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» LymeNet Flash » Questions and Discussion » General Support » EXERCISE-WHAT CAN YOU DO TODAY? FEB. 15 (Page 1)

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Author Topic: EXERCISE-WHAT CAN YOU DO TODAY? FEB. 15
hiker53
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Good afternoon everyone.

Lp reports that the blizzard winds are picking up and it is supposed to be very cold there tonight. Sending prayers her way.

Slept in a bit and made my big dinner my breakfast--LOl.

Rode the exercise bike and then got on the rowing machine. It almost threw me off when the rubber wheels broke and got stuck in the tracks. I think it is nearing the end of its long life.

Now watching Illini basketball (getting creamed by Wisconsin).

Tutu--looks like you are in for some heavy wet snow.

Blessings to all this week.

Hiker53

--------------------
Hiker53

"God is light. In Him there is no
darkness." 1John 1:5

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Maia_Azure
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I am walking my dog today, as far as I can go. I'm staying with a friend near Boston, so got hit pretty hard with snow.

Going to do yoga as well. The stretching really seems to help. I have a lot of muscle and nerve pain, so 20 mins is about my limit.

--------------------
Sick since 2000
Bulls eye 2005
Dx Babesia, Lyme 2014

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Lymetoo
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Well, supposedly it will be fairly dry snow though the moisture is coming from the south. They said it would be blowing around. We'll see!

Right now they are saying 5-7 inches .. but they expect bands with double digits. They don't seem to know where those bands will be.

I'm thrilled to see what my new back yard will look like with snow! All we've had is less than an inch all year.

It won't begin until about 7 pm. tonight.

I think kayak is OK... just COLD!

--------------------
--Lymetutu--
Opinions, not medical advice!

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lpkayak
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Im ok. Ive been posting on other threads. Cant reall say ive exercised. I think im hibernating

What about lisa. I think this is getting her too.

My manhatten daughter is in fla visiting inlaws...but her dog is still in nyc with a friend dog sitting

Nj son is cold

Chicago son says no storm.we re fune. But thats not what the news says. 38 car pile up. Im.sure buffalo ppl are cold and tired of shoveling but havent talked to them

I guess its not cool to complain

I wish they would just send short text...we re ok.

I found out i dint have to pay income tax...good news since heat and snow removal is destriying my budget

I balanced the checkbook, washed yesterdays dishes, played with etta and moved the truck for the plow guy. Thats about it. I forget how many naps i took

Hope everyone stays warm and safe

--------------------
Lyme? Its complicated. Educate yourself.

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lpkayak
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And wheres kam? Hi maia!

--------------------
Lyme? Its complicated. Educate yourself.

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Lymetoo
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I'll go check on her.

I just checked and she posted on FB about 5 pm today. (CST)

--------------------
--Lymetutu--
Opinions, not medical advice!

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lpkayak
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I woke up. So greatful to still have power. I think i saw it was -30

Srill gusting. Two more small amounts of snow coming thwn colder?!? End of week

How are those down south with snow and ice. And lisa..havent heard from you. Hope you have power and heat and a roof

--------------------
Lyme? Its complicated. Educate yourself.

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kam
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Had a bad dream last night. Reminded me to not ask for help as it makes things worse.

But, then again, I have had people help me who have made things better.

Can not see screen on desk top so typing with eyes closed.

It helps me to think via the keyboard so trrying to sort things out.

Took 2 excedrin at 6 am. Eyes open at 5 am Cat running back and forth on bed this am. Found an opportunity to pick her up and put her outside when I got up.

Not doing well enough to go to door and have her look out and then run back in and then a few minutes later have her want out again and maybe go out or maybe run back in.

So she is out this am.

Brain is not clear. Tried to ut expried food in trash this am but struggling to much so kstopped.

Stressing over the trip to the Lyme Doc tomorrow. Need to get groceries. Need to pack things in case I have to stay over night due to health.

It is only an hour and a half trip so should be able to go down and back.

Lady from the senior center siad she would take me. But, they said they are taking the van and I would need to lay down in the seat in the very back of the van with the middle seats folded down.

I told them I needed to recline in the passenger seat as I get car sick so hoping tha works out.

Not all vans have a seat you can recline in the passenger seat.

I find vans to be the most uncomfortable and bad for the sound sensitivity..even with ear plugs and ear protection muffs the road noise is bad.

I learned it is better with just the ear plugs and tha for some reason the ear protection muffs maek the road noise worse.

So concerned about the choics of vehicle. At first they said they would be taking a regular car.

Thankful for the ride but need a vehicle I can travel in and get there without making health too sick to get there.

Bad feeling about this.

So what now. I guess next step is to get up and get dressed and see if I can get some groceries fo r trip and for home.

Then PT to see abut getting a new power chair.

Then fill out more of the doctor's forms when able and see if I can find the LYME TAP application I started to fill out

And see about packing for trip.

I did OK in the van tha twas provided to drive me down the hill to see the audiologist. I was able to just drive my large power chair on it and lay in it. But, that was years ago when heatlh was better.

This was not a van from the senior center but one used to transport people to doctors by the insurance.

Since this is an out of pocket doc I dont' think insurance will provide transportation. I also do not not if medicare provides transportation and the advanatage plan I have.

