LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » General Support » Anyone Fighting Chronic Lyme Without Antibiotics?

 - UBBFriend: Email this page to someone!    
Author Topic: Anyone Fighting Chronic Lyme Without Antibiotics?
phyl6648
Frequent Contributor (1K+ posts)
Member # 28522

Icon 1 posted      Profile for phyl6648     Send New Private Message       Edit/Delete Post   Reply With Quote 
Not sure where to post this topic. So will start here.

Is anyone fighting chronic lyme without antibiotics?

My LLMD said it was up to me . I did try them for a short time at first by my medical doctor. After seeing the LLMD she wanted to treat with supplements for now trying to lower inflammation, build my immune and help with the gut. She felt them maybe I could tolerate antibiotics better.

I have been doing this for 3 months but admit I am not 100% in doing so with the supplements, diet etc. I did began to improve enough to get out of the house but now I seem to be drifting back to how I was. Can't get in touch with my LLMD for awhile due to the cost so thinking of trying abx low and slow my medical doctor is okay with this but he is one that doesn't think they help chronic lyme ..

I have never been on abx more than 2 weeks at a time, get to feeling better then forget to take them.Then back on them for awhile.

Yes, this is all my fault for feeling so bad but I honestly seem to do better without meds.

Tks. for any input.

Posts: 1058 | From VA | Registered: Oct 2010  |  IP: Logged | Report this post to a Moderator
MDW005
Frequent Contributor (1K+ posts)
Member # 22706

Icon 1 posted      Profile for MDW005     Send New Private Message       Edit/Delete Post   Reply With Quote 
phyl, hmm, forget to take them because you feel better? You say you do better without the antibiotics, then how can you feel so bad?

In order to get better, then you really need the meds. Maybe you feel bad because the body needs a detox.

If not antibiotics maybe try something more natural, but don't forget to take something to fight this disease.
I wish you well.

--------------------
God's promises mean you always have something wonderful to look forward to.

Posts: 2150 | From Georgia | Registered: Oct 2009  |  IP: Logged | Report this post to a Moderator
hammond
Member
Member # 32303

Icon 1 posted      Profile for hammond     Send New Private Message       Edit/Delete Post   Reply With Quote 
I have been "fighting" lyme recently without abx. I have been seeing a ND and working on my liver and gut. I think that this is a great way to keep healthy when facing long term lyme. You may already know this, but just a reminder that many Dr's think that Lyme has a 28 day cycle and that two weeks of abx are not really useful as the Bb hide in tissue that is not exposed directly to blood for most of the 28 days. Good health to you.
Posts: 65 | From oregon | Registered: Jun 2011  |  IP: Logged | Report this post to a Moderator
phyl6648
Frequent Contributor (1K+ posts)
Member # 28522

Icon 1 posted      Profile for phyl6648     Send New Private Message       Edit/Delete Post   Reply With Quote 
Tks. MDWOO5, I have decided to go with the antibiotics low and slow also some natural things.

Hammond, would you share with me some of the treatments you are on?

I know there is no cure but remission would be great.

Still can't except the fact I am not well, think I am still in denial and the horrid stories scare me.

Happy 4th..

Posts: 1058 | From VA | Registered: Oct 2010  |  IP: Logged | Report this post to a Moderator
glm1111
Frequent Contributor (5K+ posts)
Member # 16556

Icon 1 posted      Profile for glm1111     Send New Private Message       Edit/Delete Post   Reply With Quote 
Look into treating parasites/worms with antiparasitic herbs and maybe some salt/c. Do a search on here for lots of info. Parasites play a MAJOR role in lyme disease and getting well.

Gael

--------------------
PARASITES/WORMS ARE NOW
RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS*

Posts: 6418 | From philadelphia pa | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
The horrid stories are from untreated or under-treated Lyme.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95647 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
phyl6648
Frequent Contributor (1K+ posts)
Member # 28522

Icon 1 posted      Profile for phyl6648     Send New Private Message       Edit/Delete Post   Reply With Quote 
Lymetoo, its the horror stories of those being treated that scares me.

With that said, I have decided I must try treatment so have been on the abx. Maybe I will have a good story to tell later on.

Tks.

Posts: 1058 | From VA | Registered: Oct 2010  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
That is still not as bad as suffering for the rest of your life.

Suffer for 3 yrs or 30?? Take your pick.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95647 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
scorpiogirl
Frequent Contributor (1K+ posts)
Member # 31907

Icon 1 posted      Profile for scorpiogirl     Send New Private Message       Edit/Delete Post   Reply With Quote 
I think there are degrees of sickness. If you can function w/out any meds then by all means try the herbal approach. But for some of us, not having antibiotics = bed ridden, crippled, non-functional, unbearable pain 24/7. So yes it's SCARY (I'm still scared every time I hang an IV) to digest, inject, drip all that poison in our bodies. But to me it's much scarier to STAY sick and living life half dead than to treat aggressively. So I agree w/ Lymetoo... I will tough it out for a few years in exchange for getting my life back. I still secretly hope I will have a miracle and it won't take me years. Sigh...

--------------------
 -

Posts: 1391 | From Lyme Land | Registered: May 2011  |  IP: Logged | Report this post to a Moderator
phyl6648
Frequent Contributor (1K+ posts)
Member # 28522

Icon 1 posted      Profile for phyl6648     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks everyone for your replies.

There are no easy or sure ways with this darn disease. We are all different and have to decide what is best for us. If it wasn't for my age I feel I too would be more aggressive with treatment.

My LLMD wants me to start slow and low with abx. I told her I could start low but again the age issue not sure how slow I want to go. Don't want to jinks but so far so good with the abx.

My prayers to each..

Posts: 1058 | From VA | Registered: Oct 2010  |  IP: Logged | Report this post to a Moderator
JeniferM
LymeNet Contributor
Member # 31996

Icon 1 posted      Profile for JeniferM     Send New Private Message       Edit/Delete Post   Reply With Quote 
I'm also curious if there are people who have been successful doing the antiparasitic herbs as opposed to the antibiotics.

--------------------
IgM: [18++,31+++,34++,41++,83-93+] [39 IND]
IgG: [41 IND]
Positive according to IGeneX. Negative according to CDC. Negative for co-infections.
Currently treating for Lyme, Bartonella, Babesia

Posts: 225 | From Minnesota | Registered: May 2011  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.