I know exactly where Grand Lake is!! We drive through this area between MO and TX twice a year.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96173 | From Texas | Registered: Feb 2001
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
Thats creepy. But im not positive it will cure her. How much is rmsf like lyme? Did it really stay in her extremities? She had a fever...couldnt it have spread?
I hope she is ok. But many yrs ago a nyc podiatrist had me sceduled to amputate both feet because the pain(that turned out to be bart) was so horrible even tho he had tried evrrything he knew
I know it sounds crazy but my appt to plan the surgery was the next mondy and that thurs, fri i took off work to go to a lyme conference. ..i think it was the one where ilads got going
So talking to docs inbetween presentations they told me if my feet werent therr the bugs would just find another place to attack
I never saw that doc again
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
I didnt realuze they knew she could still be sick. They are acting like shes better except for amputations. I hope she is...but it its like lyme and cos she probably isnt
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
It just dawned on me that she must not have had a rash ... a typical RMSF rash .. or surely they would have thought of checking for RMSF??
My mom had RMSF once and it took them a week to figure out what she had. I THINK she had a rash, but not sure. I was just a kid.
PS.. Took them a week while she was in the hospital the whole time! So they ran tons of blood tests.... but nary a one for RMSF until her doctor got wise. This was before Lyme was even "discovered."
posted
I had no idea RMSF could do this. Are there different strains of it, some more virulent than others? That's what I would guess from reading this.
Posts: 13105 | From San Francisco | Registered: May 2006
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posted
My friend who lives in the desert, who already has Lyme and Babs, was bitten again by a tick and diagnosed with RMSF and Typhus (a very similar bacteria). They told her if she hadn't already been on doxycycline she probably wouldn't have survived. Yeesh.
Posts: 10 | From Southern California | Registered: Mar 2015
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