I will look into it when I need to I know last year I looked into it when I just had medicare and I would nee dto ocme up with my percentage which was too costly

Also hoping that this is money well spent and the doc is able to help me within the resources I have.

Primary care doc said she would work with the Lyme Doc.

It was a choice to get small power chair fixed or see lyme specialist with the funds i have.

I choose to see the lyme specialist.

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kam
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I will be checking in with you to help me keep on track towards getting ready.
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kam
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Able to take a shower last night. So much easeier when I was able to take a bath at the hotel vs the shower here at the apartment.

I go days without being able to get clean here at the apartment.

The hotel was easy peasy. I could take a bath every night if I wanted to for the most part.

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kam
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7 am got the short list for groceries done for caregiver. Sure hope she gets it right this time.

Made detox tea. Able to write check to store for caregiver.

Able to find checks as it was my last one. So nice to find the box of checks in the first place i checked.

Rosie giving me the look so going to put coat over pj's and take her out.

I am like a high strung horse this am. Hate it when patiences is so low.

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Lymetoo
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Good morning! I can feel your stress over here, kam. Hope things will work out for that trip.

We have snow.. not sure how much ..maybe 5-6 inches and more to come. Maybe I can step outside to measure the front later. Can't measure the back which is the north side.

It's pretty, but not as pretty as our old apartment...However, I'm not going back!! [Big Grin]

We may not be able to get out for days. We'll see. I just saw the snowplow go up our hill so there is hope. I don't think I have enough safe food for me, but we have food.

--------------------
--Lymetutu--
Opinions, not medical advice!

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kam
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7:30 am Got rosie out. Need to go back and pick up deposit when able.

Body in more pain than normal. resting now. Then time to dress and go to PT

Found drivers license and another care of some sort. Need to get it back in wallet.

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kam
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OK able to get dressed and get to PT place across the street in large power chair.

A bit confused. Hope I do not get a large co pay as the clerk said. They acted as if they did not know i had Phoenix Health CAre plan as my advantage plan with medicare.

Even though I went home last time to get the cards they needed to make copies of and make the appt.

Not even sure why I saw the PT guy for the power chair. I would think the power chair business would be the best people to evaluate which power chair would work best for me.

Maybe it is just part of the process. PT clerk said she didn't think they were the right place and then talked with Jared, the PT guy.

he said yes he would do measurements for a chair.

But, no measurements were taken today.

Good news is I survived the 30 min eval. Which was your usual in the insurance box eval.

OK What now. Resting.

Recovering.

Hoping I do not have a large co pay and the appt benefits me more than it does the PT place.

Not even sure phx advantage covers power chairs not able to read manual on it nor call them.

Not sure what next step is.

Ah yes. EAt and take meds.

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Lymetoo
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So you made it to the PT guy?

Dr's apptm is tomorrow?

--------------------
--Lymetutu--
Opinions, not medical advice!

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hiker53
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Kam--I know how important this LLMD appointment is tomorrow for you.

Whether it is a van or a car that gets you there, you will get there!! Ask to sit up front in the passenger seat of the van if it reclines.

Take a plastic bag in case you get car sick. You need this appointment!

Hiker53

--------------------
Hiker53

"God is light. In Him there is no
darkness." 1John 1:5

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aklnwlf
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Did a lot on Saturday. Went to the bank and the grocery store in the a.m. Dusted, vacuumed, wiped down bathrooms and did laundry.

Hubs and I had a Valentine's feast. Got steak and shrimp ready for the grill. Julienned squash and zucchini, made buttered, parsley red potatoes, sautéed some mushrooms in butter, wine and parsley. For dessert I bought chocolate covered strawberries.

Had to do my ironing this morning before I came to work but it was worth putting it off until today.

I actually cleaned off my stair climber to use Saturday but hurt my knee turning to quickly in the kitchen. Yes, I have a cooking injury. How sad. So am babying knee until it gets better.

Have a great day everyone!

[hi]

--------------------
Do not take this as medical advice. This comment is based on opinion and personal experience only.

Alaska Lone Wolf

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hiker53
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AK--Your Valentine's feast sounds wonderful!

I have the day off work today, so I slept in a teeny bit. I went for a 30 minute walk outside.

Enough snow has melted that I can walk on the sidewalks in the neighborhood again, but I froze my fingers even though I wore mittens. Did 30 minutes, though.

I may be one of the few places in the nation that is not getting snow or ice right now. But we go back into the deep freeze soon.

Off to the library and I will spend the afternoon reading. That's what days off are for.

Hiker53

--------------------
Hiker53

"God is light. In Him there is no
darkness." 1John 1:5

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kam
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12L29 pm can't see if i got the number right half past noon here

fear has set in. but i know once heath is doing better fear will go away. not able to do anything right now to prepare from tomorrows trip.

but, even if i have to sleep in the clohtes i am wearing now and wear them tomorrow i will be ok

the goal is just to get there. i can do that I hope.

caregiver came at 11 am after i sent her a text. she was supposed to show up at 8 am

wtg for her to get back from the store. only had a few things for her to pick up.

next step is to eat lunch....and take meds. and wait for health to get well enough i can finish filling out the forms and hopefully find the lyme tap forms

bad attitude today. i should be happy i am finally seeing a llmd but concerned things will not go well because i will not have the funds needed

concerned tha thealth will also get worse from teh trip. thinking negative..hoping my thinking will be better when i am doing better

forgot to plug in power chair to charge it.

