LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » General Support » NEW STUDY BY GUIDELINES AUTHOR DISMISSES RISK OF CHRONIC LYME DISEASE

 - UBBFriend: Email this page to someone!    
Author Topic: NEW STUDY BY GUIDELINES AUTHOR DISMISSES RISK OF CHRONIC LYME DISEASE
KarlaL
LymeNet Contributor
Member # 29631

Icon 1 posted      Profile for KarlaL     Send New Private Message       Edit/Delete Post   Reply With Quote 
Dr. C, “Guidelines author says new study shows Lyme disease does not lead to chronic illness nor does it negatively affect a patient's quality of life. A deeper look into the study reveals the message is somewhat misleading. I discuss the study limitations in my latest blog on All Things Lyme.”

NEW STUDY BY GUIDELINES AUTHOR DISMISSES RISK OF CHRONIC LYME DISEASE

For the Complete blog, go to:
http://danielcameronmd.com/new-study-by-guidelines-author-dismisses-risk-of-chronic-lyme-disease/

There is a growing body of evidence demonstrating the existence of chronic manifestations of Lyme disease. These studies have found that the Borrelia burgdorferi (Bb) infection can cause chronic illness, even when the standard 14- to 21-day antibiotic treatment regime is initiated in the early stages of the disease. [1,2] Additional research has also found that these patients have a high risk of an impaired quality of life. [3,4]
by Dr. C, MD, MPH

Physicians use various terms when referring to chronic manifestations of Lyme disease ─ Lyme encephalopathy, Chronic Lyme disease (CLD), Post-Lyme disease syndrome (PLDS), or Post-treatment Lyme disease (PTLD).

The National Institute of Health (NIH) conducted four separate trials, which validated the existence, severity [5,6] and duration [5,6] of chronic manifestations of Lyme disease. A 2001 study by Klempner and colleagues found, “the deficits in physical health status … were equivalent to those observed in patients with congestive heart failure or osteoarthritis.” [4]

Another study by Dr. F, published in Neurology found, “reports of pain were similar to those of post-surgery patients, fatigue was similar to that of patients with multiple sclerosis (MS), and limitations in physical functioning were comparable with those of patients with congestive heart failure.” [3] . . .

For the Complete blog, go to:
http://danielcameronmd.com/new-study-by-guidelines-author-dismisses-risk-of-chronic-lyme-disease/

--------------------
KarlaL

Posts: 694 | From New Lebanon, NY | Registered: Dec 2010  |  IP: Logged | Report this post to a Moderator
droid1226
Frequent Contributor (1K+ posts)
Member # 34930

Icon 1 posted      Profile for droid1226     Send New Private Message       Edit/Delete Post   Reply With Quote 
Dr. C should reframe this article on his site because it almost looks as if he supports these ridiculous claims by the very tiring & out of touch ID drs Wormser & Auwaerter.

This sentence is ridiculous lol:

“This study should help suppress concerns that the effects of early Lyme disease are likely to cause lifelong debilitation.” – Dr. Paul Auwaerter


-----This sentence is just like saying "Early brain cancer patients are very unlikely to be negatively affected by the tumor growing in your brain"--------Ok. You are leaving out a MASSIVE segment of the population who did not detect lyme early & encouraging people to not catch something early when it can be more easily treated.


I read this a couple days ago & immediately emailed Wormser. Here's his new email address if anyone wants to send him a message. I, of course, received zero response.

[email protected]

--------------------
http://www.youtube.com/user/droid1226/videos?view=0&flow=grid

Posts: 1181 | From ohio | Registered: Nov 2011  |  IP: Logged | Report this post to a Moderator
Robin123
Moderator
Member # 9197

Icon 1 posted      Profile for Robin123     Send New Private Message       Edit/Delete Post   Reply With Quote 
I think we ought to add to these guidelines:

You can only get Lime disease from limes, which are good for you and thus you won't suffer an impaired life.

If you like lemons better, it's your own fault, but you can't get sick from lemons either so your life will not be impaired.

If you like lemon-lime drinks, we assure you you won't get chronic Lemon-Lime, as shown by four studies of various age groups drinking lemon-lime juice and then tested to see if they got chronic Lime, chronic Lemon or chronic Lemon-Lime. They didn't. Relax - what's the problem?

Posts: 12984 | From San Francisco | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
droid1226
Frequent Contributor (1K+ posts)
Member # 34930

Icon 1 posted      Profile for droid1226     Send New Private Message       Edit/Delete Post   Reply With Quote 
Yes. Drink Sprite. That's the answer.

It's just amazing that even the fraudulent CDC admits a subset of lyme patients(10-20%) have long term issues. Although they are extremely low on that number, it still goes against what these 2 troll dr's are saying. It's like they are so irrelevant in their own lives/practice, they need to illicit a response of any kind to legitimize their existence.

Why the $%#& are they given a platform in the first place?

--------------------
http://www.youtube.com/user/droid1226/videos?view=0&flow=grid

Posts: 1181 | From ohio | Registered: Nov 2011  |  IP: Logged | Report this post to a Moderator
Robin123
Moderator
Member # 9197

Icon 1 posted      Profile for Robin123     Send New Private Message       Edit/Delete Post   Reply With Quote 
Because of corruption - ie money influence - etc.
Posts: 12984 | From San Francisco | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
A.G.
LymeNet Contributor
Member # 44713

Icon 1 posted      Profile for A.G.     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
Originally posted by Robin123:
Because of corruption - ie money influence - etc.

[cussing]
Posts: 115 | From US | Registered: Sep 2014  |  IP: Logged | Report this post to a Moderator
Robin123
Moderator
Member # 9197

Icon 1 posted      Profile for Robin123     Send New Private Message       Edit/Delete Post   Reply With Quote 
And what you do is say that now in doctor offices - do not let them get away with the BS anymore - let them know we know. AND then talk to their staff after the doctor leaves the room in a huff!

It's called Act-Up, just like people did when they were advocating for their lives done in by AIDS. In SF, there were two Act-Up groups. They participated in a rally on the steps of the US capitol, spilling the blood of AIDS patients on the steps. It's time, folks, to say enough.

I do find it helpful to make it personal, when speaking with the doctor, as in saying you, your family, your pets, your friends - everyone can get this. Time to know about it, time to protect - so the message isn't only an angry one that they hear, but also a concerned one that says this is not good for anyone or any animal.

Because that's really how I feel, when I look at my feelings - I don't want to have to be at war with others - I want humanity to figure out how to get through this, like what ground sprays to develop to use to combat the tick problem, etc.

Posts: 12984 | From San Francisco | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.