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Author Topic: im in rehab
lpkayak
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!!!

--------------------
Lyme? Its complicated. Educate yourself.

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Lymetoo
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YEA!! I just talked to S and was coming here to tell everyone!

Sorry that you can't get phone service...though maybe you can NOW??

Hope you are getting better each day!! [Smile]

--------------------
--Lymetutu--
Opinions, not medical advice!

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gonzo
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Welcome back ! Take advantage of rehabilitation .work hard but smart. Great news made my day. [Smile]
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Catgirl
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Right on! Feel better soon!

--------------------
--Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together).

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kam
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good to hear from you....
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momindeep
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Yeeha!...good news for the very soul!
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GretaM
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Yay-good stuff LP!
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Anthropologista
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Great to hear from you! Really glad you're in rehab. Welcome back. Heal well.
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daynise
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[group hug] [group hug] [group hug]
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MannaMe
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Get well soon!
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map1131
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lp, take care of you. I'm going to be watching you to make sure you don't go back to juggling to many balls at one time.

I'll send the lymenet patrol after you. [tsk]

Pam

--------------------
"Never, never, never, never, never give up" Winston Churchill

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steve1906
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Hope you feel better soon!!!

 -

--------------------
Everything I say is just my opinion!

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lpkayak
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Is tylanol an anti inflam? Can u take it with ibu? Plz help

--------------------
Lyme? Its complicated. Educate yourself.

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Dogsandcats
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Take care and keep us posted when you are able!

--------------------
God will prepare everything for our perfect happiness in heaven, and if it takes my dog being there, I believe he'll be there.

Billy Graham

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Lymetoo
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It is not an anti-inflammatory. I would not suggest taking it with ibuprofen. Tylenol can be very dangerous.

This says you can:

http://www.safemedication.com/safemed/PharmacistsJournal/CanYouDoubleUponPainKillers.aspx

--------------------
--Lymetutu--
Opinions, not medical advice!

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lpkayak
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I believe u are correct but all here insist it is anti inflam and should b taken with tylanol...they arr making me crazy

--------------------
Lyme? Its complicated. Educate yourself.

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Judie
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Tylenol is NOT anti-inflam. It masks pain.

Ibuprofen is an anti-inflam. It's an NSAID (non-steroidal anti-inflammatory drug).

Drugs like Excedrin combines the active ingredient in Tylenol with aspirin (an NSAID) and caffeine.

Excedrin was one of the best pain-relievers when I could tolerate it.

Also NSAIDs can make you have photosensitivity (I just learned that the hard way). Stay out of the sun if you use them.

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Lymetoo
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quote:
Originally posted by Judie:

Tylenol is NOT anti-inflam. It masks pain.

Ibuprofen is an anti-inflam. It's an NSAID (non-steroidal anti-inflammatory drug).


-
exactly

--------------------
--Lymetutu--
Opinions, not medical advice!

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Rivendell
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Best Wishes Kayak.

May you be well.

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Anthropologista
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Yes, good luck with the inflam, LP. Take care of yourself.
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Shiela
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Glad to hear!

--------------------
I'm not there yet but I'm closer than I was yesterday.----
Lyme Band 31,41,58. Being treated for Lyme and Bartonella.

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beaches
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Glad you're in rehab. Sorry to hear they're driving you nuts! I agree that the tylenol isn't a good idea FWIW.
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Kudzuslipper
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Good to see you post kayak. Hope you rehab well and quickly.
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lyme in Putnam
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Feel good. God bless.

--------------------
He took u to it, He'll you through

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lpkayak
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They had a meeting. My pain should be controlled by tomorrow. Hope it happens so i can go forward not backward. I feel like it is a joke to them. They get off on seeing me in pain

--------------------
Lyme? Its complicated. Educate yourself.

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Lymetoo
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Kayak told me today that she was having "weird pains" and they were making sure she didn't have a blood clot or something.

--------------------
--Lymetutu--
Opinions, not medical advice!

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dbpei
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Sending prayers your way, Kayak. I hope the pain and inflammation go down. Praying you do not have a blood clot.

Ditto to above info that ibuprofen is anti-inflammatory but Tylenol is not. For some reason, docs and nurses like to recommend tylenol to control the pain. Motrin or ibuprofen help with inflammation (and reduce pain as a result).

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Lymetoo
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She told me last night that they started the PT again so she must be OK. She said they didn't TELL HER she was OK, but she is "going with it."

[Smile]

--------------------
--Lymetutu--
Opinions, not medical advice!

