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» LymeNet Flash » Questions and Discussion » General Support » Other Lyme Resources

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Author Topic: Other Lyme Resources
k84
LymeNet Contributor
Member # 32738

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It seems that things are quieting down here on the lymenet forums. Definitively much less activity then when I first joined a few years back.

Anyways, it would be appreciated if anybody has thoughts of other sites or groups the activity have moved to...post or send me a PM.

Thanks

Posts: 105 | From Rural Michigan | Registered: Jul 2011  |  IP: Logged | Report this post to a Moderator
Keebler
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Lyme education & advocacy organizations (see next post for an update as I just don't have the energy to rework this set from my file notes:


Treat The Bite - http://www.TreatTheBite.com

ILADS - www.ilads.org

Lyme Disease ASSOCIATION - http://www.lymediseaseassociation.org

Tick-Borne Disease Alliance - http://tbdalliance.org

Lyme Research Alliance - http://www.lymeresearchalliance.org/

Lyme Disease.org - http://www.lymedisease.org

The state discussion groups through this last link:

http://www.lymedisease.org/resources/support.html
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- Not an exclusive or formal list. Remember to connect with STATE and LOCAL lyme support groups for the best area options. Just always check to be sure they are of like-mind with the groups above, with ILADS as the educational base.

Each group above has a unique focus, yet they are all fully "lyme literate" - as well as tick-borne infection literate (as lyme rarely travels alone). All are ILADS "minded" -- bringing them all together.
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
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-
UPDATE

http://www.stamfordplus.com/stm/information/nws1/publish/News_1/Lyme-disease-organizations-to-merge21917.shtml</A>

June 2, 2014
. . . The groups plan to rename the merged non-profit upon final completion of the Merger. . . .

. . . For more information about LRA, TBDA and the Merger, please visit

www.LymeResearchAlliance.org and

www.TBDAlliance.org

Tick-Borne Disease Alliance (TBDA) & the Lyme Research Alliance (LRA)

Before this, they were Turn The Corner and Time For Lyme.
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
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Now, it may be that you are looking for other discussion or research study groups - or social networking.

Others can likely better speak to those. So if that's what you had in mind, other than first going to the organizations' sites above to see what they have in the line of what you seek, you might clarify what kind of site / experience you may be looking for.
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Robin123
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You're certainly welcome to discuss things here if you want and see what folks have to say.

There are lots of active Lyme sites on facebook! Also MD Junction, Healingwell - a few I'm aware of.

Posts: 13101 | From San Francisco | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
k84
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quote:
Originally posted by Keebler:
-
Now, it may be that you are looking for other discussion or research study groups - or social networking.

Others can likely better speak to those. So if that's what you had in mind, other than first going to the organizations' sites above to see what they have in the line of what you seek, you might clarify what kind of site / experience you may be looking for.
-

Thanks for asking for clarification. Basically looking for other social discussion/study groups.

I don't do facebook, for many reasons.

I suspect however at least some of the activity and higher traffic once seen at this discussion group has moved on now to social networking groups due to the rise of their popularity.

Posts: 105 | From Rural Michigan | Registered: Jul 2011  |  IP: Logged | Report this post to a Moderator
Lymedin2010
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https://www.facebook.com/UNDEROURSKIN?fref=nf

https://www.facebook.com/facesoflymedisease

http://www.healingwell.com/community/default.aspx?f=30

Posts: 2087 | From NY | Registered: Oct 2011  |  IP: Logged | Report this post to a Moderator
Lymetoo
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Yes, many have moved to Facebook.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96014 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
lpkayak
Honored Contributor (10K+ posts)
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i tried the healingwell one but i cant do sites that make you type the crazy letters to prove you are human...i really cant do it thats why i cant do gmail and my whole family does

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Lyme? Its complicated. Educate yourself.

Posts: 13712 | From new england | Registered: Feb 2004  |  IP: Logged | Report this post to a Moderator
Lymetoo
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I used to hate gmail .. now I hate yahoo also. I hate when they STACK your emails. Hard to read them that way!

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96014 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
   

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