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randibear
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too cold. 35. can't walk in that. jus stayin in watchin tv

--------------------
do not look back when the only course is forward

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lpkayak
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Kam i ll be thinking of you tomorrow and parying things go well

Randi...its warming up to zero here tomorrow

I washed some dishes and spent an hour fixing ski gloves that had turnrd inside out in the washer

Also cleared off kitchen and diningroom tables that had a collection of candles and oil lamps on them. Drove the car into the sun so sniw on hood would melt off and played with etta a little

Also talked to my brother in alaska. They have had one snow storm this year and many rain storms. Hes 60 and he and his wife are adopting their two y o grandson. I cannot imagine doing that

I wish i could get excited about doing something -tghere are many projects waiting. I ll snap out of it i think. Sooner or later

Hows the snow tutu and ak?

--------------------
Lyme? Its complicated. Educate yourself.

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kam
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Able to fill out more of the doctor forms. Looks like i need to do 3 days of food intake and then I am done with doctor forms.

Need to find lymetap app too

Put 4 bottles of green tee in ice chest and have room for a salad

Bit by bit.

Resting now3 5 pm I think

Had to put on my ear protection muffs as there was a noise like a cement mixer or spraying and I couldn't concentrate on the forms.

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kam
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Windows open here but will need to close them soon.

rosie is doing woof. time to take her out doors.

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Lymetoo
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You're making progress, kam... We'll all pray for you tonight and tomorrow... You'll make it!! [Smile]

randi.. 35 is too cold for walking!

All is fine here.. everything we were supposed to do today was canceled. . . as well as a few things tomorrow.

Our Talent Night was supposed to be tonight at church. When it snows in the Ozarks, things just shut down. Too hilly!!

The sun came out in the afternoon. Still not sure how much snow we have .. no more than 6 inches, I don't think.

Someone cleared the snow on our front walk. I have no idea who did it because our next door neighbor is in Florida. The other neighbor may have done it .. but it seems to be the one living down at the end and I don't even know who that is!

Funnier yet: I don't know how much snow was there. Shouldn't have been much since that area is protected. NICE, just the same!

Now to clear the way to the car!

Kayak.. which made me think again about the guy who cleared your roof. He was an absolute angel! I hope you have his contact info!

Have a great evening, everyone!

Hiker .. glad you had a great day at the library!

Where's Lisa?

--------------------
--Lymetutu--
Opinions, not medical advice!

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LisaK
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hi all,
today WARM at 19degrees!!!
too cold to do much, so stayin ginside pretty much.it's bee in the negative numbers and single digits here pretty much for several days.

had a bad weekend. cleaned all day sat and ran myself ragged.

just been in a dark place lately. not feeling too great. lots of too much thinking and all that. depressing.

I love the snow though. love to look out and enjoy it. lots of birds this year.

wind other night kept us up all night. 50+ MPH. with every gust the dog freaked out. felt and sounded like the siding was coming off the house.

so nice to have a cleaned up house.

--------------------
Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen

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kam
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OK able to kind of fill in food menu for past 3 days. Did not get enough to eat again.

Frustrated because I sent caregiver to get pre made salads for me to last a wwek. She came back with 4 which will last 2 days.

It also took her an hour and half or more. ONce again she had excues as to why it took her so long.

But, it is on her own time unless she wants to argue the point which i do not think she will.

She has done this in the past..went to get groceries and not show up for 2 or 3 hours.

Still un decided on what to do..know i need to ask for another caregiver but concerned other one will be worse.

I feel ok wiht this one being in the house and being around here. But, her work is being effccted because she manages a 40 unit trailer park, works full time plus at a circle k at night and then works 35 hours a week as a caregiver.

What now.

Also able to find the lyme tap paper work and my SS proof of income. Need to make copy of SS papers.

Have bag packed with water for rosie and i and the ear protection muffs.

woke at 4:30 am and got up a couple times in the middle of the night last night.

wondering when to take the excedrin..trying to hold out on it in order to take it before heading down the hill.

also wondering about taking the claritin. it has helped me be able to be on my feet longer when i go on the hikes with the dog park friend...twice now

wondering if it would help me get to the dcotr's.

high anxiety today.

Wishing I had made the appointment for first thing in the am so the traffic would not effect me.

I need open, quiet roads

CAt keeps jumping around on the bed..do not like cat this am...which shows me health is low when patients is low

Need to check bank balance to see what is left in checking as I am not sure how much this visit is going to cost.

I know what the office visit fee is.

maybe i should have some bedtime tea too to help calm me down...i can't recall if that helpe din the past or not.

taking the excedrin might help with pressure in brain

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kam
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sent email to director telling her that a friend rented a van for me even after I told her the priority was a comforterable car that had no road noise and where i could sit in the passenger seat and put my feet up.

And how the van was too much for my health to handle and how i vomitted and had the runs when I tried to lay donw in the back and how it was like going over rail road tracks.

I did not tell her how we had to stop and get a hotel and wait over night for my health to improve before we could get on the road again.

I did tell her I successfully made the trip in my pathfinder in the passenger seat twice.

but that at sunrise when there was no traffic. Traffic is too much for me too. And heat...but we should be OK this trip heat wise

Althugh I hear it is 80 degrees in the valley.

