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» LymeNet Flash » Questions and Discussion » General Support » WORLDWIDE LYME DISEASE PROTEST

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Author Topic: WORLDWIDE LYME DISEASE PROTEST
ellenluba
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NYC is having a major rally on May 10th as part of Worldwide Lyme Disease Protest. Events will happen in 30 countries and 25 cities.

Please come to NYC to join this historic rally. We have got to make our voices heard if we are ever to be guaranteed effective care and research for a cure.
http://worldwidelymediseaseprotestus.blogspot.com/2013/02/new-york-worldwide-lyme-disease.html
Ellen

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Posts: 819 | From New York, NY | Registered: Oct 2001  |  IP: Logged | Report this post to a Moderator
droid1226
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I wouldn't be able to make it if it was down the street let alone NY but I submitted a pic to their FB page

https://www.facebook.com/worldwidelymeprotest

I don't mean to tell people what to do. But this is so important that we all at least should try to do something to contribute to this cause.

If you just take an anonymous pic of yourself and submit it to their FB page, you'll make the video that they are putting together for it.

It would take 5 mins.

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http://www.youtube.com/user/droid1226/videos?view=0&flow=grid

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faithful777
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**moving to general**

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Faithful

Just sharing my experience, I am not a doctor.

Posts: 2680 | From Colorado | Registered: Oct 2009  |  IP: Logged | Report this post to a Moderator
Tincup
Honored Contributor (10K+ posts)
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Go, go, go the way the wind blows!

NY City is the place to be!

[Big Grin]

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www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
Tincup
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Tis time to pack up the babies, grab the old ladies and county come to town!

For May is Lyme Disease Awareness Month, NY City is host to some of our favorite Lyme folks, with our wonderful Dr. J being one of them!

More information about this special NY event is on the Lyme Disease Association website.

http://www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=1129:ny-lyme-rally-union-square&catid=7:conflict-report&Itemid=398

Please share! Thanks!

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www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

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tdtid
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We too have a protest going in New Hampshire as part of the Worldwide Lyme Disease Protests. I keep hearing 30 countries and 20 plus states involved.

Does any one know where a list is that actually tells what countries and states are stepping up to the plate?

Also...looks like NYC has an amazing event planned. Thank you for sharing.

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"To Dream The Impossible Dream" Man of La Mancha

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tdtid
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Ignore my request. I saw it on the FB link. Thank you for all those involved in any state of country.

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"To Dream The Impossible Dream" Man of La Mancha

Posts: 2638 | From New Hampshire | Registered: Oct 2006  |  IP: Logged | Report this post to a Moderator
map1131
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For Immediate Release
May is National Lyme Disease Awareness Month and the Kentuckiana Lyme Support
Group offers a free showing of the award winning documentary Under Our Skin on
5/11 at 5pm

The Kentuckiana Lyme Support Group is hosting a free showing of the award
winning documentary Under Our Skin at 5pm on May 11th at Hurstbourne Christian
Church at 601 Nottingham Parkway, Louisville, KY 40222.

In addition to activities in the US, Lyme advocates in 30 countries are hosting awareness and education events on May 10th & 11th as a part of a Worldwide Lyme Protest.

The Center for Disease Control and Prevention (CDC) estimates that more 1 million US residents have been infected with Lyme disease between 2009 and 2011 alone.

It is the fastest growing infectious disease in America and the vast majority of those infected remain undiagnosed or misdiagnosed with ailments such as Chronic Fatigue Syndrome, Fibromyalgia, Lupus, Rheumatoid Arthritis, Dementia, Autism and even MS and ALS.

The primary vector of Lyme disease is the tiny Deer Tick, and the presence of this species is growing in and around Kentuckiana.

Released in 2008, Under Our Skin explains the key issues surrounding the prevention and treatment of Lyme disease and the devastating effects of infections that are under treated and allowed to spread due to ignorance surrounding the facts and scope of this epidemic.

With more than 4.3 million people infected since 1990 according to CDC statistics, many know someone suffering with Lyme disease.

In the absence of an appropriate national public health response to this growing epidemic, more and more families will face the trauma and sadness of supporting a loved one suffering from this debilitating and deadly disease.

