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» LymeNet Flash » Questions and Discussion » General Support » is something going on with ilads?

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Author Topic: is something going on with ilads?
lpkayak
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I had an interaction that makes me think they are being taken over by idsa

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Lyme? Its complicated. Educate yourself.

Posts: 13712 | From new england | Registered: Feb 2004  |  IP: Logged | Report this post to a Moderator
Lymetoo
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Hmmm... I tried to text you back and then my phone died. I had to get a loaner phone today and it was not charged up. My old one finally bit the dust.

I saw what you texted me. The Dr you mentioned is not the greatest. Is that why you are saying they are suspect?

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--Lymetutu--
Opinions, not medical advice!

Posts: 95211 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
Robin123
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They are generally a fine organization. Hopefully chatting with Lymetoo and others will help you figure out what happened.
Posts: 13028 | From San Francisco | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
Rumigirl
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I don't think that that is possible that they are being taken over by the IDSA, thank heavens! If they recommended a doc that isn't good, it was surely because they didn't know. Call them and speak to them about it. They don't vouch for the quality of all the docs, they can't. But they try to only recommend good docs.
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lpkayak
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They referred me to a doc who uses labcorp not igenex-it confuses me.

--------------------
Lyme? Its complicated. Educate yourself.

Posts: 13712 | From new england | Registered: Feb 2004  |  IP: Logged | Report this post to a Moderator
lpkayak
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Now that ive slept im really poed

This was a really sensitive situation involving a whole family

Now i know i should have sent them to dr c in PA but i found that out too late

Im glad i had dr h book cuz i found important info in that and i know it is up to date

But this family is lyme illiterate and when they get a 20 lyme test that is neg they will go on their merry way letting the ketes settle in

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Lyme? Its complicated. Educate yourself.

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lpkayak
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Until they are forced to deal with it in the future

I did my best. I have a lot of practice just letting families go-and i will do it

So sad. Evil disease.

--------------------
Lyme? Its complicated. Educate yourself.

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Lymetoo
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There are plenty of LLMD's who use LabCorp.. We have to take what we can get these days.

I would just ask for authorization to test thru Igenex.

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--Lymetutu--
Opinions, not medical advice!

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lpkayak
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Does lab corp do a good ewstern blot

--------------------
Lyme? Its complicated. Educate yourself.

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Rumigirl
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I wouldn't trust it. Labs other than Igenex don't report all the bands. Stonybrook will only if asked.
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IMHisda
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He may want to see if you are positive on the crummy Labcorp test first because I think you can be reimbursed by insurance if you are so it definitely isn't as good as Igenex but it's kind of good to know where you stand on the crummy test.

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RV

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lpkayak
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Ty. Good thought. That makes me feel better

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Lyme? Its complicated. Educate yourself.

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Judie
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The only CDC positive test I had was through Labcorp.

I had 2 done through Igenex (both were Igenex positive, but CDC negative).

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lpkayak
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Hmmm. Good to know. Ty

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Lyme? Its complicated. Educate yourself.

Posts: 13712 | From new england | Registered: Feb 2004  |  IP: Logged | Report this post to a Moderator
   

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