I have been treating for one year, and have made more progress than I thought I ever would! THANK YOU to lymenet for pointing me in the right direction!
I'm now able to do a yoga class twice a week, play with my niece, and walk 2-3 times a week (although I know my lyme sx are worse the day after walking..).
I'm to the point where my SX don't stop me from making most of my scheduled activities (HELLO WORLD! ), but most is still not all.
I'm still herxing on meds (tindamax has been a killer!) and can't imagine being able to work during that time.
I feel really guilty. I haven't been a contributing member of society in years. I want to take at least SOME burden off my mother, who I have depended on for 6 years.
I think if I can dance around with a 2 year old then I should be using that energy working, but then.. Ugh, the bad days!
I've been fortunate enough to rest when needed and wondering how losing that might affect me? I'm afraid of tiring out my body and losing all the progress I've made.
How do you decide? What percentage of your old self should you be at before starting? I'm tired of trying to decide this!
My next LLMD appt is at the end of this month, and do plan to ask his opinion then. But what are your experiences?
Posts: 60 | From MO | Registered: Jul 2010
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Frequent Contributor (1K+ posts)
Member # 28081
I started to work four months in. We had no choice we need a second paycheck. Try to find something part time and flexible if you can. It may make you feel good to bring home a little cash. Plus get out of the house and try to feel normal for a couple hours. I am treating Babs now and I have many days where I dread going in, but I do it anyway and I survive it.
Blessings whatever your decision, many of us do work through this.
-------------------- Psalm 46 1 God is our refuge and strength Posts: 1367 | From North Jersey | Registered: Sep 2010
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Let me start by saying that I was VERY lucky to have my diagnosis within eight months of getting sick, because I think that influences my answer to this.
I never stopped working. I am a high school teacher, and I first got sick on summer vacation. I HAD to go back to work, although I should not have, because I was making myself crazy at home. I had to focus on something else because I was afraid I was dying every second.
I worked from August to March without treatment, and it was REALLY hard. Actually, the first two months of treatment was even harder.
I am lucky, because I get the summers to recharge. This fall has gone well (I think I am getting relatively close to done with treatment). I tire easily, and I need to take days off when I feel run down. By Friday night, I am just exhausted, and I sleep a lot on the weekends. However, my symptoms continue to improve.
I would agree with trying something part-time. I am fortunate to have a lot of sick time available, so I take about 4 half days a month to keep from getting sick. If I didn't have those available, I would consider cutting back to part-time.
Posts: 447 | From Vermont | Registered: Jan 2011
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