Please share this invitation with others and encourage them to attend this event. For more information you can phone (502) 383-1660 or visit
www.kentuckyindianalymesupport.org

Directions to the church can be found here: http://www.hccnews.org/location.htm
Trailer for Under Our Skin can be viewed here: http://www.youtube.com/openeyepictures

Contact Logan McCulloch at [email protected]

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This list is intended for patients to support each other and to share information and personal experiences, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor.

Note-You can also contact me by private messaging on this site or by email [email protected]

Pam

[ 05-02-2013, 01:53 AM: Message edited by: Robin123 ]

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"Never, never, never, never, never give up" Winston Churchill

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Talktel
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Ellen,

I'm going through a very rough time, but if I can I will be there with my husband.

Are there any seats for those too disabled to stand?

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RI

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Lymetoo
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I know there's an event in St Louis, MO.

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--Lymetutu--
Opinions, not medical advice!

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koo
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I noticed there were only around 2.000 likes on The Wordwide Lyme Protest Facebook page.

Do you think we are all still feel awkward about putting it out there? I know I do and I find it difficult to explain why. You can also change your FB status to a Lyme Lives Here USA logo as a show of support. I was going to do that plus "like" the site but something held me back.

I have dealt with this disease very quietly and very privately and part of me wanted to put this out there, but so far I just can't do it. I think we are so used to going underground that it is difficult to let that go.

Thank goodness for this board where I can come here and vent.

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MamaBear11
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Where can we find a "Lyme lives here" USA logo? Anyone know?

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Untreated Lyme for 25+ years.
Two kids, too much pain & fatigue, no hope of ever being able to treat.

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MamaBear11
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Never mind. I found it here:

http://worldwidelymediseaseprotestus.blogspot.com/p/ribbons-across-america.html

--------------------
Untreated Lyme for 25+ years.
Two kids, too much pain & fatigue, no hope of ever being able to treat.

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OptiMisTick
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Lalalalala.

Practicing for my cheers and songs for the Rally.

UP!

Come join us!!

Posts: 1338 | From Above the Clouds | Registered: Nov 2000  |  IP: Logged | Report this post to a Moderator
healthywealthywise
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I wish someone famous to the US would be attending for the media exposure....but it appears no "names" are speaking?

No Yolanda Foster, no Daryl Hall, no Amy Tans? I fear the media at large will not care and see it as just "another protest in the park".

Sad, but true?

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lpkayak
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good speakers...im in bed with back spasms but am having puter set up so i can watch and listen...hope it all works

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Lyme? Its complicated. Educate yourself.

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Lymetoo
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How do you watch online?

--------------------
--Lymetutu--
Opinions, not medical advice!

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lpkayak
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i cant figure it out---it seems to me the clock is going backwards

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Lyme? Its complicated. Educate yourself.

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map1131
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Robin123, your mail box if full. So I'll just post it here. Thanks for cleaning up my big block thread above.

If I only had a brain (non-lyme) I would of realized and cleaned/spaced it up myself.

Thanks again,
Pam

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"Never, never, never, never, never give up" Winston Churchill

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Eight Legs Bad
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Hello all,

We had our protest here in London on 10 May - it was the largest we have had so far and garnered a lot of media attention, including on national TV (very rare for us).

I am sorry to report that our main Lyme disease campaign, "Lyme Disease Action" distanced itself from the protest and only gave it a passing mention, no real support. We were protesting outside our Dept of Health and as LDA's official new policy is that they are "co-operating" with the Dept of Health, they could not be seen to be protesting outside it. They are assuring us that great things are coming from their co-operation with the authorities, especially our main Lyme testing lab at Porton Down (which also just happens to be our main biowarfare centre).But in fact nothing has changed whatsoever.

There are many videos of it online, but I like this one as although the quality is poor, it does show that biowarfare issue was raised at our rally - something we were told by the organiser was not allowed!

https://www.youtube.com/watch?v=sa8isA9xP5k

Elena

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Justice will be ours.

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LisaS
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I know this is an old post now, but I just got brought back to it searching for something in the past.. and I want to mention that Yolanda Foster did show up to the California Worldwide Lyme Protest. There were multiple protests held across not only the US but the world. For pictures of Yolanda you can click here http://worldwidelymediseaseprotestus.blogspot.com/2013/02/california-worldwide-protest.html

and for pictures of all the protests you can visit here and hover over each country and which year you want, as we did it two years in a row now. http://www.worldwidelymeassociation.com/

Thanks to whoever started this post and to all of you who supported it!

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https://www.facebook.com/profile.php?id=1660435643

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