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hiker53
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Kam--You will be fine. You will get there and that is a must. Best wishes.

Hiker53

--------------------
Hiker53

"God is light. In Him there is no
darkness." 1John 1:5

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aklnwlf
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Tuesday-Cold here for lower Alabama, 31 and going to get colder tonight. I shouldn't complain compared to what you all are having to deal with.

It's 9:00 a.m. and I already finished most of my work here at the dealership. Might have to find something else to do.

Tonight after work just planning on sautéing leftover ham and leftover potatoes together then adding some eggs. So we're having breakfast for dinner tonight. Also will try to do one load of laundry.

I'm going to count that as exercise until my knee gets better.

BTW, just wanted to wish you luck Kam on your LLMD appointment.

Hope everyone has a wonderful day!

[hi]

--------------------
Do not take this as medical advice. This comment is based on opinion and personal experience only.

Alaska Lone Wolf

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kam
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OK all ready to go with the exception of needing to check bank acct balance and something else which i cna not recall right now

i have all my things in the power chair seat by the front door.

not taking power chair as it will not fit

8:16 now they are coming in 47 min

i plan to lay here and try and recover

going against normal thinking again...lady wanted me to take a something and lay down in the very back seat of the van even though i had said what i needed was no fragance, to be able to recline in passenger seat and be able to wear my ear plugs and ear protection muffs

they wanted me to take something and lay down in back seat of van..i have tried this...twice...ended up having to get a hotel both times as too sick to travel


peope think normal with this disease...m have a new normal

anothe rlady mentioned how if i hike a little twice a week how i could build up my hiking..again she is thinking normal...been there tried that too

typing with yeyes closed.

recalled what the ohter thing was...to print out directions again if i am up to it..but i think they have all ready done this so ok if i am not up to it

took several tries before health was up to being able to copy my ss ltr but got er done finally

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LisaK
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I hope it all goes well Kam! and I cannot wait to hear about your apt!!!!!!!!!!

___

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Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen

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lpkayak
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I hope kam is doing ok

I guess i wull get some exercise today. Workers wont answer phones and i need to uncover windows and make path to propane tank

I havent been out much in a few days. Im running out of meds so have to drive to drug store in next few days

Maybe that will force me out of hibernating mode

I so hope kam does ok

--------------------
Lyme? Its complicated. Educate yourself.

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Lymetoo
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Praying for kam today.

My cleaning person is here. I forgot she was even coming today.

Hubby got the car out and made a trip to church. We have Ash Wednesday services tomorrow. We are supposed to get more snow tonight.

Hope I can get the mail sometime soon and a few more groceries one day this week. More snow and junk this weekend.

It is currently 32 and sunny.

Winter finally arrived here. You can have it back, kayak!

I guess your workers are all resting. They must be exhausted.

AK.. Forgot to tell you how great that Valentine's dinner sounded! YUM!!

--------------------
--Lymetutu--
Opinions, not medical advice!

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lpkayak
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Ditto on the valentines dinner. Maybe i ll pretend next week is valentines and cook that for me an etta. My mind was in blizzard mode last saturday

Heard back from my main plow guy and not good. Both his knee and truck in repair shop today. So he cant work or bring son over

Havent heard back from girls either. Im going out at 3:30 to do what i can cuz five more inches tomorrow night and possibe storm on weekend

I dont like not being able to look out windows. And propane tank needs access. Soon it will have a big ice cube around it. I really dont want to go out there...but im just being a lazy wimp now. Its 21 degrees! Practically summer

Schools are closed from collapses and ppl in shelters cuz apts collapsing. No one hurt from cillapse so far-that i heard of. Two boys got lost sniwnobiling and spent night in woods but are ok

Woman got lost hiking and did die. I wonder why hike in blizzard? Not much info on that

Oh! One girl can come. Yea! Woman power!

--------------------
Lyme? Its complicated. Educate yourself.

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lpkayak
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Ditto on the valentines dinner. Maybe i ll pretend next week is valentines and cook that for me an etta. My mind was in blizzard mode last saturday

Heard back from my main plow guy and not good. Both his knee and truck in repair shop today. So he cant work or bring son over

Havent heard back from girls either. Im going out at 3:30 to do what i can cuz five more inches tomorrow night and possibe storm on weekend

I dont like not being able to look out windows. And propane tank needs access. Soon it will have a big ice cube around it. I really dont want to go out there...but im just being a lazy wimp now. Its 21 degrees! Practically summer

Schools are closed from collapses and ppl in shelters cuz apts collapsing. No one hurt from cillapse so far-that i heard of. Two boys got lost sniwnobiling and spent night in woods but are ok

Woman got lost hiking and did die. I wonder why hike in blizzard? Not much info on that

Oh! One girl can come. Yea! Woman power!

--------------------
Lyme? Its complicated. Educate yourself.

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LisaK
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my valentine's was a bust. hubby ended up sick and I ended up with chick fil a nuggets.

o well.

haha

seemed worse when I was going through it.

I did a bunch of paperwork today. ate too many junk food for Fat Tuesday. making turkey rubens for dinner.

just ran around house with dog for a few minuted. she is really wound up. too cold to walk her much.

I am going to jump in the shower in a few minutes and that will make me feel better about life.

