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» LymeNet Flash » Questions and Discussion » General Support » First US Center To Study Lyme Disease Launched At Johns Hopkins Medicine

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Author Topic: First US Center To Study Lyme Disease Launched At Johns Hopkins Medicine
KarlaL
LymeNet Contributor
Member # 29631

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At the TBDA/LRA Gala (now known as the Global Lyme Alliance) it was announced that Dr. John Aucott would be receiving a grant to study patients with confirmed chronic Lyme disease as part of his SLICE studies.

To make a donation to the Lyme Disease Clinical Research Center, go to: http://www.hopkinsrheumatology.org/specialty-clinics/lyme-disease-clinical-research-center/support-lyme-research/

KarlaL

First US Center To Study Lyme Disease Launched At Johns Hopkins Medicine

Source: Johns Hopkins Medicine
Release Date: May 13, 2015

http://www.hopkinsmedicine.org/news/media/releases/first_us_center_to_study_lyme_disease_launched_at_johns_hopkins_medicine

Increasingly common illness has high toll: 300,000 stricken, $1.3 billion in treatment costs per year

Fundamental research into the causes and cures of post-treatment Lyme disease syndrome now has its first home base at a major US medical research center with the launch of the Johns Hopkins Lyme Disease Clinical Research Center. Inaugurated on May 12, 2015, with a major gift from the Lyme Disease Research Foundation, the center plans an ambitious research program targeting this increasingly common disease, which costs the US economy up to $1.3 billion per year in treatment costs alone.

First discovered in Lyme, Connecticut, 40 years ago, Lyme disease has spread rapidly throughout the East Coast and Midwest. It now afflicts more than 300,000 people per year, becoming the sixth most common reportable infectious disease in the US.

If you live anywhere from Maine to Virginia, it’s almost impossible for Lyme disease not to affect someone you know, someone in your family or yourself, says center founder and director John Aucott, MD, a Johns Hopkins internist. Aucott, an assistant professor of medicine at Johns Hopkins, has spent more than a decade studying the diseases potentially crippling effects.

When a tiny tick infected with the bacterium Borrelia burgdorferi bites a human, that person may develop symptoms that seem flu-like, such as swollen glands, fatigue, body aches and rashes. Most people respond well to antibiotics. But about one out of every five or six patients develops a debilitating condition called post-treatment Lyme disease syndrome, marked by extreme fatigue; musculoskeletal pain; arthritis like pain in the joints; and cognitive, neurological and cardiac symptoms.

This syndrome is not fatal, but it is life-altering, says Aucott. People who come down with Lyme disease are active people who have the bad luck to be bitten by an infected tick while they’re out hiking, camping or mowing the grass. It can happen to anyone anywhere there are trees, deer and the ticks that they carry.

As director of the new clinical research center, housed at Johns Hopkins Bayview Medical Center, Aucott has received an initial grant to lead the first prospective controlled study in the US to examine the impact of Lyme disease on patients’ immune systems and their long-term health. Known as SLICE (Study of Lyme Disease Immunology and Clinical Events), the study aims to understand why some patients develop post-treatment Lyme disease syndrome lasting months or years, while others do not.

The Lyme Disease Research Foundation has also helped establish repositories of blood and tissue samples from patients with Lyme disease at Johns Hopkins, providing researchers with opportunities to collaborate in the search for disease biomarkers that could lead to improved diagnostics and treatment.

The Johns Hopkins Lyme Disease Clinical Research Center will act as a hub for catalyzing the exploration of Lyme disease. Securing funding for the center will be critical to future discoveries in Lyme disease.

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KarlaL

Posts: 694 | From New Lebanon, NY | Registered: Dec 2010  |  IP: Logged | Report this post to a Moderator
lymenotlite
LymeNet Contributor
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Terms I have a problem with:

"syndrome"
"This syndrome is not fatal..."
"post-treatment" I hadn't noticed that treatment had stopped.

I'm wondering who is funding the Lyme Disease Research Foundation.

Hard to not be cynical.

Posts: 705 | From WA state | Registered: Jul 2011  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

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Ditto to lymenotlite's thought. Those terms and that tight thought structure are VERY telling and not at all goods signs at all. How can they be open minded?
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Maia_Azure
LymeNet Contributor
Member # 44330

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That the website is rheumatology and not infectious disease bothers me.

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Sick since 2000
Bulls eye 2005
Dx Babesia, Lyme 2014

Posts: 247 | From New Hampshire | Registered: Aug 2014  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

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No way I'd give them my money. Lack of TRUST.

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--Lymetutu--
Opinions, not medical advice!

Posts: 96227 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
Tincup
Honored Contributor (10K+ posts)
Member # 5829

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I will not advocate giving money, as you know I typically do not do that, but this effort is a good thing.

The icky wording and obvious link to Ho Ho Hopkins is a political thing. But, I am glad to see all the questioning going on, you all are really good!

Here is the website...

http://www.lymemd.org

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www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
   

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