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» LymeNet Flash » Questions and Discussion » General Support » Yale Study Suggests Cause of Lyme-Related Arthritis

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Author Topic: Yale Study Suggests Cause of Lyme-Related Arthritis
Muscle Car55
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http://www.courant.com/health/connecticut/hc-lyme-disease-yale-0626-20120625,0,1284199.story

I guess I'm 10% of the 10% that have Lyme arthritis still after six months of antibiotics. I guess I'm a "extraordinarily rare" case of Lyme disease just like the article says.

Also how can they compare a tiny mouse to a 225 pound human being like me. To me it makes sense that the more area the bacteria has the ability to get into, the harder it's going to be able to kill.

I would also like to see these liars explain why many Lyme patients symptoms increase when they get off antibiotics. Or how about when they are in remission for a year or two and symptoms come back. I guess it must just be the proteins.....

I agree that some of the arthritis and inflammation could be from our immune system. But I still think they have a lack of understanding big time of the progression of the bacteria.

What I see is Lyme patients getting better with LLMDs. While Lyme patients who see doctors that practice the IDSA guidelines suffer and never get better. So proof is in the pudding!

Posts: 267 | From MI | Registered: Oct 2011  |  IP: Logged | Report this post to a Moderator
Lymetoo
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Yale Schmale [Wink]

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95875 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
Muscle Car55
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I decided to challenge the article basically because I got nothing else to do, nowhere to go, fully disabled because of their misinformation and disinformation crap. Hopefully the editor approves article [Roll Eyes]

quote:
I guess I'm 10% of the 10% that have Lyme arthritis still after six months of antibiotics. I guess I'm a "extraordinarily rare" case of Lyme disease just like the article says. Also I live in the city in southeastern Michigan where Lyme disease doesn't even supposed to exist. Also want to remark that I have three other family members that have gotten it. One other family member that is still dealing with persistent Lyme arthritis, another 10% of the 10%. Four family members with Lyme in Michigan, our family case must be super rare huh?

Also how can they compare a tiny mouse to a 225 pound human being like me. To me it makes sense that the more area the bacteria has the ability to get into, the harder it's going to be able to kill.

I would also like to see Yale researchers explain why many Lyme patients symptoms increase when they get off antibiotics. Or how about when they are in remission for a year or two and symptoms come back. I guess it must just be the proteins.....

I agree that some of the arthritis and inflammation could be from our immune system. But I still think they have a lack of understanding big time of the progression of the bacteria.

What I see is Lyme patients getting better with LLMDs. While Lyme patients who see doctors that practice the IDSA guidelines suffer and never get better. So proof is in the pudding!

Oh yeah, another thing, it's funny this article was posted. An article was just posted in Litchfield County Times about Professor Ray Kehrhahn who received nine months intravenous antibiotics, he has been cured after suffering 22 years of misdiagnosed Lyme disease.

But hey long antibiotics don't work right?


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Lymetoo
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VERY good!! Especially to mention Mr. Kehrhahn!

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95875 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
marypart
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The idea that debris in the joints can promote an autoimmune response is not new. It has been presented as a possibility in post-strep arthritis as well, and there is some evidence that this is true.

What I think is the more important point is that this study is about mice that were TREATED with antibiotics right away. Many people with Chronic Lyme are people who were not treated or undertreated. I think Chronic Lyme comes from a disseminated infection that is entrenched, a much more resistant case with the spirochete living in places that are hard to reach and make the infection difficult to kill.

There are plenty of studies that show this can happen.

The thing about the Yale study that doesn't make sense, is why doesn't the arthritis eventually go away after the body clears the debris? Is more debris being created by an occult infection that they can't find?

--------------------
Son, 26, Dx Lyme 4/10, Babs 8/10
Had serious arthritis, all gone.
Currently on Valtrex
Daughter, 26,bullseye 7/11
arthritis in knees, cured and off all meds. .
Self:Lyme, bart, sxs gone, no longer treating.

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pme
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I was just quoted this study by my daughter's allergist. Will post separately.

--------------------
Tick bite in 2006, bullseye rash, treated with 2 rounds of 2 weeks of doxy. (once in 2006, once in 2009)
Dx with chronic Lyme May 2011.
LLMD April 2012, Treating with omnicef/zith
Lots of supplements!

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pme
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So....what about other persistent symptoms? Like fatigue, behavior, neurological issues, anxiety, numbness?

Can these also be explained by bacterial die off?

Do pieces of the spirochete die off spontaneously or just in response to abx treatment.

I don't know....as I said I just came home from an appt with my daughter where I was quoted this and told that long term antibiotics are not the answer. But she doesn't have joint problems......and she has never had treatment.

--------------------
Tick bite in 2006, bullseye rash, treated with 2 rounds of 2 weeks of doxy. (once in 2006, once in 2009)
Dx with chronic Lyme May 2011.
LLMD April 2012, Treating with omnicef/zith
Lots of supplements!

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Lymetoo
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Most of the IDSA drs don't believe in Lyme causing neurological issues.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95875 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
surprise
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Well, I have long term chronic Lyme, and have never had arthritis.

So, uhhh, what?

More BS.

Maybe if they took all the antibiotics out of the meat

(in 70% of US meat)

they wouldn't be so scared.

--------------------
Lyme positive PCR blood, and
positive Bartonella henselae Igenex, 2011.
low positive Fry biofilm test, 2012.
Update 7/16- After extensive treatments,
doing okay!

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randibear
Honored Contributor (10K+ posts)
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not all Lyme patients get arthritis either

--------------------
do not look back when the only course is forward

Posts: 12262 | From texas | Registered: Mar 2007  |  IP: Logged | Report this post to a Moderator
   

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