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kam
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Praying she is improving every day and feels more human each day
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OtterJ
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Ip, keep arguing with them. This means you are getting well. If this was a spa setting, you and everyone else wouldn't want to leave. Just about the timeyou want to stomp out of there because of the food or meds or whatever issues, that is the time you will be released to home. Hang in there!
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lpkayak
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By 2pm sat i finaly started to get pAine meds right feel better-do better. In PT

Also able to deal with a few extra things

Will try to get some sleep now

TY for being here

--------------------
Lyme? Its complicated. Educate yourself.

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GretaM
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Thanks for the update LP. Glad you were given some pain meds and are sticking with the PT

You're a strong woman [Smile]

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lpkayak
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Didnt have a great nite because i still had to fight for pain meds. But i did get them and did get some sleep

I am now fighting for a.m. pain meds and so far am suceeding

Hope i get them b4 PT at 11

Im hoping for my 1st shower in 9 days also

Also have to figure how to do laundry

Spent time with pretty english pointer therapy dog yrsterdy

My uncotrolled body movements are increasimg

What r they from...maybe cuz 90% of food is procrssed? ??

--------------------
Lyme? Its complicated. Educate yourself.

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momindeep
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kayak...There are times I so wish I could help someone on lymenet...come and clean and cook and advocate for them...you would be one of those people...hands down.

I am asking the Lord to set you up with all the things you need...everything...He can do exceeding, abundantly and more than anyone. That is my prayer for you.


.

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lpkayak
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Ty mom..so nice of u

--------------------
Lyme? Its complicated. Educate yourself.

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gonzo
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Lp its great to see your postinng,, don't over do it. Feel good D.
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kam
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kayak....it will be good to hear when you are home. When do you think that will be??
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Kudzuslipper
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HI Kayak, just checking in on you. How are you doing? glad you are getting some pain relief. uhhhg.rehab food.
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Lymetoo
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Kayak.. good to hear from you!! Keep after those folks!!

As for the body movements, you are not getting your usual supplements! The most likely reason!

All drugs deplete magnesium, so there is another problem. Even the anesthesia depleted you of many nutrients.

So that on top of lousy processed food = YUCK!

Take care, we'll keep praying! [Smile]

--------------------
--Lymetutu--
Opinions, not medical advice!

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sammy
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Hi Kayak, I've been following all of your updates, thinking of you and praying for you often.

Rehab is tough, it is certainly not home. I hope that you can heal quickly and regain your strength so that you can get back home soon. It's hard not being able to do all your normal things and care for yourself as you like.

Keep up with the positive attitude to get you through. You've only got a little more to go, each day you get stronger and closer to home.

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lpkayak
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Thx for replys. I never got pain meds right and exhausted myself trying so they wouldnt let me do therapy. That made me cry but then i called my son and told him to call whos in charge and tell them i am paying a lot of money to improve here and their excellent therapy dept cant do anything if nursing doesnt. Get the pills in me

In short time a new nurse was here...she caught up pills...put on mmy blod clot sox that werr 6 hrs late. Ihad excellent therapy hr

Back in room i just collapsed. I didnt think about pills. Nuse came in quiet twice and gave them to me...she was so on top of it i didnt feel i had to keep track

I really rested...ate...no comment...and will finish up laundry and early bed

At one point morning nursr sort of yelled me saying it was my fault i had asked 3x for mylanta cuz the floor director had been speaking with her for an hr-i guess about me-but then she was gone

An np and doc also came in

It feels good to trust the nurse will give the meds right...really hope it stays this way

Im real tired now but wanted to let u knoe. Talk soon

--------------------
Lyme? Its complicated. Educate yourself.

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Anthropologista
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Sorry you've had to fight for pain meds, LP. Brilliant strategy re. your son! Hope the nurses keep on top of the meds--and stop yelling at you. Good luck with PT. Healing and strengthening wishes!
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lpkayak
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Thx for replys. I never got pain meds right and exhausted myself trying so they wouldnt let me do therapy. That made me cry but then i called my son and told him to call whos in charge and tell them i am paying a lot of money to improve here and their excellent therapy dept cant do anything if nursing doesnt. Get the pills in me

In short time a new nurse was here...she caught up pills...put on mmy blod clot sox that werr 6 hrs late. Ihad excellent therapy hr

Back in room i just collapsed. I didnt think about pills. Nuse came in quiet twice and gave them to me...she was so on top of it i didnt feel i had to keep track

I really rested...ate...no comment...and will finish up laundry and early bed

At one point morning nursr sort of yelled me saying it was my fault i had asked 3x for mylanta cuz the floor director had been speaking with her for an hr-i guess about me-but then she was gone

An np and doc also came in

It feels good to trust the nurse will give the meds right...really hope it stays this way

Im real tired now but wanted to let u knoe. Talk soon

--------------------
Lyme? Its complicated. Educate yourself.

