I haven't been active on Lymenet for quite a while, except to periodically try to get LLMD referrals for friends in other states.
Anyway, even though I've been treating Lyme & Co for several years, many friends and family members still don't really understand herxing. They often think I'm referring to a drug side effect.
So, I videotaped myself at the beginning and end of an infusion to show what a herx is like, and I also provided information about what a herx is, how it's different than a drug side effect, and how I can tell the difference between a herx and a bad reaction to a drug.
I am hoping this post will also be useful to other Lymies, their friends and families, and possibly to doctors who want to learn more about TBDs, their effects and treatment.
The videos are of me infusing a new, higher dose of Rifampin. The post is called What a Bartonella Herx Looks Like, and you can find it here:
Hi KW. Good luck with your treatment. If you're doing oral abx, usually the herx comes on much slower than IV, and IME it also lasts longer.
In case you haven't already heard this (I hadn't, when I started), I *strongly* recommend starting doses (regardless of whether it's oral, IV, IM, etc.) at quarter- or half-doses and then ramping up as you tolerate them.
I didn't realize how brutal and damaging herxes could be, and I was so determined to go full-speed-ahead that I started several full-strength treatments at once. Now I start at a quarter dose and then raise it incrementally as the herx subsides.
For example, the video was taken on the day I started my full-strength dose for the first time. But I'd started 4 weeks earlier on a quarter dose and then gone up to a half and then three-quarters. My herxing had been more severe when I started a half dose.
Take good care.
Posts: 223 | From Western Mass. | Registered: Nov 2008
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Thanks for sharing this very informative video!!! I'm so sorry you're having such a hard time with this.....I do understand. There is light at the end of the tunnel, I promise.
I remember while I was in treatment for early disseminated Lyme, I made a video diary of my experience. One of the videos was of a herx, but not as severe as yours. I'm reminded daily how fortunate I was to have begun treatment 2 months after infection, which gave me a better chance of recovery.
I pray for a speedy recovery for you!
-------------------- Early Disseminated LD- 2010. Currently doing acupuncture and yoga. Negative Igenex (IND & Pos Bands) ISSUES AFTER: Tendonitis, letter reversal, Low immune system. PREVENTION:SaltC,Iodine,Humaworm, Chiropractic. Posts: 1013 | From In a van down by the river. | Registered: Jun 2010
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