I also played the pianl today for like 20 min. that is always a mental workout for me. and fingers too. I just put on my list to get piano tuned with my tax return $$. hasn't been tuned in years and starting to sound really bad.

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Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen

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lpkayak
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Lisa...if i was oprah id hire you for my cook and pay you in top of the line lyme tx for your whole family!

Everything you cook sounds so good

I am still not feeling very good in general and shoulder is too painful to use

I thought i had muscle strain from shoveling but now realize it is where liver is. And buhner tea isnt helping. I take milk thistle but wonder id maybe i need more detox

I planned on trying to start rife but was afraid of herx when i already felt bad. There is a detox setting. Mybe i will do that

No news from kam huh?

Im just so sleepy now. And i hardly did anything

--------------------
Lyme? Its complicated. Educate yourself.

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hiker53
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Teacher's meetings all day--some productive and some not. P.E. showed off their new high tech heart monitors, so I got to exercise a bit at work.

Came home and argued with the cell phone people about my bill. They corrected it. Got my dander up enough to go ride the exercise bike and get the stress out.

Lisa--I need to get the piano tuned, too. Actually I would like to sell it as I don't play much anymore.

Hiker53

--------------------
Hiker53

"God is light. In Him there is no
darkness." 1John 1:5

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kam
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Let's see what i remember...

left at 9 am

got back home at 3 pm

health wise did well

lady who drove me was someone i felt comfortable with and had her come in with me to talk with doc

doc had a lot of lyme books on her bookshelves...hoping to cehck those out again when i go back

i recall blood being drawn for igenex....was told medicare would pay for igenex testing

confusion agaon on having Phoenix healht plan as a advantage plan with medicare

told co pay would be higher on one thing ...same thing pt told me...cheaper with just straight medicare....

doe snot make ssnese

but things will get sorted out in time

came home with a very large container of charcoal..looks like enough for a year or three years supply...did not think well on my feet or sitting down in regards to decisions

have not read what i am to do with the charcoal..i recall the doctor telling me but not able to take it in

doc wanted more testing for different things i can not reacll...kind of went thru the list and said no i will neeed to start putting money away for that test and yes i have the funds to do that test

i did not check my checking acct before i went so not sure if i have any funds left in account after today.

i am to go back next week with a urine sample and something about poop..i have a poop test kit with me and something about more blood work and fasting

instructions were written down for me

like doctor...my main concern was my lack of funds and if she would work with what i had...looks like she is willing to do this

she said she would like me to go on abx but will build up my system first

also something about nutritonal IV

Hmm...recall more thatn I thought.

I have a binder to read that was given to me when I arrived

thought b vitamins were the reason brain is not working so well...

But, wants to see blood test results foirst

Purcahsed LDN while I was there...can not recall what that is supposed to help with but know it was on my list of things to try...have yet to read lable on it

able to listen to drive rafter the apppointment..she had intersting things to say...but started not feeling well just from teh shor tconversation so had to put ear plugs in and earp protection muffs and take excedrin to get home


wondering if she had talked to me while we were sitting still if it would have worked better vs driving down a busy street...brain struggles so with over stimulus

she signed the lyme tap app but did not think we would need it as medicare covered the testing she wanted to do with igenex

i know there is more

but i would call the trip a success

suprised health held out as long as it did

not sure what i was saying most of the time but no one seemed confused so i guess it made sense

she mentioned two different b vitamins ...kind of sounded like i would be taking them orally

i think she said i could order them on line and the office would be emailing me the info

i did see i had an email i think from her office..but waiting to read it after i recover

AZ weather is really nice this time of the year and the highway and roads we traveled were in a really nice area...great scenary from pines to saguara to other cactus

doc said she would do her homework and then let me know what she thought we should start with..not so much in those words but that is how i processed it

fungus was mentioned, mold, lyme, can not recall what she said about the dry cough i get..maybe that she thought it was a fungus thing...

lady from senior center said they would drive me next week to appointment too..either her or the director..not sure why this is happening but thankful senior center is doing this now...do not know how long it will last as i heard director is retiring in april

Lady who was driving me gave me the months to avoid going to the valley but I can not recall now...due to heat

Hoping most visits can be face time or skype..but next visit is more blood work and fasting from midnight on

one lady in the office who was in charge of going over things with me was not possible for me to understand...

but she said jsut atke in the visula and read the directions when able

hope this makes sense

the lady who drove me talked about an organization that will put your medical records on a doohicky...so doc just need sto plug it into the computer or whoever wants to see them

price was very reasonable too

if interested i will ask Pam wh the company is that is doing this

i have been taking b vitamins so i will be interested in which ones she suggests

i also recall her suggesting a certain brand of probiotics and why she felt i needed to take them ..what it would help with

it was a brand i took when i first started taking abx

i take the b dots from vitacost currently the ones that melt under your tongue

mycotoxins were mentioned but i thin it was one of the tests i would nee dto put money away in order to take

she asked if i had been tested for bartonella..i told her that the lyme doc just went by sytmpoms as i di dnto have the funds for testing back then..not sure if taht is something that will be covered with igenex and medicare now

