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» LymeNet Flash » Questions and Discussion » General Support » Chronic Lymie Needs ABX advice

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Author Topic: Chronic Lymie Needs ABX advice
MissMari
LymeNet Contributor
Member # 11274

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Hi Everyone,

I'm back! Wish it was on better terms --- after a few months of literally no bad symptoms,

gaining back much of my cognitive function, and noticing that I was feeling much much better, I thought I had beaten this Lyme deal.

But now I am feeling the effects of it again; this time my immune system seems to be wonky,

and I've experienced mycoplasmic pneumonia, viral conditions, and terrible allergies with wheezing, cough, and asthma.

At this point I am just basically fatigued so much that I am literally sleeping away the

afternoons, into the evening, and into the next day, where I will have a few morning hours of energy and that's about it.

But here's my dilemma, and I welcome any suggestions ----

I can no longer afford to see my LLMD. As wonderful as he has been, I could no longer continue to put myself into more debt for his office visits (I paid in cash as long as I could, which was in summer of last year) ---

then I declared bankruptcy last November because of overwhelming lab and Lyme treatment bills; I also lost my car in reposession.

This means I would have no transportation to get to my LLMD anyway.

I have only a part-time job as a caregiver, no health insurance or prescription plan.

I do need to maintain daily oral abx: Mainly doxy and amoxycillin.

However, I no longer have prescriptions for them.

My family doctor, who would call in prescriptions for me without an office visit, will no longer do that for my abx

as he believes that there is no such thing as chronic Lyme, and I should have been "cured" by now.

So here's where I am. Any suggestions or guidance?

Thanks a million!

Mar

--------------------
The Bite: July 1995
Next 13 years: Treated for things I didn't have
Symptom total: 45
1 faint Lyme IgM May 2000
5 More negative tests
IGeneX says YES! 3/16/09
Finally feel human: 2012

Posts: 120 | From Plainsboro NJ | Registered: Feb 2007  |  IP: Logged | Report this post to a Moderator
twicebitten
LymeNet Contributor
Member # 5412

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You can get abx online without RX, although some of them are expensive.

Do a search for Canadian pharmacy, as I know someone on here posted a link to a canadian pharmacy that doesn't require prescription.

Or, try some herbs, or salt/C protocol.

After years of trying to afford treatments and your still sick, it gets very depressing.

I went through bankruptcy too, lost my car, lost my house. Thank God I didn't lose my husband..lost my job and lost hope for a while.

Keep searching and you'll figure out what's right for you in this time.

Take care and best wishes

--------------------
One day at a time

Posts: 409 | From TX | Registered: Mar 2004  |  IP: Logged | Report this post to a Moderator
lou
Frequent Contributor (5K+ posts)
Member # 81

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Will Medicaid or some such program help people like you? Have you worked long enough to qualify for social security disability?
Posts: 8430 | From Not available | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
Tincup
Honored Contributor (10K+ posts)
Member # 5829

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Hey hey MissMari,

Sorry to see you here! HA! But you know what I mean!

Only have a few minutes, but maybe try this?

https://sites.google.com/site/virginialyme/drugs-supplements

Not sure anything below will help, but might want to take a look-see.

https://sites.google.com/site/virginialyme/help-with-disability

And remember, you are not alone. Hugs sent your way!

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20352 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
MissMari
LymeNet Contributor
Member # 11274

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Thanks everyone! (Yes, Tincup, sorry to see you again too!!! [hi] )


I am in the process of trying for SSDI (which is

a bugger --- no pun intended); my state just cut

Medicaid prescription coverage......


My biggest obstacle is getting abx without prescription.


I asked my family dr once more, just to see if I

could sway him, and once more he said (and I

quote) "antibiotics are not going to help you

because you don't have Lyme anymore! I will give

you an antidepressant and..." (wait for

it......) "... Vicodin for pain."


Now, what's interesting here (besides the

obvious inability to believe in Chronic Lyme) is

that this dr is willing to give me prescriptions

without examination for antidepressants and a

narcotic, but not an antibiotic!


Now, I found this link ---- has anyone out there used this?


http://www.emedexpert.com/products/doxycycline.shtml

--------------------
The Bite: July 1995
Next 13 years: Treated for things I didn't have
Symptom total: 45
1 faint Lyme IgM May 2000
5 More negative tests
IGeneX says YES! 3/16/09
Finally feel human: 2012

Posts: 120 | From Plainsboro NJ | Registered: Feb 2007  |  IP: Logged | Report this post to a Moderator
Tincup
Honored Contributor (10K+ posts)
Member # 5829

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Check in Medical. jbral just posted a link about disability.

Otay?

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20352 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
lou
Frequent Contributor (5K+ posts)
Member # 81

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There is some evidence that an antidepressant dampens inflammation, which is part of what causes symptoms in lyme. Not sure if this is true of all antidepressants.
Posts: 8430 | From Not available | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
annxyzz
Frequent Contributor (1K+ posts)
Member # 20404

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I am feeling better than I have since 1996 . I did 3 years of ABx , and was finally free of pain , but still really SICK.

Unfortunately , the ABX caused chronic bladder and kidney problems , and I feared they would have ill effects on my immune system if taken indefinitely . I was desperate and began an herbal approach and combined rife ( EMEM) . I was not too optimistic , but still TRYING to attack the bacteria and babesia. I used the herbs that I read others here were frequently advised to try by their LLMDs : artemesia annua, and grapefruitseed extract , mostly . ( I also threw in some of Buhner's herbs after six months, whole andrographis and coptis ) .

The first few months with rife and herbs, I was somewhat worse . Slowly , within six months I saw improvement . It was gradual, but REAL .
After 16 months of this approach I actually can function most mornings , can be productive every afternoon and can walk a mile or two a few times a week . I am almost never in bed, though I am not as fast as I would like. I do not have chills all of the time or feel sick as a dog every minute of everyday . Life is better than I thought possible , and I hope to continue improving .

I have seen many people here reach the end of their pocketbooks with LLMDs with minimal progress and years of ingesting a huge amont of
mepron , antibiotics, etc... for YEARS . There is no easy answer , but you can be sure that lots of ABX , drugs, and $$$ spent on LLMDs does not appear to necessarily get a person to a cure . The few folks I know who have seen LLMds finally ran out of dough and resorted to helping themselves by trying a variety of therapies .

Do not give up . Many of us have been in your shoes , and persevere to a better place . You will too .

--------------------
annxyzz

Posts: 1178 | From East Texas | Registered: May 2009  |  IP: Logged | Report this post to a Moderator
   

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