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This topic has been moved to Medical Questions.     next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » General Support » Cannot find anyone else with this symptom- HELP please

   
Author Topic: Cannot find anyone else with this symptom- HELP please
Winni
LymeNet Contributor
Member # 36772

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Hi! I have searched everywhere and come up empty handed. If there is anyone out there that has a suggestion Please please please let me know.

I am DX with Lyme,FL1953 and have high Myco IGG numbers that are rising.


My tests are negative for Bart and Babs. I have borderline numbers for HHV-6.


I just had an MRI and MRA of my neck and brain and nothing there.


Also just had a ct scan of my stomach and it was clear also.


I am having this extreme body throbbing from the waist up, mostly when i am sitting or just waking up in the morning. It is there when i am active, just not as noticable. It started around April-May intermittantly and now is constant. It started in my stomach and they thought maybe i had an arotic anurisym (sp) and that was negative. It radiates up into my chest, arms, back and neck. Not in my head.


It doesnt seem to matter what i do, take or don't take it will not stop.


My doc has me off my Doxy (all I could handle at this time) and detoxing. I am using Pekana detox 2 times daily, lemon water and eating low fat.


I have taken xanax and it relieves the anxiety that the throbbing gives me but not the throbbing.


What can i do, where do i turn, please any suggestions.. i really need help.


I follow up with my neurologist in 2 weeks, but she is clueless also. and also does not believe in Lyme (go figure).


I cannot take magnesium due to the FL1953 but feel i should try it to see if it makes a difference. I am not sure if I am deficient or not, I do not have any cramping pains.


I am scared as heck right now and really am questioning everything.. am i getting worse? Should i do aggressive treatment anyway instead of slow and steady and just buck up understanding I may be bedridden at some point? I cannot come up with an answer.


Thanks for taking the time to read this.. I am going to also post on another board so if you see it again, just know I am trying to reach as many folks as i can.

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Winni

Posts: 150 | From Nebraska | Registered: Mar 2012  |  IP: Logged | Report this post to a Moderator
pooldog71
LymeNet Contributor
Member # 21722

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Winni

Could you explain the symptom a little more?

I get what I call a body vibration. I am not sure if this is the same thing. The vibration does not cause pain, but is bothersome.

When I first noticed this it really freaked me out. Luckily other people here explained that they also have this and it apparently is not uncommon with Lyme.

At times in has increased and decreased, almost like an ebb and flow. I have felt that somehow it is related to anxiety or that increased anxiety increases the vibration.

Posts: 164 | From California | Registered: Aug 2009  |  IP: Logged | Report this post to a Moderator
Winni
LymeNet Contributor
Member # 36772

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HI Pooldog, I also get the internal vibrations or tremors at times and have noticed they come and go, but this is very different. It is almost as if each time my heart beats I can feel it throughout my entire upper body. Like a pulsating feeling. Hope this is not what you have experienced. [Smile]

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Winni

Posts: 150 | From Nebraska | Registered: Mar 2012  |  IP: Logged | Report this post to a Moderator
Pocono Lyme
Frequent Contributor (1K+ posts)
Member # 5939

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How about a MRA of abdomen and maybe chest too?
If it originates in your abdomen that's where I'd start.

It would make you think it may be vascular in nature.
With Lyme and company though, any symptom is possible without an explanation.

I've had many really strange, frightening symptoms but have to say this one missed me. I better shut up. [bonk]

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2 Corinthians 12:9-11


9 But he said to me, �My grace is sufficient for you, for my power is made perfect in weakness.� Therefore I will boast all the more gladly about my weaknesses, so that Christ�s power may rest on me.

Posts: 1445 | From Poconos, PA | Registered: Jul 2004  |  IP: Logged | Report this post to a Moderator
Winni
LymeNet Contributor
Member # 36772

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You are too funny! I read some posts and beg God not to let that particular symptom hit me! I totally understand. Thanks for the suggestion, that makes sense. I follow up with the neurologist in 2 weeks and will see what she can do to help. She wanted me to take an rx. for high blood pressure that may help with he throbbing, but I don't have high blood pressure. So frustrating. The side effects were horrifying and had alot of drug interactions. I said no way!

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Winni

Posts: 150 | From Nebraska | Registered: Mar 2012  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

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-
Unless that neurologist is LL, don't expect much. And don't take ANYTHING without FIRST talking about it with your LLMD.
-

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
glm1111
Frequent Contributor (5K+ posts)
Member # 16556

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Have you looked into treating parasites/worms? They can play a MAJOR part in Lyme and is often an overlooked co-infection even by the best LLMDs. Internal vibrations can definitely be one of the symptoms.

I had them for yrs until I discovered I was loaded with parasites. Check out www.lymephotos.com This is what came out of me after 6 mos of LOTS of antiparasitic herbs and salt/c.

Parasites hibernate in the small intestine and could be a reason that you are feeling throbbing from the waist up. Google parasite symptoms and research all you can about parasites.

Gael

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PARASITES/WORMS ARE NOW
RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS*

Posts: 6418 | From philadelphia pa | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
Lymetoo
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Moving to Medical Questions for more help.

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--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
   

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