A person did something with me with a large mouse to do some kind of testing...i was told the results but as far as taking in waht was said...my brain is not recalling

the sme person also did some other kidn of testing where i laid on the bed and they plugged wires to me...can't recall what the results were of thst either

assuming i have the apper work on these things

i know i was given paper work while in the doc's office and th eclerks did a 3 hole punch and put it in my binder i had been given so assuming that is the resutls of the testing for that

I am guessing we got there at 10:30 am and left at 1:30 pm...they were busy with me the whole time and got me in right away

She asked about being sensetive to cleanign products etc ...maybe this is where the probiotics came in to help...not really sure

i take kefir now and good belly drink probiotics

she asked me about the ringing in the ears but do not think i asked about what to do to help with that..just recall telling her i can't go to sleep at night unless i stream a netflix movie or watch tv because the ringing is to loud

I pretty much had what i needed with me with the exception of a water bowl for rosie..i thought the container i had goten from the vet would work but something was broke in it

the office provided rosie water

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momindeep
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Bravo Kam...your post made my day!

So very pleased your appt. went so well and that your health held out for you today.

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lpkayak
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Excellent. She seems perfect for you in so many ways. Im so glad you were able to check in. I couldnt stop thinkng about you today

--------------------
Lyme? Its complicated. Educate yourself.

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Lymetoo
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Yay!!! So good to hear this kam!! I need to send you a message.

--------------------
--Lymetutu--
Opinions, not medical advice!

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kam
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eyes open at 3:30 am. Woke up earlier and tried to go back to sleep but didnt' work.

Able to check checking acct. The office visit charge shows up but not the other charges.

But, I think I am OK.

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kam
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eyes open at 3:30 am. Woke up earlier and tried to go back to sleep but didnt' work.

Able to check checking acct. The office visit charge shows up but not the other charges.

But, I think I am OK.

Checked the drops I have for the B supplement and it is for B12. I do not think the doctor mentioned that one. It seemed it was B1 and one other B vitamin she mentioned.

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kam
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thanks momindeep, kayak and tutu
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hiker53
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Hurrah, Kam.

Glad you liked the MD and that she can help you.

God bless the senior citizen's center--hopefully they can keep helping you.

Hiker53

--------------------
Hiker53

"God is light. In Him there is no
darkness." 1John 1:5

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LisaK
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kayak, I have shoulder pains too. for me, it is this weather for sure.

and cook.... haha. yes, good cooking really does run in my family! we are all very good - even my 2 brothers. I would love to be your cook!!!

went to bed around midnight and checked on son - he had earbuds in his ears listening to something and asleep! with a pretend phone plugged into wall on chargeer to try and fool me! ha! I wsa 16 once I tiold him! I took phone away..... gotta make some rules.

still organizing papers today. I hope I can get this all done. I am so tired of it.

doing taxes really showed me where I make (little) money and where I do not. so for that I am grateful. I need to make some changes.

Hiker, I wish I had an exercise bike!

--------------------
Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen

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LisaK
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KAM, I am glad it went well!

yes, sound like a really good fit with that dr, YAY!!!!

_______

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Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen

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aklnwlf
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Wednesday-Only did a load of laundry last night. Knee is still bothering me and am getting worried.

That little bit aside.....was really glad Kam to read your post about your LLMD appointment. Sounds like it went really well. I hope and pray that things will get better for you.

Hope everyone has a terrific day!

[hi]

--------------------
Do not take this as medical advice. This comment is based on opinion and personal experience only.

Alaska Lone Wolf

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lpkayak
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Im trying to keep doing stuff. More snow tonight and sunday. I paid some bills, lined up guy to come clear out entrances and windows and propane tank before tonight

When prescription is ready i will venture out to get it, mail income tax and make some copies for my reorganizing paperwork project. Probably pick up a few groceries too

Hopefully moving around will change my mood and i will get excited about some indoor projects

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Lyme? Its complicated. Educate yourself.

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hiker53
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I forgot the cleaning lady was coming today. I left her the check, but forgot to pick up all sorts of stuff I don't like to leave laying around.

I trust her completely, but the more stuff laying out the less deep cleaning gets done. My fault.

Stressful work day. Kids getting lazy. Helicopter parents driving me nuts.

Rode the exercise bike for 20 minutes. Am counting the 10 minutes it took for me to sweep the snow off the drive and porch, too.

Really cold here.

Hiker53

--------------------
Hiker53

"God is light. In Him there is no
darkness." 1John 1:5

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lpkayak
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I always hide my supps and meds when workers are in house. It eas exhusting when house was workrd on. But i was afraid word would get out i had narcotics...even tho i dont. I dont think ibuprofen brings much on the street but didnt want the word out i had pills in here

And red root and artemesia cut and dried look a lot like pot

My little girl was acting foolish too...shoveling snow over her head and not getting it where it needed to go

A lot of ppl are a little crazy here. I heard many more collapses...big ones...apt buildings etc

The roof guy came and i didnt recognize him cuz he shaved and didnt have his waders on. He did a lot of work in half an hour. So i am a little more opened up

And i did some errands but didnt get my armour

At least no wind tonight and not below zero

--------------------
Lyme? Its complicated. Educate yourself.

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Lymetoo
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kayak .. You need to let the girl know what you expect. You cannot take the stress of babysitting her.

Pretend she is one of your students.

[Smile]

--------------------
--Lymetutu--
Opinions, not medical advice!

