LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » General Support » 23andme health analysis and genetic genie questions

 - UBBFriend: Email this page to someone!    
Author Topic: 23andme health analysis and genetic genie questions
Judie
Frequent Contributor (1K+ posts)
Member # 38323

Icon 1 posted      Profile for Judie     Send New Private Message       Edit/Delete Post   Reply With Quote 
For those of you who got the health analysis from 23andme prior to the shut down, did you find it helpful?

Was Genetic Genie like it?

I wanted to get the 23andme info specifically to analyze my health (especially related to Lyme and methylation).

Just wondering it's worth going through with it since they are now offering me a refund.

Thanks.

Posts: 2839 | From California | Registered: Jul 2012  |  IP: Logged | Report this post to a Moderator
TNT
Frequent Contributor (1K+ posts)
Member # 42349

Icon 1 posted      Profile for TNT     Send New Private Message       Edit/Delete Post   Reply With Quote 
I would like to know what others think about this too.

If the raw material is too complicated without their interpretation, and Genetic Genie doesn't give as much info, is it still worth getting the raw data and worrying about interpreting later?

Posts: 1308 | From Eastern USA | Registered: Oct 2013  |  IP: Logged | Report this post to a Moderator
lax mom
Frequent Contributor (1K+ posts)
Member # 38743

Icon 1 posted      Profile for lax mom         Edit/Delete Post   Reply With Quote 
Absolutely worth it! I ran my raw data through:
-genetic genie, MTHFRsupport.com, and Promethease through SNPedia. Those reports were priceless.

I would get the info while you still can. The results matched up with the lab tests I previously had for MTHFR and alpha-1 anti trypsin, as well as detox profiles and much, much more info.

--------------------
♥ ♥ ♥ ♥ ♥
(aperture)
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=115161;p=0

Posts: 2519 | From USA | Registered: Aug 2012  |  IP: Logged | Report this post to a Moderator
faithful777
Moderator
Member # 22872

Icon 1 posted      Profile for faithful777     Send New Private Message       Edit/Delete Post   Reply With Quote 
With 23andme being shut down, is there another place that does similar testing?

--------------------
Faithful

Just sharing my experience, I am not a doctor.

Posts: 2682 | From Colorado | Registered: Oct 2009  |  IP: Logged | Report this post to a Moderator
Robin123
Moderator
Member # 9197

Icon 1 posted      Profile for Robin123     Send New Private Message       Edit/Delete Post   Reply With Quote 
Just curious - I had the test done, but didn't yet download the raw data to genetic genie for interpretation.

Now the download site at 23andme isn't letting me type in my password, so I can't download any data. I've sent a query to the site about this.

Has anyone else experienced this happening with your data, that you're unable to download it?

Posts: 13084 | From San Francisco | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
dbpei
Frequent Contributor (1K+ posts)
Member # 33574

Icon 1 posted      Profile for dbpei     Send New Private Message       Edit/Delete Post   Reply With Quote 
I had some trouble downloading my data. I spoke with someone in customer service about this and was walked through it.

But this was last summer. I know they are having lots of trouble these days. I hope you have some luck with your query to the site.

Posts: 2375 | From New England | Registered: Aug 2011  |  IP: Logged | Report this post to a Moderator
lax mom
Frequent Contributor (1K+ posts)
Member # 38743

Icon 1 posted      Profile for lax mom         Edit/Delete Post   Reply With Quote 
This whole situation just reeks of corruption.

Very upsetting. I only had the test done on myself and my son. I was going to run it on my husband and daughter in the future,as my budget allows. Now, I can't.

--------------------
♥ ♥ ♥ ♥ ♥
(aperture)
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=115161;p=0

Posts: 2519 | From USA | Registered: Aug 2012  |  IP: Logged | Report this post to a Moderator
Judie
Frequent Contributor (1K+ posts)
Member # 38323

Icon 1 posted      Profile for Judie     Send New Private Message       Edit/Delete Post   Reply With Quote 
Ugh. I just watch the promethease demo. It looks overwhelming. My brain was having trouble interpreting their interpretation!

Genetic Genie (which is a small set of results), seems to have at least an analysis that makes sense to me.

This sucks. Boooooo FDA. At least 23andme seemed more straightforward.

Posts: 2839 | From California | Registered: Jul 2012  |  IP: Logged | Report this post to a Moderator
kadee
LymeNet Contributor
Member # 21199

Icon 1 posted      Profile for kadee     Send New Private Message       Edit/Delete Post   Reply With Quote 
Genetic Genie just published this on fb:

quote:
Next week, Genetic Genie will be making changes to the claims on the website significantly change the text on the Methylation Analysis. Unfortunately, this means that any info that could be considered a form medical guidance will be removed indefinitely. Genetic Genie will still be able to accept raw data from new 23andMe customers.

Posts: 269 | From Germany | Registered: Jul 2009  |  IP: Logged | Report this post to a Moderator
Judie
Frequent Contributor (1K+ posts)
Member # 38323

Icon 1 posted      Profile for Judie     Send New Private Message       Edit/Delete Post   Reply With Quote 
"...Genetic Genie will still be able to accept raw data..."

What does that mean? What will they do with the raw data since they can't tell you what it means?

Noooooooooo!!!! Can anyone who knows genetic genie tell the important links that will be going away?

What will genetic genie be able to tell us now? Isn't it the health analysis part that they do????

Can someone please make sense of this for me???

Posts: 2839 | From California | Registered: Jul 2012  |  IP: Logged | Report this post to a Moderator
Judie
Frequent Contributor (1K+ posts)
Member # 38323

Icon 1 posted      Profile for Judie     Send New Private Message       Edit/Delete Post   Reply With Quote 
This is sounding so pointless to even get the 23andme test if analysis can't be done.

I can apparently still request a 23andme refund since I just sent in the kit.

Posts: 2839 | From California | Registered: Jul 2012  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.