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» LymeNet Flash » Questions and Discussion » General Support » Headed to m 1st LLMD any pointers

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Author Topic: Headed to m 1st LLMD any pointers
hurtinginoio
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I am going to see my 1st LLMD does anyone have any pointer for me?

What question do I need to ask him?

I have no clue what to ask except what I would ask my GP.

The other question I have, has anyone every been to this doctor in on Ohio Dr.D private message me for detail about this doctor.

This is very expensive and putting al this money up front is really scary

Posts: 52 | From Ohio | Registered: Oct 2013  |  IP: Logged | Report this post to a Moderator
Keebler
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When is your appointment? How much time do we have to reply?
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
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Basically, you listen . . . partly to be sure you HEAR his philosophy - and any red flags - so you know if he is on the right page. Also so that he can do his job and you can gather his expertise.

He will ask the right questions (if he is the right one).


http://flash.lymenet.org/ubb/Forum1/HTML/020605.html

Making the most of your LLMD visit (compiled by Melanie Reber)


http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/115161?#000000

What Makes a Lyme Doc Top Notch (TF shares this)
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
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Many LLMDs suggest support supplements. You might acquaint yourself with the basic premise and some of what can make a huge difference in how well a protocol is tolerated.


http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=3;t=030792;p=0

LIVER & KIDNEY SUPPORT & and several HERXHEIMER support links, too.


http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/89790

Topic: NATURAL SLEEP & ADRENAL SUPPORT
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
lax mom
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I sent you a PM. If he's the one I'm thinking of, I've only heard great things.

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Judie
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I always ask what can be taken with food or away from food.

I also ask what supplements/meds can be taken together and which shouldn't be combined.

Make a list of your symptoms (note the top 3 that are bothering you the most), drugs you are currently taking, and allergies.

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Keebler
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Not sure when your appt is, but hope you can get this book first. At least see the interview, read the article and look at the book link:


http://www.huffingtonpost.com/c-m-rubin/the-global-search-for-edu_b_4244055.html

The Global Search for Education: The 300,000 - Tick-Borne Disease

INTERVIEW with Author (of book below) - Nov. 9, 2013


http://www.amazon.com/s/ref=nb_sb_noss_2/184-1715542-5541137?url=search-alias%3Daps&field-keywords=lyme%2C%20Horowitz

Why Can't I Get Better?: Solving the Mystery of Lyme and Chronic Disease

- by a leading ILADS LLMD

Released this week, hot off the presses.


http://katiecouric.com/videos/category/100913-daniel-radcliffe-lyme-disease/

Katie Couric TV program interviews two doctors & patients

Chronic Lyme Disease - Oct. 9, 2013

Two clips - notice the huge difference between the ILADS doctor (author of the book above) and the IDSA doctor

- but you may not be able to catch the serious errors from the ID doctor until you read a lot more. This is why it's good to have an ILADS LLMD. They know far more about lyme.
--

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hurtinginoio
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Dec 9 is my appointment

we have a few weeks to teach me what I need to know and just for the record I have a very hard time comprehending (sp) things sometimes.

It also takes me time to remember things.

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hurtinginoio
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Yes, Lax mom, you are correct, and he is a ILADS doctor right, I am not confused on that, am I. I thought I read he belonged to it. Thank you Keebler and Judie I will read this and take notes and ask hose question. PLEASE keep the information coming.. ANd if anyone knows this doctor please contact me...
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lax mom
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Yes, he is ILADS.

One tip is to try to write a timeline of your symptoms. What started, when. That way he can piece together the story and see if there is a pattern that stands out.

Ex. for me, I stayed sick after my family had a stomach virus and my home had a freon leak.

Past history of toxic exposures: ex. pesticides, lead based paints, travel outside of the country.

Things you have tried, or Drs have tried and your response.

Is there a pattern that you see? Ex. For me everytime I had to take Levaquin for UTI's I would get horribly sick and couldn't tolerate it. I'm hypersensitive to meds and need baby doses to wean up.

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hurtinginoio
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Thanks, this is helping, This is what I need from my fellow supporter.

Information like this. Don't want to sound stupid, but I need step by step some times because my brain just does not work like it use to.

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TF
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Make the most complete list of symptoms you can. Use pages 9-10 of the Burrascano Guidelines to help you. They are here:

http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf

Also, look over the coinfections and the symptoms that go along with each. Pages 26-27 has a good list. List any of these that you have.

This all helps the doctor make the diagnosis.

Make 2 copies of your list--one for the doctor and one for yourself.

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TF
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Also, if someone can go with you into the appointment and take notes of what is said by the doctor, that will be a great memory aid for you.

I have done this for my friends. The doctor understands.

And, make a list of your questions for the doctor. Then, put them in priority order. This way, if you don't get to ask them all, you have at least asked the most important ones first.

If someone is taking notes for you, give them a copy of the question list. Then, they can write the answers under each question.

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map1131
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Start your list of questions. Just keep adding questions as they come to mind.

Not that you will need to ask all of them, because he could hit on several as he talks. But this will give you something visual to refer to.

Your mind, brain fog and the overwhelming feelings of "oh my goodness, a doctor who isn't treating like I'm a crazy patients" Blessings!!!!

Really good advice. If you don't get all questions answered, save the page, make thru covered stuff and keep the question list going.

You will be going back in 2-3 months. Don't forget where you put your question notebook. [shake]

Pam

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