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lpkayak
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Im done teachin. i tell them what i need..i give clear directions...
If they mess around i dont call them back

I am glad i found this roof guy...hes a mason in the summer so hes very strong...but....i am sort of wondering if he took something to make him stronger

But so far so good. And spring will come.

The two kids i wont use anymore this year i will try again next year. But its not worth the stress . I need them to work on their own

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Lyme? Its complicated. Educate yourself.

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Lymetoo
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Exactly. You don't need the stress.

Hiker .. it's funny that both of us forgot the cleaning lady was coming. I never forget!! Of course, I'm just now getting used to having one again.

Thankfully, my house was not terribly cluttered. Just the stupid bar and I cleaned it while she was here. I need to work on it some more.

It's really large and so tempting to put papers there, and magazines, and hats, and stuff for church, and ....

--------------------
--Lymetutu--
Opinions, not medical advice!

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kam
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Able to spend est 15 min in grocery store so have food for the next few days.

Able to fill out housing paper owrk...some of it..still have some things to do ...then i will get it in the mail

Bad mood today but need to talk to myself...healthy self...you are not doing well today you need to lay down and get better

Lyme Self..you are doing well...hang in there...rest a bit and then see what else you can do

Also able to get a couple of copies of proof of income to apartment manager but noticed they have changed my name again so need to contact them with correct spelling

one paper has the correct name...the other does not..always makes me concerned as there are two people with the same name living in my town

but the address should help them get it right??

Took excedrin and claritin this am. Need to get up now and meet friend to try and be on the trail a bit...really need to lay down some more.

hoping to read what you all have been up to later

Trying to change attitude about the paper work thing for housing from anger to being thankful which is more appropriate

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lpkayak
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Kam i have had trouble with someone with my name. They put my meds thru with her minimal ins and charge me 200 for something i pay 10 for

My credit report got messed up cuz of her too

Tutu and hiker my brain is acting wierd to with forgetfullness. Like going crazy looking for my glasses when they are on my face

Ive decided i have: PSSD-post snow stress disorder

--------------------
Lyme? Its complicated. Educate yourself.

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hiker53
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lp-and I have PCSD--post cold stress disorder. Way below zero today and the wind chills are absolutely numbing.

The thought of going to get my hair cut after work makes me cold.

Does shivering count as exercise. The heat does not work in my classroom.

Hiker53

--------------------
Hiker53

"God is light. In Him there is no
darkness." 1John 1:5

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kam
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Able to be on my feet for a bit out at ths shoofly indian area...friend i was with was a goofer for the people who were digging up the artifacts in the 80's...thought that was cool

She also asked me if i had allergies and then did something to a tree in the area and a cloud of red flour like dust filled the air...big time pollen

i was impressed and what to see it again. wondering if it would show up in a picture..worth trying to take one

Took claritin before the hike. Ate the greek salad for breakfast and now am stuffed up and have allergy like symptoms

want to do something aroun dhere but heath is too low...might just get in power chai rand head out of the apartment for a bit just to get outside..can't sit uprigh tfor long so it will be short

looks like one of those days i will need to wait until this afternoon and then try and do something if able...

but thankful this is manageable as long as i do not try and do something

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lpkayak
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Im psycing myself up to move. Its still warm here(17) for two more hours when front comes thru

We got four i.ches...not really worth paying plow guy except we have rainy mess coming and if it rains on snow and then quick freezes it will be 4-6 " ice and taske forever to go away

So im going to use push shovel...i dont use arms much with it...and try to clear important parts

Its suppised to be very windy and cold for two days startung at 3 pm. I ll come back in then and hope a lot of snow is blown off house before rain...if not i llhave toget as much off as i can

The zoning compliance guy woke me up to see what neighbor is doing to my fence. He was very nice and told me the neighbor was not allowed to put snow on my yard or bre as k fence. He hasnt done anyting more with machines since cops t as lked to him. I just want this togo away. I hate working with lawyers. But we wont know if fence is damaged til snow melts

Anyway there are 3 ppl in town that know of priblem

Well...the snow drifts are calling. See ya later

--------------------
Lyme? Its complicated. Educate yourself.

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LisaK
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I fell asleep earyl last night and woke early too. felt great until now.

my husband birthday tomorrow and i wansted to make him an apron, so that is what I did today.

it is so cute- has hot peppers all over it, and I made a matching chef hat too. I am happy with myself.

ready for a nap....

sorry we still getting snow kayak. I am not sick of it yet but we have no near what you have. I just don't want to go out!

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Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen

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kam
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OK I have the paper work in for rent...i believe the ball is now in the others court.

I know I did not get everything filled out or copied due to neuro but at least I have the ball rolling on it.

I looked on line for housing to purchase and noticed if i had the down payment needed, I could own my own home for about $100 more or so than I am paying now.

There were only two homes listed in the city limits ...both were repossed tailers or whatever it is called prefab homes.

One is close to the apartments so will drive by.

Guessing both are fixer uppers. But, it is nice just to look. I do not have the down payment and do not want to live na atrailer like dweellling I think.

Unless it is located on some land wiht a view

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kam
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Interesting what willow or zillow shoed as rent value on both pieces of propety..twice what the payment would be on the property.

guessing that is not realistic rent value...actually kind of know as i have been looking for homes to rent so kind of have an idea what homes rent for

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Lymetoo
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quote:
Originally posted by hiker53:

Does shivering count as exercise.