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kam
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thanks for letting us know kayak. Yes. It is very good to be able to trust the nurse who is giving you the meds.
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Lymetoo
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You call "S" if they backslide again. You are so right .. you are paying for them to take care of you! Now they are on notice.

[cussing]

--------------------
--Lymetutu--
Opinions, not medical advice!

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Jane2904
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Hope things improve for you and they get the pain meds on track.
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Silverwolf
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<<<<< 'kayak >>>>>,

Prayers going up for a good quick recovery for you. Glad you spoke to your son re: the pain meds.

When TxC' was in rehab for 5 wks. after his first knee replacement,we had some trouble getting them to keep his meds straight.

We are keeping you in our tho'ts.

Jus' Silverwolfi here

--------------------
2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain.
[ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94
Diabetes*2 Dx 10/'08

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just don
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best wishes

--------------------
just don

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Lymetoo
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Don is back!!!

[woohoo]

Welcome back, bro!!

--------------------
--Lymetutu--
Opinions, not medical advice!

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lpkayak
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hi don...glsd you're back

im in the family room using their computer...i dont know thei keyboard...

really hard but good day. 3 nurses in a row were trustworthy...tonihgt a little shaky again

i had to be a pain today too...but the PT stuck up for me before and after therapy-and it worked

i having to learn to walk using only the leg surgery was done on...and very minimal use of other leg so i dont ruin it b4 it gets replaced.

the thinking part was hard for me to get...after a surg like this the last thing you feel like doing is walking ont the leg that had surgery. i am getting it tho.

instead of passive range of motion machine they have me on one where i have to work and will make muscle. it is like a recumbant bike and i hope it will get my gi tract moving too

it was sad in PT when i saw ppl who i swear have lyme and they are ignoring the lyme sx-like severe headach-and pushing these pple to do stuff...i rarely had headaches but i had a best friend with lyme with headaches and i saw what she went thru and heard on here about all the problems...i willl keep my mouth shut tho and mind my business,,,this is not the place...

OH...guess what the doc in charge of my unit is a NP. we have met a few times because of the problems. i know i drove him nuts at first but he really handled it well. i could see right away he was pretty smart.

so after a long talk and me picking his brain about leaky gut and other stuff...esp gi and bowels...i asked him if tylanol is an anti-inflammatory like my surgeon insisted it was. the NP said no adn began to explain to me the difference betweee antiinflams and tylanol...which is what i already know but every nurse and aide in this place will insist tylanol is an inti inflam. they were all taught that.

what ever. i like this np and he told me his boss(who taught him) had a private practice in my town so i plan to change to him for my primary

i napped inbetween therapys but seem to have a second wind now.

im looking forward to tomorrow ... thank you guys for beiing here for me thru all of this

--------------------
Lyme? Its complicated. Educate yourself.

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daynise
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Hi Lpkayak,

I am sorry to see you have had to struggle while you are in rehab, but I'm so glad you've been asking questions and advocating for yourself!

Wow- those people sound crazy! To not even have a basic understanding of Tylenol and Ibuprofen?

I hope you get stronger quickly and get to go home soon.

[group hug]

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momindeep
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Thinking of you today...praying for a steady, forward, recovery.
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lpkayak
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Ty. Ive tried all night to give nurse benefit of doubt...but i swear shes a control freak...she apologizes for being late. Ptomises a time for nrxt pill..then comes late again. Its like torture

And then she put on gloves, changed the bandage, then took off the gloves to use her nails to get tape cuz.she did it wrong. Wheni asked the aide if it was ok she found a two in sspace that was open


All of this is mmotivating. Me so much in therapy...it scares. Me here-i want to go home...but it would be really hard now

--------------------
Lyme? Its complicated. Educate yourself.

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Lymetoo
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I'll come back tomorrow for more comments, kayak! Sounds like you are making progress! So happy that you will have a good Dr when you get home!

Keep after those nurses! [Big Grin]

--------------------
--Lymetutu--
Opinions, not medical advice!

