes - Quest Elisa + W.B x2
4. Have you been treated for Lyme Disease? yes
5. If so, for how long? 6 months
-------------------- May health be with you!
Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began. Posts: 2007 | From NY/VT Border | Registered: Aug 2010
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17hens
Frequent Contributor (1K+ posts)
Member # 23747
posted
1. Do you have Lyme Disease? yes
2. Did you test negative? (what test/lab) yes CDC WB 3x, MDL 1x WB & co
3. Did you test positive? (what test/lab) no
4. Have you been treated for Lyme Disease? yes
5. If so, for how long? 15 months
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
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17hens
Frequent Contributor (1K+ posts)
Member # 23747
posted
hubby
1. Do you have Lyme Disease? yes, clinical diagnosis
2. Did you test negative? (what test/lab) n/a
3. Did you test positive? (what test/lab) n/a
4. Have you been treated for Lyme Disease? yes
5. If so, for how long? 11 months
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
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17hens
Frequent Contributor (1K+ posts)
Member # 23747
posted
daughter
1. Do you have Lyme Disease? yes
2. Did you test negative? (what test/lab) no
3. Did you test positive? (what test/lab) yes, CDC WB
4. Have you been treated for Lyme Disease? yes
5. If so, for how long? 3 weeks, 7 years later 10 months
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
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17hens
Frequent Contributor (1K+ posts)
Member # 23747
posted
son
1. Do you have Lyme Disease? yes, clinical diagnosis
2. Did you test negative? (what test/lab) n/a
3. Did you test positive? (what test/lab) n/a
4. Have you been treated for Lyme Disease? yes
5. If so, for how long? 3 months
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
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randibear
Honored Contributor (10K+ posts)
Member # 11290
2. Did you test negative? (what test/lab) YES,UCLA ELISA negative
3. Did you test positive? (what test/lab) YES, IGENEX Bands 31, 34, 41, 83-93
4. Have you been treated for Lyme Disease? YES
5. If so, for how long? 3 months so far; anticipate at least 12-18 months
-------------------- We really know so little about the body and the microbiome. Posts: 261 | From Southern California | Registered: Jan 2011
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posted
REALIZED THAT I NEGLECTED TO INCLUDE ALL MY IGENEX TESTS; PLEASE USE THIS ANSWER INSTEAD. SORRY.
1. Do you have Lyme Disease? YES
2. Did you test negative? (what test/lab) YES,UCLA ELISA negative
3. Did you test positive? (what test/lab) YES, IGENEX WB Bands 31, 34, 41, 83-93; IGENEX Positive Plasmid PCR
4. Have you been treated for Lyme Disease? YES
5. If so, for how long? 3 months so far; anticipate at least 12-18 months
-------------------- We really know so little about the body and the microbiome. Posts: 261 | From Southern California | Registered: Jan 2011
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-------------------- Oct 09 Positive CDC Western Blot Jan 10 Positive Babesia Duncani Jan 10 Cd57 28 Mar 10 EBV, IgM, IgG HHV-6 IgG Posts: 739 | From NC | Registered: Oct 2009
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posted
Are you asking if people are testing CDC positive?
Posts: 8430 | From Not available | Registered: Oct 2000
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17hens
Frequent Contributor (1K+ posts)
Member # 23747
posted
Well, actually I was asked if I could get 100 people to answer these questions, but I did not make the questions up myself so I don't know exactly what direction they're heading in with this.
It sounds to me like that is part of the point trying to be made.
Thank you all for helping with this. I knew I count on my lymenet friends!
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
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BoxerMom
Frequent Contributor (1K+ posts)
Member # 25251
posted
1. Do you have Lyme Disease? --Yes
2. Did you test negative? (what test/lab) --Yes, Igenex Western Blot, few single postive and indeterminate bands, negative by Igenex and CDC standards
3. Did you test positive? (what test/lab) --No for Lyme, Yes for Bartonella with Igenex, Yes for Babesia with Fry labs
posted
1. yes 2. ELISA, don't know which lab (not IGeneX) 3. yes, IgG IGeneX 4. yes 5. 4 and 3/4 years
Posts: 13102 | From San Francisco | Registered: May 2006
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onbam
Unregistered
posted
1. yes 2. quest elisa, labcorp western blot 3. yes. Igenex,Western blot, labcorp CD57 4. yes 5.3 years
for grandmother
1. yes. 2.no 3.no 4. no. 5. n/a
also try posting this around on facebook
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Hens
Since you are in a hurry... check out the surveys below to see if they can help you. Done nicely and presented well for the IDSA Panel Review. It may save you lots of time and energy.
2. Did you test negative? (what test/lab) Yes/Elisa Quest
3. Did you test positive? (what test/lab)Yes Western Blot Igenix CDC and NYS positive. Frye: Hemobartonella
4. Have you been treated for Lyme Disease? Yes
5. If so, for how long 10 months
Husband
1. Do you have Lyme Disease? Yes
2. Did you test negative? (what test/lab)Yes Igenix had a few positive and indterminate bands
3. Did you test positive? (what test/lab)No, clinical diagnosis
4. Have you been treated for Lyme Disease? Yes
5. If so, for how long 6 months
Posts: 333 | From Lyme Here Too | Registered: Mar 2010
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MADDOG
Frequent Contributor (1K+ posts)
Member # 18
posted
YES
Negative on the western blot,borderline elisa.
Very positive Qrib B with giant picks. of lyme cyst forms. Positive 2 kinds of Babs.
Not for six years,then lyme was found and i had 3 months IV Rocephin.(the lyme came back)I had allmost every oral antibiotic since then and 14 months deep intramuscular benzathine penn G.
Been treated on and off for 20 years.
I still have lyme relapses. Total 26 years fighting Lyme.
2. Did you test negative? (what test/lab) Yes, Quest ELISA
3. Did you test positive? (what test/lab) Yes, Western Blot & Igenex
4. Have you been treated for Lyme Disease? Yes
5. If so, for how long? 4 months so far, in treatment now
-------------------- Currently infected with Lyme, Babesia, Ehrlichiosis, Rocky Mountain Spotted Fever, Mycoplasma, & Q-fever.
10 months into treatment, currently on Bicillin, Rocephin, Doxy, Biaxin, and Mepron. Posts: 87 | From USA | Registered: Sep 2010
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
1. Do you have Lyme Disease? yes
2. Did you test negative? yes, ELISA and WB, LabCorp and Igenex
3. Did you test positive? no
4. Have you been treated for Lyme Disease? yes
5. If so, for how long? 23 months so far
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
1. Do you have Lyme Disease? Yes and coinfections
2. Did you test negative? (what test/lab) No
3. Did you test positive? (what test/lab) Yes, Western Blot from Labcorp and Igenex
4. Have you been treated for Lyme Disease? Yes
5. If so, for how long? Sick for almost 7yrs, have been treating for almost 3 yrs
Posts: 5237 | From here | Registered: Nov 2007
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Camp Other
Unregistered
posted
1. Do you have Lyme Disease? YES
2. Did you test negative? (what test/lab) YES 1 negative via Quest, & IgM/IgG WB - CDC negative, Igenex positive
3. Did you test positive? (what test/lab) YES IgM/IgG WB - CDC positive, Igenex positive
4. Have you been treated for Lyme Disease? YEP
5. If so, for how long? On and off for close to 5 years
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