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» LymeNet Flash » Questions and Discussion » General Support » will we get reports back about the rally?

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Author Topic: will we get reports back about the rally?
lpkayak
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couldnt find anything anywhere

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Lyme? Its complicated. Educate yourself.

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Lymetoo
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Hope so! They must all be too tired to post!

--------------------
--Lymetutu--
Opinions, not medical advice!

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beaches
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Well, hey it's 11:00 pm on the East Coast.

I'm waaaaiiiitttttiiiinnnnngggg....to hear all the details!

Are they all too tuckered out to post or have they all thrown caution to the wind and decided to stay out all night partying in NYC?

I sure hope it's the latter, but I doubt it!

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lax mom
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Hoops posted in General that maybe 100 turned out. Everyone must be too sick.

I know I couldn't have gone even if the rally was in my own neighborhood, let alone my own state.

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http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=115161;p=0

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beaches
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Hi lax, I can't find that...could you post the link?
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lpkayak
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i couldnt find anything in the papers or news or online

something wierd happened here-nh-i hope i hear about it eventually...tidid was supposed to be there i thing

their plans sounded wonderful...lots of green lights and other stuff...and a dance...a flash mob thing...i am so out of it im not sure what that is...but i think they were all going to wear green and do a dance...many of them...the state organizer is great-very organized and incredible energy...

so i googled it and found a reference and pic of all these green flash mobbers...but the text said they were bringing attention to mental health for kids or something????? they all had lime green shirts on-is someone else steeling our color?

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Lyme? Its complicated. Educate yourself.

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lpkayak
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https://www.facebook.com/pages/Lyme411-non-profit/143550899002855

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Lyme? Its complicated. Educate yourself.

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OptiMisTick
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[ 09-20-2013, 02:11 AM: Message edited by: OptiMisTick ]

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lax mom
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http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=124254;p=0

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♥ ♥ ♥ ♥ ♥
(aperture)
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=115161;p=0

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lpkayak
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thanks opti...sleep well. i am getting kinda mad here. for those ppl to actually get themselves there and NO media coverage???

i know how good the speakers were...would have loved to be there...well...i know enoguh about nyc to know i couldnt be there now...but would have loved to be in the company of all of you

there was an idea in the above thread that sounded good...except i dont really understand it...

this from lymed in 2010:

What we need is for people to go on skype and log in online to see the rally live & for the rally to have a big video cube with scrolling blocks of live video from each person attending via the net.

"Imagine that video screen and grid block & on there indicating city/state/country of each live person. It would have a much bigger impact when they see people from all over the world."

sound good? to those who 'GET IT'

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Lyme? Its complicated. Educate yourself.

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Tincup
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I have heard nothing but good things about the rally so far!

[Big Grin]

If anyone knew how hard it is to do this kind of project, the travel and overnight expenses, and how many healthy hours are spent by dozens of people working it every direction possible, and how many $$ are needed, it would amaze you, especially considering most who care about Lyme are NOT healthy and don't have "healthy hours" to spare nor much money to donate either.

Just attending one conference can wear me out for weeks, and the last thing I feel like doing once home is to try to report on it, though my heart says do it anyway.

My bet is in time you'll see and hear more. Right now "rest" is on the menu of those working to put it together and those who attended. Bless their hearts!

[Big Grin]

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lpkayak
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hi tin...i just wish the media had put it on the news or in the papers...

you tube and facebook have stuff...

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Lyme? Its complicated. Educate yourself.

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Lymetoo
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News report:

http://www.timesunion.com/local/article/Lyme-disease-debate-surges-4507216.php

--------------------
--Lymetutu--
Opinions, not medical advice!

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lpkayak
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thx tutu...thats where i used to live...some good stuff, some not

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Lyme? Its complicated. Educate yourself.

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lpkayak
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http://www.fosters.com/apps/pbcs.dll/article?AID=/20130509/GJCOMMUNITY_01/130509164/-1/ROCNEWS0104&template=RochesterRegion

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Lyme? Its complicated. Educate yourself.

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OptiMisTick
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Ooohhhh I hurt.

http://www.poughkeepsiejournal.com/article/20130511/NEWS01/305110024/Hundreds-protest-CDC-s-Lyme-treatment-guidelines-at-NYC-rally

I posted few pix on a diff site but then the site erased them.

Try again tomorrow..........sleep....sleep......sleep...zzzzzzzzzzzzzz...

[ 05-12-2013, 02:24 AM: Message edited by: OptiMisTick ]

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ticksickfamily
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From the BBC, following on from the London Lyme protest http://www.bbc.co.uk/news/health-22468181
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Lymetoo
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Thanks for the links!

--------------------
--Lymetutu--
Opinions, not medical advice!

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OptiMisTick
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Boston Globe was there but coming from AS-town, I am not sure what their coverage would be like, so far seen nothing - Boston understandably has bigger concerns and a Mothers March for Peace.

Nothing yesterday or today. If someone knows where there is a free site for posting maybe 5 - 10 pix on line for public access (no names) let me know. I had them on a diff site Lyme411 and it accepted the, with labelling, then when I was all done (slowly, I was doing this in my sleep) - and I stood back, suddenly the whole thing disappeared, never to return.

Or maybe it was a dream........no seriously, it happened.

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seibertneurolyme
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There are a few more links to news articles at the site below. Also an address for Under Our Skin -- they are looking for photos as well.

http://worldwidelymediseaseprotestus.blogspot.com

Bea Seibert

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lpkayak
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opti-thx for that link...i havent seen pat and rachel in such a long time...theres was one of the first support groups i went to and i remember many of those meetings as if they were yesterday...wierd with a memory like mine.

also...lyme411 lookes so good...but maybe something went wrong...i can email you contact info for the leader of that group...but she will probably sort out the problems.

they had so much planned into the nite and then thunderstorms were around...but i also think i saw something reported wrong...they did a dance...many of them in lime green shirts...and it was reported to be a protest for something other than lyme...but i have a lyme brain so maybe i got it wrong...but if you had trouble too...maybe i didn

t im gonna go back to the main facebook place and see if i can see more...thx to all. hope you get some r and r

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Lyme? Its complicated. Educate yourself.

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Lymetoo
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Rally .. Pam Weintraub...

http://www.youtube.com/watch?v=_zOU1HTfUXc&feature=youtu.be

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95055 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
   

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