-
Yes, according to Facebook!! [Smile]

Kam.. the stuffy nose after eating is likely a histamine response. I hope you aren't headed down that path too. It's not fun.

kayak and hiker... yes, the PSSD or PCSD sounds about right. It was -5 in the nearby city .. not sure how cold here. Maybe 5 degrees or less. High of 30 today.

Really cold weather coming next week.

Lisa.. the apron and hat sound so cute! I bet he will really love it!

--------------------
--Lymetutu--
Opinions, not medical advice!

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aklnwlf
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Thursday-I'm going to count getting up, dressed and at work as exercise today.

Couldn't sleep until after 3 a.m. and had to get up at 6:30.

Was planning on going to the museum tonight for jazz and a poetry reading but am struggling to stay awake.

BTW, you guys made me laugh with the PSSD and PCSD's.

[sleepy]

--------------------
Do not take this as medical advice. This comment is based on opinion and personal experience only.

Alaska Lone Wolf

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lpkayak
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Shoot. I replied and lost it. Basically saud i hurt and put call into roofer snow guy but he hasnt gotten back. Everything is caving in fromsnow. They are paying all these guys to get on roof...and they are falling thru skylights and stuff. ITS REALLY HARD TO GET...oops...anyone to work

I did some cleaning up of bexroom this morning. I have had it closed off...bed holds clean laundry waiting to be put away....its so cold in there i havent slept there in a long time. No pipes near that room so i can close it off and not worry

Then after shiveling and long hot sit down shower i did some work on papers. I thinki have a way that at the end of month i really know how much i spent and have receipts for taxes all organized

Probably snuggle down and watch tv soon. Its still pretty warm outside. 21 i think. But very windy and as soon i i take snow off roof its harder to keep house warm. Snow insulates really well

Kam...i want you to have a nice place to live but a lot of things can go wrong with a house. Be careful.

And yes...i can picture that apron. Cute!

--------------------
Lyme? Its complicated. Educate yourself.

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Lymetoo
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How much snow is on the roof, kayak?

--------------------
--Lymetutu--
Opinions, not medical advice!

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kam
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6 am got up. But cat woke me up several times efore i got up...even attacking my hair on my head to try and get me to get up.

as soon as i got up she wanted out doors

made some detox tea. tried to find the paper work on the meds via mail or on line but wasn't doing well enough to do so so laying back down.

not able to read your posts this am either.

guess the next step is to get back up and take a couple of excedrin to see if htat helps me be able to get dresssed and take rosie out to toilet

wanted to take a shower last night but wasn't able..hoping i am able to this am...boey is sticky.

legs are white and pasty...rare i even care about that but ti was hot out yesterday and i am considering putting shorts on today

not that i will be able to be in the sun for longer than 5 or 10 min but if i could do that several times today that would e good as fi cruise around in the power chair

good news. a guy that works at pride mobility is sending me the motor for my small power chair.

this is the one i use in the apartment and goes on my lift so i can go to the store, etc or just cruise in the undeveloped area i like to go with rosie

now i need to contact the local mobility store to see how much it will cost to have them put the motor on and also how much it will be to get the small tires on the back of the power chair...poiwer chair is a 6 wheeler

need big ires for the large power chair too but not concerned about that...they are just bald....

small tires on small power chair look like they are going to fall apart...if they do..i would not be able to use power chair.it would not go

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aklnwlf
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Friday-Feeling sick today. Starting to get flu or something that's going around work. Surprises me because I've been on Doxy for about a month now.

Got plenty of rest last night and have a big weekend planned.

Tonight me and my Mom are going to the ballet to see Swan Lake. I'm so excited! Get to spend quality time with my Mom and have never been to a ballet before.

Then Saturday I'm taking my Mom to Emory Hospital in Atlanta tomorrow for an MRI and afterwards we're going to an international market for some groceries.

So hope my health holds out for all the fun!

See you all later!

[hi]

--------------------
Do not take this as medical advice. This comment is based on opinion and personal experience only.

Alaska Lone Wolf

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lpkayak
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At dark yesterday there was less than 8" fluffy snow. All new. But wind is blowing crazy for two days and that can make high drift on house(or no snow on house...what im praying for)

Cuz sat-sun we get six inches wet snow/sleet/rain mix and if rhat falls on dry snow it gets real heavy....dangerous

I might pull some more off today and tomorrow but im scared to walk to far side of house

If i fall i cant get up and noone would see me

--------------------
Lyme? Its complicated. Educate yourself.

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lpkayak
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Kam...great news on wc!

Ak...doxy wont help virus. Hope you dont get too sick. I would be sick all the time if i wasnt a hermit.

As soon as i feel something coming on i take elderberry and usually dont get sick. They sell it at regular drug stores now for 14.99. Expensive but worth it to me

--------------------
Lyme? Its complicated. Educate yourself.

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kam
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able to be on phone to call in meds so they will be delivered and hopefully less price than local pharmacy

tried this all last year with different company and did not get anywhere and different doc so hoping it works this time

rare i can make a phone call and do something like this

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kam
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cool beans alw...swan ballet and international market..too bad we can't do pics here
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kam
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kayak...that is tricky
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kam
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kayak...just a dream to have a house again....do not have the funds needed for one at this time
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