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» LymeNet Flash » Questions and Discussion » General Support » The CDC....it's not Lyme

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Author Topic: The CDC....it's not Lyme
Lymedin2010
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Please make your voices heard. What nonsense for the majority of misdiagnosed Lyme cases.

https://www.youtube.com/watch?v=823jkRIaLgA#t=111

Posts: 2087 | From NY | Registered: Oct 2011  |  IP: Logged | Report this post to a Moderator
droid1226
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I made a very middle of the road comment. They deleted it. Unreal. The thumbs up, to thumbs down ratio says it all.

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http://www.youtube.com/user/droid1226/videos?view=0&flow=grid

Posts: 1181 | From ohio | Registered: Nov 2011  |  IP: Logged | Report this post to a Moderator
MADDOG
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What a load of male bovine excrement from the CDC!!

MADDOG

Posts: 3846 | From Ohio | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
Lymedin2010
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I posted too & can see my own post, but it is not available to the public.
Posts: 2087 | From NY | Registered: Oct 2011  |  IP: Logged | Report this post to a Moderator
randibear
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oh right...all in my head

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do not look back when the only course is forward

Posts: 12262 | From texas | Registered: Mar 2007  |  IP: Logged | Report this post to a Moderator
hiker53
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Actually, I agree with a lot of the video. If you are not getting better you need more tests.

However, I have had every test in the book including 4 MRI's, lumbar puncture, bone scan etc. and I don't have anything else wrong that they can find.

My igenex Lyme test was positive, so I will go with that diagnosis. Antibiotics did not help me, though.

Not everyone with Lyme symptoms have Lyme, but I think Lyme is underdiagnosed.

Hiker53

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Hiker53

"God is light. In Him there is no
darkness." 1John 1:5

Posts: 7053 | From Illinois | Registered: Aug 2004  |  IP: Logged | Report this post to a Moderator
randibear
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I've had every test known to the medical community. many several times. spent literally tens of thousands. all negative exceptfor igenex. abx jus made me worse and worse.

candida helped some. parasite treatment almost did me in.

has to be a way to treat without killing the patient.

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do not look back when the only course is forward

Posts: 12262 | From texas | Registered: Mar 2007  |  IP: Logged | Report this post to a Moderator
Lymedin2010
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You guys should really check your blood, if the tests are negative & you still have symptoms. I wish I can check this guy Robert's blood. I bet anything I will find the spirochetes in his blood.


I looked at my blood from the very beginning of going chronic & could not find anything. As weeks turned to months I developed more Lyme symptoms, that allowed me to then confidently say it was definitely Lyme & at the same time these spirochetes exploded in my blood.


To the point they are now everywhere & I get short of breath & if I move too much/fast & I am so tired.

My HORRiFiC Lyme disease blood (Borrelia burgdorferi) P1
https://www.youtube.com/watch?v=Hbin5ZT6A5s


Under Our Skin 2: Emergence clip of biologist telling us that borrelia can easily be seen in the blood. And guess what? They closed down his research & tried to suppress this information.

https://www.youtube.com/watch?v=QTlcgCql2k0

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glm1111
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I know I sound like a broken record, but a lot of these ticks are carrying the Filarial Worm co-infection as discovered by Willy Burgdorfer and more recently the researcher Dr. Eva Sapi.

If that is the case and a lot of people are infected with parasites, then borrelia is not the main culprit in Lyme disease. For the life of me, I cannot understand why this has been so ignored even by some of the best LLMDs???

Gael

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PARASITES/WORMS ARE NOW
RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS*

Posts: 6418 | From philadelphia pa | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
LisaK
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Bastards

________

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Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen

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Lymedin2010
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The flood gates of the Lyme community have opened & the comments have finally been enabled in that video.


I have never seen that many thumb "downsis" in a Lyme video before.


https://www.youtube.com/watch?v=823jkRIaLgA

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seibertneurolyme
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There are some really great comments showing up now. Looks like I need to register so I can comment as well.

Bea Seibert

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Ann-OH
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There are about 70 comments tearing this stupid video apart.
Ann- OH

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www.ldbullseye.com

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Mvdr
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Gael, one of the reasons I switched from a "LLMD" to a ND was because after I repeatedly enquired about having parasites they dismissed it. Once one of the Dr.s told me the parasites would be destroyed in the course of antibiotic treatment. It was one of my first red flags to find someone else to help me. I don't think a lot of them know what to do about parasites.
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Rivendell
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Why are they doing this?

About a year ago, they were warning that people were dying from heart attacks caused by Lyme disease that the victims didn't know they had.

It was all over the internet and I was encouraged that the CDC was letting this be known.

And now they do a flip the other way.

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Herbal Treatments for Lyme and Co-Infections:
http://buhnerhealinglyme.com
http://www.tiredoflyme.com/the-cowden-protocol-for-lyme-disease.html http://www.sinomedresearch.org http://www.lymenet.org/SupportGroups/

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Lymedin2010
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Another strike for the IDSA/CDC...I hope moral is getting low there?


"The Deutsche Borreliose-Gesellschaft (German Society of Lyme-Borreliosis) raises objections to the IDSA Lyme Guidelines published in 2006. The fundamental basis for our objections is that the implementation of the IDSA guidelines extends beyond the United States and into Europe.


Accordingly, our ability to diagnose and treat patients with Lyme disease is being severely restricted by these guidelines, and we believe that the guidelines must be revised to provide greater flexibility in the diagnosis and


treatment of Lyme disease given the poor laboratory test sensitivity, the persistence of the organism despite adherence to IDSA protocols, and the seriousness of this illness."


http://lymedisease.org/news/lymepolicywonk/117.html


Lets see how many other countries will follow suite within the next decade?

Posts: 2087 | From NY | Registered: Oct 2011  |  IP: Logged | Report this post to a Moderator
   

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