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» LymeNet Flash » Questions and Discussion » General Support » Sad but more chronics are in the making

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Author Topic: Sad but more chronics are in the making
Cockapoo1996
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This is what is on the boy my daughter baby sits for. They went to the doctor who said wait and see if he develops symptoms. Parents are sceptical only bc my daughter told them about me. Hopefully they will seek further advice. I gave them famous name but I doubt they can get appt. [shake]

[ 07-09-2013, 09:17 PM: Message edited by: Cockapoo1996 ]

Posts: 472 | From New Jersey | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
Keebler
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Might you be able to print these two complete posts - and simply give them this?
-------------------------------------

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=015508;p=0

Diagnosing Lyme Disease (&/or whatever else is going on)

Other tick-borne infections and other chronic stealth infections - as well as certain conditions that can hold us back - are discussed here.


http://www.anapsid.org/lyme/lymeseroneg.html

Reasons for False Negative (Seronegative) Test Results in Lyme Disease


http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=013239;p=0

What is a LLMD? LL ND? What is ILADS?

WHY you need an ILADS "educated" or "minded" Lyme Literate doctor (whether MD or ND, or both) - starting with assessment / evaluation.

Medical "models" explained here, as to differences in the ISDA & ILADS models of assessment & treatment - and exactly why it is so very important to know the differences.


How just doxycycline (or other antibiotics), alone, can cause chronic lyme to develop:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=120369;p=0

Topic: replication within cystic forms of lyme
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
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Lyme education organizations:

Treat The Bite - http://www.TreatTheBite.com

ILADS - www.ilads.org

Lyme Disease ASSOCIATION - http://www.lymediseaseassociation.org

Tick-Borne Disease Alliance - http://tbdalliance.org

Lyme Research Alliance - http://www.lymeresearchalliance.org/

Lyme Disease.org - http://www.lymedisease.org

The state discussion groups through this last link:

http://www.lymedisease.org/resources/support.html
-------------------

- Not an exclusive or formal list. Remember to connect with STATE and LOCAL lyme support groups for the best area options. Just always check to be sure they are of like-mind with the groups above, with ILADS as the educational base.

Each group above has a unique focus, yet they are all fully "lyme literate" - as well as tick-borne infection literate (as lyme rarely travels alone). All are ILADS "minded" -- bringing them all together.
-

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Cockapoo1996
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I will send my daughter this link. Thank you Keebler. The doctor gave them some story about it being a spider bite and that antibiotics are harmful. Hard to believe in NJ where chronic Lyme is so common that their doctor could be so ignorant. I wonder what he/she would do for their own child.
Posts: 472 | From New Jersey | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
Keebler
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Well, it's true that not everything is lyme. See the RASH photos in the diagnosis links above.

The photo you apparently posted does not show up on this thread - just some glitchy icon that indicates a photo was tried and missed.


Most Rx have both benefits and risks. No real LLMD is going to treat for lyme if they do not have an excellent assessment that it's lyme. They will assess first. If it is determined to be lyme:

1. Much more dangerous: the risk of untreated lyme (and usually with other tick-borne infection).

2. Combinations of the right Rx are vital to correct treatment. Risk is greater with doctors who are not fully educated to the need or administration specifics of full combination protocols.

3. To help the body better tolerate Rx treatment, detail important to everyone (not just those with lyme):


http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=3;t=030792;p=0

LIVER & KIDNEY SUPPORT & and several HERXHEIMER support links, too.
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[ 07-09-2013, 07:21 PM: Message edited by: Keebler ]

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GretaM
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Argh... spider bite. Yeah right. Next dx will be ringworm...

You would think by now that docs would realize that tick bites are more frequent than spider bites. Why? Because a spider is quite happy with insects for it's meal, whereas ticks are bloodsuckers.

So frustrating.

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map1131
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This breaks my heart. I hope someone can get these parents being pro-active, instead of reactive.

Which in this case could be years of illness in this child. Stupid doctor=suffering.

Pam

--------------------
"Never, never, never, never, never give up" Winston Churchill

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Lymetoo
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Spider bite!? READ THIS!!!

http://news.yahoo.com/surprising-cause-most-spider-bites-163944651.html

--------------------
--Lymetutu--
Opinions, not medical advice!

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Cockapoo1996
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Good news on this one. Parents let my daughter take their son to another doctor this afternoon. I told her to throw out all her knowledge, co-infections including Rocky Mountain etc.

He was reluctant but wrote the prescription for 3 weeks of amox. Hope they give it to him and that it is enough. Yey for my daughter!! Too bad we can't save more.

Interesting about spiders not liking to bite. Wish they would teach that in med school.

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map1131
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That's great news cockapoo. Hopefully a child spared.

I'm hearing more and more stories of patients informing the docs what they know and standing their ground on the need to take abx now. Docs are caving even with all the literature lately about over usage of abx.

Pam

--------------------
"Never, never, never, never, never give up" Winston Churchill

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Keebler
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The parents still need this to help a child go through a herx. There are some notes here for children:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=3;t=030792;p=0

LIVER & KIDNEY SUPPORT & and several HERXHEIMER support links, too.
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
   

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