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» LymeNet Flash » Questions and Discussion » General Support » 9 of 10 ALS patients have Lyme and co infections

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Author Topic: 9 of 10 ALS patients have Lyme and co infections
lymenow
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Is it trauma to the brain that neuro lyme causes ALS? Does anyone know of any basic initial signs of ALS that differ from lyme?

http://www.als-cure.com/ALS.pdf

Posts: 109 | From PA | Registered: Feb 2012  |  IP: Logged | Report this post to a Moderator
2young2dieMom
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Its all the same thing as far as I'm concerned. If a patient responds to abx it Lyme, if not, its ALS. Noone seems to know why drugs work for some and not for others.

Maybe the correct infection hasn't been identified yet.

--------------------
Dxd ALS 3/2010
Dxd cllinical Lyme 4/2010
Positive for Protomyxzoa but absolutely nothing else in Igenex

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dmc
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thanks for posting this.
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Keebler
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Wow ! 161 pages. 2011, so current.

Thanks for that link.

Really nice table of contents (but, so far, don't seem to find an index & citations/footnotes) as I usually check that first to see whose work they studied -

- though I see that they have included the work of Alan MacDonald, etc.

It gets into why some treatment trials are often just set up wrong and doomed to fail. Etc.

I'll have to come back to this but it's an excellent link for all to copy and paste to their personal research file for easy remembering.

I am concerned with the use of "cure" however. For all intents and purposes, when ALS is really lyme, treatment may seem to "cure" the ALS but the term "cure" can be misleading where borrelia is concerned.

But I've not read the whole work yet and they may address this definition. "Cure" is not in the title but in the web link.

Their home page is that link with just the last part removed.
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
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lymenow,

In answer to your question, symptoms can vary. So can timing.

Much also depends on what OTHER tick-borne infections traveled with lyme. Not sure if the authors go into that.

They are certainly not the first to make a connection between lyme and ALS. I'm not sure WHY you ask. You might get more tailored replies if you have a specific reason for the question.

You ask: "Is it trauma to the brain that neuro lyme causes ALS?"

Well, it's the INFECTION, Borreliosis. And the TOXICITY of that infection. The way it can destroy the myelin sheath and mitochondria, etc.

So, yes, it's the trauma if you are talking about the damage from the infection.

Where lyme is concerned, often when there is an ALS diagnosis, it's not ALS at all. It's lyme (and other coinfections - or other stealth infections like Cpn or mycoplasmas).

It's not that lyme causes ALS (exactly) but that ALS is a misdiagnosis in those cases.

ALS, like MS, CFS, Fibromyalgia - can often be a big umbrella term for when the doctors stop way short of identifying the real CAUSE.
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poppy
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ALS is an abbreviation for amyotrophic lateral sclerosis, which is a description of the results of the disease process. It does not identify the cause. The death of motor neurons ends in muscle wasting. Since this is the situation, it can be seen that there may be multiple causes which can produce the same result. Some of the causes might be treatable. Lyme is one of them. It has been noted that some cases seem to run in families, but that is a minority. So, all the other cases must have an environmental component, infection or otherwise.
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lymenow
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Page 110 sums it up to me. Not just concerning the ALS connection but the motives behind the inaction of the people who could help.
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