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daynise
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don't hesitate to call on your son again to help you either- you are going through a lot- sending you hugs and prayers for rest tonight. [group hug]
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GretaM
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Praying for you LP. Hope you have a speedy recovery so you can get back home soon.
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lpkayak
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i had another productive day and i am very tired and sore. again i am in family room and using their computer.

what happened is the surgeon changed orders and saaid it was ok for me to use left leg (the sone that still needs surg) until now i supposed to work the leg that had surgery without using the good leg...IT WAS HARD!!!

i finally got the hang of it and was building up(or destroying) my upper body when doc changed order. now most is easy...but i have worked really hard when on many meds

i have myoclonus pretty bad. in reading about it it can come from many drugs and mixing drugs and also anesthesia

since i can use the other leg and every thing will be easier i am going to start cutting back on the meds i take by choice-starting with the ones you can get addictive to.

this answer isnt perfect...cuz i will be huring the leg that still needs surg and that can make the chance of success much lower...but i will get home sooner and the other problems here are pretty significant.

so if all goes well i will go home friday and sllep with etta that night

--------------------
Lyme? Its complicated. Educate yourself.

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Lymetoo
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Kayak... Don't cut back so much that you can't get your legs rehabbed the way they need to be! I understand your concern about addiction, but I doubt you will end up there.

So sorry to hear about the myoclonus. Just one more thing! Maybe when you get home you can detox better and get the drugs out of your system.

Etta will be SO HAPPY! you should get someone to tape the "homecoming" with her!

--------------------
--Lymetutu--
Opinions, not medical advice!

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Keebler
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-
myoclonus (sorry to hear) - magnesium is one of the best remedies (PubMed even suggests that) and they may be able to give you IV or shots there. If shots, B-12 with them help take out the sting. Alone, it can really burn. But not with B-12 added.
-

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Lymetoo
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Kayak.. I would ask your Dr about the mag IV .. to see if it will help you. May as well while you are there.

--------------------
--Lymetutu--
Opinions, not medical advice!

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randibear
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I hope you get much better. Its a long rough road but you're getting care and attention you need and deserve.

We are all pulling for you

--------------------
do not look back when the only course is forward

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lpkayak
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i got another shower! i feel like i hit the jack pot

i think the problem here is it used to be rehab...now there is a wonderful rehab attached...but the nursing part where you sleep and go when not in therapy is set up as a nursing home...its hard to fit the two together...

gotta go to many therapy sessions today

--------------------
Lyme? Its complicated. Educate yourself.

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daynise
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Yay! I bet that shower made you feel so much better! Just two more days, right? You are almost there!! [group hug]
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lpkayak
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GOOD NEWS!!! i did not need any oral pain meds all night and had minimal pain. i am on fentenal patch.

i go home to morrow. in half hour my thereapy is getting in and out of car.

my pain level with patch feels like i dont need any help at home...but i will not be allowed to drive for awhile.

im not sure what it will be like to get off patch. i guess i will need orals and then have to wean off orals. hope it still goes good like this.

cant wait to see etta. i wonder if she will remember me.

--------------------
Lyme? Its complicated. Educate yourself.

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map1131
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lp, I could have sworn I told you to take one thing at a time. [tsk] Why would you be worrying about getting off the pain meds today?

Getting home is going to be sweet. Enjoy your time of healing. [Razz]

Pam

--------------------
"Never, never, never, never, never give up" Winston Churchill

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kam
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hurray glad to hear you are heading home.

Etta will be over joyed

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lpkayak
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i did good at my discharge
eval...ii will be glad to get out of here. there are a few good staff...but meany are really scarey to me. i hate the way some of them treat the patients with dementia

--------------------
Lyme? Its complicated. Educate yourself.

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Anthropologista
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So happy to hear that you're going home! But glad you had a good stretch of time to get the pain under control and to do PT. Enjoy all the doggie affection tomorrow--of course she'll remember you!
[woohoo]

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Lymetoo
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Etta will be doing flips!!! Congrats!!

[hi]

--------------------
--Lymetutu--
Opinions, not medical advice!

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momindeep
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Success!
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daynise
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Yay! So glad you are going home!! [group hug] [group hug] [group hug]
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Pocono Lyme
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[woohoo] [group hug]

Your four legged furry baby will be sooo happy to see you. Speedy recovery in the comfort of home.

You have shown amazing strength lp.
God bless.

--------------------
2 Corinthians 12:9-11


9 But he said to me, �My grace is sufficient for you, for my power is made perfect in weakness.� Therefore I will boast all the more gladly about my weaknesses, so that Christ�s power may rest on me.

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Jane2904
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So glad you are going home.

Best to you for a speedy recovery!!

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lpkayak
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im home...thanks for all the company while i was there!

--------------------
Lyme? Its complicated. Educate yourself.

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Lymetoo
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[woohoo]

How's it going so far?

--------------------
--Lymetutu--
Opinions, not medical advice!

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