posted
Dear all: I need some advice here. Someone that had been a huge help to me in fighting the insurance company etc has now decided she thinks that I don't have lyme or these cos and that it is all autoimmune. She has turned into a duck.
This hurt me to no end as she was my main supporter. And when the insurance company denied me this last time, she just said that I am too sensitive to what I hear ... in essence that I would believe anything at this point...
Does this happen to a lot of folks... this has broken my heart. But you know... God keeps telling me that I need to stay on my path and keep progressing... by God's grace I am.
Thanks for listening-
Posts: 859 | From Southeast | Registered: Mar 2011
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momlyme
Frequent Contributor (1K+ posts)
Member # 27775
posted
I am so sorry this person has stopped supporting you!
Keep up the faith.
You are on the right path!
You always will have support here.
-------------------- May health be with you!
Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began. Posts: 2007 | From NY/VT Border | Registered: Aug 2010
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
yes - most of my family and many friends think i am a nut...
it hurts and is hard. but i am greatful for this place and i cherish the few friends i have thru support grp and lyme related activities
try to move on and let it go and don't dwell
put your energy where it is positive and you get positive results and feelings
i'm going thru a ruff patch now too and am so glad for LN
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96237 | From Texas | Registered: Feb 2001
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lymeladyinNY
Frequent Contributor (1K+ posts)
Member # 10235
posted
Ah, this sort of thing has happened to me many times during my Lyme journey. Each new betrayal hurts as much as the last. I'm sorry you've lost your supporter - but here at Lymenet you'll always find a sympathetic ear! Bless you!
-------------------- I want to be free Posts: 1170 | From Endicott, NY | Registered: Sep 2006
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posted
You all are amazing... Thank you so much for your feedback. I had talked to a friend a day or so after my friend "turned" on me ... and she said that it was akin to having someone break up with you with no warning. She hit it right on the head...
You all have good advice... and I have decided that my LLMD is the primary person to consult... as he has been for the last year... and she honestly was helping by giving me IM shots etc. But then, when we were turned down... she turned and said that I needed to exhaust all the other broken pieces... which as another good friend stated... Lyme caused.
So - it is off to the GP for me to get me to a GI doc for celiac/malabsorption as my protein, calcicum and on and off albumin are low. the protein and calcium are always low. Not far out of the range but after about a year of this, the llmd wants me to follow-up with my gp on the nutritional deficiencies. Then it is off to a hormone doc to get those straight- I have PCOS and am on the pill at 40 (not the best thing for bloodclots etc. I do think these pieces are important ... I am not discounting them. And then, she told me to see a pschiatrist- that I needed more meds so that my pain tolerance would be better. That is when I really got upset...
Basically she watched me go from barely being able to walk and being as white as the wall when she first gave me IM shots 10 months ago - to now, still struggling with a few things but definitely making significant progress. That is what I don't understand. I read somewhere on lymenet that it is the people who think they know everything and do not know what they do not know... are the most dangerous. I think she is right.
Thank you all for your support. It is appreciated more than you know...
Posts: 859 | From Southeast | Registered: Mar 2011
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